Hostname: page-component-586b7cd67f-t7fkt Total loading time: 0 Render date: 2024-11-29T07:03:25.177Z Has data issue: false hasContentIssue false

Older Adults’ Awareness of Community Health and Support Services for Dementia Care*

Published online by Cambridge University Press:  01 December 2009

Jenny Ploeg*
Affiliation:
School of Nursing, McMaster University Department of Health, Aging and Society, McMaster University
Margaret Denton
Affiliation:
Department of Health, Aging and Society, McMaster University Department of Sociology, McMaster University McMaster Centre for Gerontological Studies
Joseph Tindale
Affiliation:
Department of Family Relations and Applied Nutrition, University of Guelph
Brian Hutchison
Affiliation:
Department of Epidemiology and Biostatistics, McMaster University Department of Family Medicine, McMaster University Centre for Health Economics and Policy Analysis, McMaster University
Kevin Brazil
Affiliation:
Department of Epidemiology and Biostatistics, McMaster University
Noori Akhtar-Danesh
Affiliation:
School of Nursing, McMaster University
Jean Lillie
Affiliation:
Department of Family Relations and Applied Nutrition, University of Guelph
Jennifer Millen Plenderleith
Affiliation:
McMaster Centre for Gerontological Studies
*
Correspondence should be sent to: / La correspondance doivent être adressées à : Dr. Jenny Ploeg Associate Professor, School of Nursing Faculty of Health Sciences Room HSc3N28G McMaster University 1200 Main Street West Hamilton, Ontario L8N 3Z5 Phone: (905) 525-9140 ext. 22294 Fax: (905) 521-8834 ([email protected])

Abstract

The article examines where older adults seek help in caring for a parent with dementia and the factors associated with their identification of community health and support services as sources of assistance. The authors conducted telephone interviews, using random digit dialing, of 1,152 adults aged 50 and over in the city of Hamilton. Respondents received a vignette that raised issues related to parental dementia. In identifying support sources, over 37 per cent of respondents identified their physician, 33 per cent identified informal support such as family and neighbors, and 31 per cent identified home health services. Only 18 per cent identified community support services. Female participants having higher levels of education were more likely to identify their physician as a source of support. Knowing where to find information about community support services was associated with an increased likelihood of mentioning physicians and home health services as sources of assistance.

Résumé

L’article examine où les personne agées peuvent chercher l’aide pour prendre soin d’un parent avec démence et les facteurs associés à leur identification des services de santé et de soutien communautaires comme des sources d’aide. Les auteurs menées des entrevues téléphoniques, à l’aide de numérotation de chiffres aléatoires, de 1,152 adultes âgés de 50 et plus dans la ville de Hamilton. À déterminer les sources de soutien, plus 37 pour cent des répondants a identifié leur médecin, 33 pour cent a identifié un soutien informel comme la famille et voisins et 31 pour cent a identifié des services de santé maison. Seulement 18 pour cent a identifié des services de soutien communautaires. Participants femmes ayant des niveaux plus élevés de scolarité étaient plus susceptibles d’identifier leur médecin comme une source de soutien. Savoir où trouver renseignements sur services de soutien communautaires était associée à une probabilité accrue de mentionnant des médecins et des services de santé maison comme sources d’aide.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2009

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

*

We thank the following organizations and their employees for the valuable contribution that they have made in the development and analysis of this research: Catholic Family Services of Hamilton – Linda Dayler; Coalition of Community Health and Support Services – Lynne Edwards; Community Information Hamilton – Lesley Russell; Seniors Activation Maintenance Program – Lynne Edwards and Dave Banko; Grocer-Ease – Bev Morgan; Hamilton Community Care Access Centre – Sherry Parsley, Tom Peirce, and Dianne Thompson; Ontario Community Support Association (OCSA) – Susan Thorning and Taru Virkamaki; Regional Geriatric Program (Central) – David Jewell; Social Planning and Research Council of Hamilton (SPRC) – Don Jaffray; and United Way of Burlington and Greater Hamilton – Monica Quinlan. This research was funded by Canadian Institutes of Health Research – Institute on Aging; Ontario Ministry of Health and Long-term Care; United Way of Burlington and Greater Hamilton; and Social Sciences and Humanities Research Council through funding of the MCRI (Social and Economic Dimensions of an Aging Population).

References

Brodaty, H., Thomson, C., Thompson, C., & Fine, M. (2005). Why caregivers of people with dementia and memory loss don’t use services. International Journal of Geriatric Psychiatry, 20, 537546.CrossRefGoogle ScholarPubMed
Bruce, D.G., Paley, G.A., Underwood, P.J., Roberts, D., & Steed, D. (2002). Communication problems between dementia carers and general practitioners: Effect on access to community support services. Medical Journal of Australia, 177, 186188.CrossRefGoogle ScholarPubMed
Bruce, D.G., & Paterson, A. (2000). Barriers to community support for the dementia carer: A qualitative study. International Journal of Geriatric Psychiatry, 15, 451457.3.0.CO;2-K>CrossRefGoogle ScholarPubMed
Buono, M.D., Busato, R., Mazzetto, M., Paccagnella, B., Aleotti, F., Zanetti, O., et al. (1999). Community care for patients with Alzheimer’s disease and non-demented elderly people: Use and satisfaction with services and unmet needs in family caregivers. International Journal of Geriatric Psychiatry, 14, 915924.3.0.CO;2-H>CrossRefGoogle Scholar
Calsyn, R.J., & Roades, L.A. (1993). Predicting perceived service need, service awareness, and service utilization. Journal of Gerontological Social Work, 21(1), 5976.CrossRefGoogle Scholar
Calsyn, R.J., Roades, L.A., & Calsyn, D.S. (1992). Acquiescence in needs assessment studies of the elderly. The Gerontologist, 32, 246252.CrossRefGoogle ScholarPubMed
Calsyn, R., Roades, L.A., & Klinkenberg, W.D. (1998). Using theory to design needs assessment studies of the elderly. Evaluation and Programming Planning, 21, 277286.CrossRefGoogle Scholar
Calsyn, R., & Winter, J. (1999). Understanding and controlling response bias in needs assessment studies. Evaluation Review, 23, 399417.CrossRefGoogle ScholarPubMed
Calsyn, R.J., & Winter, J.P. (2000). Predicting different types of service use by the elderly: The strength of the behavioral model and the value of interaction terms. Journal of Applied Gerontology, 19, 284303.CrossRefGoogle Scholar
Canadian Study of Health and Aging Working Group. (1994). Patterns of caring for people with dementia in Canada. Canadian Journal on Aging, 13, 470487.CrossRefGoogle Scholar
Canadian Study of Health and Aging Working Group. (2000). The incidence of dementia in Canada. Neurology, 55, 6673.CrossRefGoogle Scholar
Cantegreil-Kallen, I., Turbelin, C., Angel, P., Flahault, A., & Rigaud, A. (2006). Dementia management in France: Health care and support services in the community. Dementia, 5, 317326.CrossRefGoogle Scholar
Caserta, M.S., Lund, D.A., Wright, S.D., & Redburn, D.E. (1987). Caregivers to dementia patients: The utilization of community services. The Gerontologist, 27, 209214.CrossRefGoogle Scholar
Chappell, N., McDonald, L., & Stones, M. (2008). Aging in contemporary Canada (2nd ed.). Toronto, Ontario, Canada: Pearson-Prentice Hall.Google Scholar
Collins, C., Stommel, M., Given, C.W., & King, S. (1991). Knowledge and use of community services among family caregivers of Alzheimer’s disease patients. Archives of Psychiatric Nursing, 5, 8490.CrossRefGoogle ScholarPubMed
Cotrell, V., & Engel, R.J. (1998). The role of secondary supports in mediating formal services to dementia caregivers. Journal of Gerontological Social Work, 30(3/4), 117132.CrossRefGoogle Scholar
Cox, C. (1999). Race and caregiving: Pattern of service use by African American and white caregivers of persons with Alzheimer’s disease. Journal of Gerontological Social Work, 32(2), 519.CrossRefGoogle Scholar
Denton, M., Ploeg, J., Tindale, J., Hutchison, B., Brazil, K., Akhtar-Danesh, N., et al. (2008). Where would you turn for help? Older adults’ awareness of community support services. Canadian Journal on Aging, 27, 359370.CrossRefGoogle ScholarPubMed
Ferri, C.P., Prince, M., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., et al. (2005). Global prevalence of dementia: A Delphi consensus study. Lancet, 366, 21122117.CrossRefGoogle ScholarPubMed
Forbes, D.A., Markle-Reid, M., Hawranik, P., Peacock, S., Kingston, D., Morgan, D., et al. (2008). Availability and acceptability of Canadian home and community-based services: Perspectives of family caregivers of persons with dementia. Home Health Care Services Quarterly, 27, 7599.CrossRefGoogle ScholarPubMed
Forbes, D.A., Morgan, D., & Janzen, B.L. (2006). Rural and urban Canadians with dementia: Use of health care services. Canadian Journal on Aging, 25, 321330.CrossRefGoogle Scholar
Fortinsky, R.H. (1998). How linked are physicians to community support services for their patients with dementia? Journal of Applied Gerontology, 17, 480498.CrossRefGoogle Scholar
Fortinsky, R.H. (2001). Health care triads and dementia care: Integrative framework and future directions. Aging & Mental Health, 5(Suppl. 1), S35S48.CrossRefGoogle ScholarPubMed
Harris, M., Bayer, A., & Tadd, W. (2002). Addressing the information needs of older patients. Reviews in Clinical Gerontology, 12, 511.CrossRefGoogle Scholar
Hill, G., Forbes, W., Berthelot, J.M., Lindsay, J., & McDowell, I. (1996). Dementia among seniors. Health Reports, 8(2), 710.Google ScholarPubMed
Hughes, R., & Huby, M. (2002). The application of vignettes in social and nursing research. Journal of Advanced Nursing, 37, 382386.CrossRefGoogle ScholarPubMed
Jansen, L., Forbes, D.A., Markle-Reid, M., Hawranik, P., Kingston, D., Peacock, S., et al. (2009). Formal care providers’ perceptions of home and community-based services: Informing dementia care quality. Home Health Care Services Quarterly, 28, 123.CrossRefGoogle ScholarPubMed
Krout, J.A. (1983). Knowledge and use of services by the elderly: A critical review of the literature. International Journal of Aging and Human Development, 17, 153167.CrossRefGoogle ScholarPubMed
Lillie, J. (2008). Older adults’ knowledge of community support services: Does social support make a difference? Unpublished doctoral dissertation. University of Guelph, Ontario, Canada.Google Scholar
Maslow, K. (1990). Linking persons with dementia to appropriate services: Summary of an OTA study. Pride Institute Journal of Long Term Home Health Care, 9, 4250.Google ScholarPubMed
Ortiz, F., & Fitten, L.J. (2000). Barriers to healthcare access for cognitively impaired older Hispanics. Alzheimer Disease and Associated Disorders, 14, 141150.CrossRefGoogle ScholarPubMed
Østbye, T., & Crosse, E. (1994). Net economic costs of dementia in Canada. Canadian Medical Association Journal, 151, 14571464.Google ScholarPubMed
Robinson, K.M., Buckwalter, K.C., & Reed, D. (2005). Predictors of use of services among dementia caregivers. Western Journal of Nursing Research, 27, 126140.CrossRefGoogle ScholarPubMed
Schoenberg, N.E., Campbell, K.A., & Johnson, M.M. (1999). Physicians and clergy as facilitators of formal services for older adults. Journal of Aging & Social Policy, 11, 926.CrossRefGoogle ScholarPubMed
Schoenberg, N.E., & Ravdal, H. (2000). Using vignettes in awareness and attitudinal research. International Journal Social Research Methodology, 3, 6374.CrossRefGoogle Scholar
Spalding, N.J., & Phillips, T. (2007). Exploring the use of vignettes: From validity to trustworthiness. Qualitative Health Research, 17, 954962.CrossRefGoogle ScholarPubMed
Statistics Canada. (2006a). Age and sex, 2006 counts for both sexes, for Canada and census metropolitan areas and census agglomerations—100% Data. Retrieved September 30, 2008, from http://www12.statcan.ca/english/census06/data/highlights/agesex/pages/Page.cfm?Lang=E&Geo=CMA&Code=01&Table=1&Data=Count&Sex=1&StartRec=1&Sort=7&Display=Page&CSDFilter=5000Google Scholar
Statistics Canada. (2006b). Population and dwelling counts, for Canada and census subdivisions (municipalities), 2006 and 2001 censuses. Retrieved September 30, 2008, from http://www12.statcan.ca/english/census06/data/popdwell/Table.cfm?T=201&S=3&O=D&RPP=150Google Scholar
Strain, L., & Blandford, A. (2002). Community-based services for the taking but few takers: Reasons for nonuse. Journal of Applied Gerontology, 21, 220235.CrossRefGoogle Scholar
Streiner, D.L., & Norman, G.R. (1998). PDQ Epidemiology (2nd ed.). Hamilton, Ontario, Canada: B.C. Decker.Google Scholar
de Vaus, D. (2002). Survey research. In Greenfield, T. (Ed.), Research methods for postgraduates (2nd ed., pp. 172182). New York: Oxford.Google Scholar
Vetter, P., Steiner, O., Kraus, S., Moises, H., Kropp, P., Moller, W.D., et al. (1998). Factors affecting the utilization of homecare supports by caregiving relatives of Alzheimer patients. Dementia and Geriatric Cognitive Disorders, 9, 111116.CrossRefGoogle ScholarPubMed
Wimo, A., Winblad, B., Aguero-Torres, H., & von Strauss, E. (2003). The magnitude of dementia occurrence in the world. Alzheimer Disease & Associated Disorders, 17, 6367.CrossRefGoogle ScholarPubMed
Winslow, B.W. (2003). Family caregivers’ experiences with community services: A qualitative analysis. Public Health Nursing, 20, 341348.CrossRefGoogle ScholarPubMed
Zarit, S.H., Gaugler, J.E., & Jarrott, S.E. (1999). Useful services for families: Research findings and directions. International Journal of Geriatric Psychiatry, 14, 165181.3.0.CO;2-O>CrossRefGoogle ScholarPubMed