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Effect of Support Groups on Family Caregivers to the Frail Elderly*

Published online by Cambridge University Press:  29 November 2010

Andrée Demers  and
Jean-Pierre Lavoie
Andrée Demers
Affiliation:
Université de Montréal
Jean-Pierre Lavoie
Affiliation:
Direction de Santé publique, Montréal centre
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Abstract

This paper reports on a project aimed at creating support groups for caregivers of the frail elderly and assessing their impact on participants. The effect evaluation was based on a quasi-experimental design with repeated measures (n = 120). The results show that participation in support groups did not lower the caregivers' subjective burden, and indeed contributed to its increase. Conversely, such participation appears to have had a stabilizing effect on their level of depressive symptoms. Both these effects, reported at the end of the support group experience, persisted three months later. Various possible explanations of these contradictory results are discussed.

Résumé

Cet article présente les résultats d'évaluation d'un projet d'ateliers de soutien destiné aux aidantes naturelles de personnes âgées. L'évaluation des effets repose sur un devis quasi-expérimental avec mesures répétées (n = 120). Les résultats montrent que la participation aux ateliers de soutien n'a pas réduit le fardeau subjectif des aidantes et qu'elle a au contraire contribué à l'accroître. Par ailleurs, elle semble avoir contribué à stabiliser leur niveau de symptômes dépressifs. Ces effets, observés à la fin des ateliers de soutien, persistent trois mois après la fin de l'intervention. Différentes explications de ces résultats contradictoires sont considérées en discussion.

Keywords

Subjective BurdenDepressionCaregiversSupport GroupsEvaluation.Fardeau subjectifdépressionaidantes naturellesateliers de soutienévaluation.
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 15 , Issue 1 , Spring/printemps 1996 , pp. 129 - 144
Copyright
Copyright © Canadian Association on Gerontology 1996

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References

Abel, E.K. (1986). Adult daughters and care for the elderly. Feminist Studies, 12(3), 479–497.CrossRefGoogle Scholar
Anderson, D., Gellatly, J., & Pesznecker, B. (1986). Caregiver support groups. In Montgomery, R. & Prothero, J. (Eds.), Developing Respite Services for the Elderly (pp. 114–131). Seattle and London: University of Washington Press.Google Scholar
Cantor, M.H. (1983). Strain among caregivers: a study of experience in the United States. The Gerontologist, 23(6), 597–604.CrossRefGoogle ScholarPubMed
Deimling, G.T., & Bass, D.M. (1986). Symptoms of mental impairment among elderly adults and their effects on family caregivers. Journal of Gerontology, 41(6), 778–784.CrossRefGoogle ScholarPubMed
Deimling, G.T., Bass, D.M., Townsend, A.L., & Noelker, L.S. (1989). Care-related stress: a comparison of spouse and adult-child caregivers in shared and separate households. Journal of Aging and Health, 1(1), 67–82.CrossRefGoogle Scholar
Demers, A., & Lavoie, J.P. (1992). Rapport d'évaluation des effets d'ateliers de soutien aux aidantes naturelles de personnes âgées. Quebec: Conseil québécois de la recherche sociale.Google Scholar
Drinka, T.J.K., Smith, J.C., & Drinka, P.J. (1987). Correlates of depression and burden for informal caregivers of patients in a geriatrics referral clinic. Journal of the American Geriatrics Society, 35(6), 522–525.CrossRefGoogle Scholar
Gallagher, D.E. (1985). Intervention strategies to assist caregivers of frail elders: current research status and future research directions. In Lawton, M.P. & Maddox, G.L. (Eds.), Annual Review of Gerontology and Geriatrics (pp. 249–282). New York: Springer Publishing Company.Google Scholar
Gallo, J.J. (1990) The effect of social support on depression in caregivers of the elderly. The Journal of Family Practice, 30(4), 430–436.Google ScholarPubMed
Garant, L., & Bolduc, M. (1990). L'aide par les proches: mythes et réalités. Revue de littérature et réflexions sur les personnes âgées en perte d'autonomie, leurs aidants et aidantes naturels et le lien avec les services formels. Québec: Ministère de la santé et des services sociaux.Google Scholar
George, L.K. (1987). Easing caregiver burden: the role of informal and formal supports. In Ward, R.A. & Tobin, S.S. (Eds.), Health in Aging. Sociological Issues and Policy Directions (pp. 133–158). New York: Springer Publishing Company.Google Scholar
George, L.K., & Gwyther, L.P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253–259.CrossRefGoogle ScholarPubMed
Gonyea, J.G. (1989). Alzheimer's disease support groups: An analysis of their structure, format and perceived benefits. Social Work in Health Care, 4(1), 61–72.CrossRefGoogle Scholar
Greene, V.L., & Monahan, D.J. (1989). The effect of a support and education program on stress and burden among family caregivers to frail elderly persons. The Gerontologist, 29(4), 472–477.CrossRefGoogle ScholarPubMed
Haley, W.E. (1989). Group intervention for dementia family caregivers: A longitudinal perspective. The Gerontologist, 29(4), 478–480.CrossRefGoogle ScholarPubMed
Haley, W.E., Brown, S.L., & Levine, E.G. (1987). Experimental evaluation of the effectiveness of group intervention for dementia caregivers. The Gerontologist, 27(3), 376–382.CrossRefGoogle ScholarPubMed
Hudson, W.W. (1982). The Clinical Measurement Package. Homewood, IL: Dorsey Press.Google ScholarPubMed
Jutras, S., & Lavoie, J.P. (1991). L'état de santé des corésidants de personnes âgées en perte d'autonomie. Québec: Santé Québec 87, Les Cahiers de recherche.Google Scholar
Kahan, J., Kemp, B., Staples, F.R., & Brummel-Smith, K. (1985). Decreasing the burden in families caring for a relative with a dementing illness. A controlled study. Journal of the American Geriatrics Society, 33, 664–670.CrossRefGoogle ScholarPubMed
Kosberg, J.I., & Cairl, R.E. (1986). The cost of care index: A case management tool for screening informal care providers. The Gerontologist, 26(3), 273–278.CrossRefGoogle ScholarPubMed
Linn, M.W., & Linn, B.S. (1982). The rapid disability rating scale-2. Journal of the American Geriatric Society, 30(6), 378–382.CrossRefGoogle ScholarPubMed
Lovett, S., & Gallagher, D. (1988). Psychoeducational interventions for family caregivers: preliminary efficacy data. Behavior Therapy, 19, 321–330.CrossRefGoogle Scholar
McDowell, I., & Newell, C. (1987). Measuring Health — A Guide to Rating Scales and Questionnaires. New York: Oxford University Press.Google Scholar
Middleton, L. (1984). Alzheimer's Family Support Groups: A Manual for Group Facilitators. Washington, DC: U.S. Department of Health and Human Services, Office of Human Development Services.Google Scholar
Miller, B. (1987). Gender and control among spouses of the cognitively impaired: a research note. The Gerontologist, 27(4), 447–453.CrossRefGoogle ScholarPubMed
Mohide, E.A., Pringle, D.M., Streiner, D.L., Gilbert, J.R., Muir, G., & Tew, M.A. (1990). Randomized trial of family caregiver support in the home management of dementia. Journal of the American Geriatric Society, 38, 446–454.CrossRefGoogle ScholarPubMed
Montgomery, R.J., & Borgatta, E.F. (1989). The effects of alternative support strateies on family caregiving. The Gerontologist, 29(4), 457–464.CrossRefGoogle Scholar
Patton, M.Q. (1992). Qualitative Evaluation and Research Methods (2nd ed.). Newbury Park: Sage.Google Scholar
Pearson, I., Verma, S., & Nellett, C. (1988). Elderly psychiatric patient status and caregiver perceptions as predictors of caregiver burden. The Gerontologist, 28(7), 79–83.CrossRefGoogle ScholarPubMed
Robinson, K.M. (1988) A social skills training program for adult caregivers. Advances in Nursing Science, 10(2), 59–72.CrossRefGoogle ScholarPubMed
Schulz, R., & Williamson, G. (1991). A 2-year longitudinal study of depression amongalzheimer's caregivers. Psychology and Aging, 6(4), 569–578.CrossRefGoogle ScholarPubMed
Smith, G.C., Smith, M.F., & Toseland, R.W. (1991). Problems identified by family caregivers in counseling. The Gerontologist, 31(1), 15–22.CrossRefGoogle ScholarPubMed
Stoller, E.P., & Publiesci, K.L. (1989). The transition to the caregiving role. A panel study of helpers of elderly people. Research on Aging, 111(3), 312–330.CrossRefGoogle Scholar
Stommel, M., Given, C.W., & Given, B. (1990). Depression as an overriding variable explaining caregiver burdens. Journal of Aging and Health, 2(1), 81–102.CrossRefGoogle Scholar
Thompson, S.C., Bundek, N.I., & Sobolew-Shubin, A. (1990). The caregivers of stroke patients: an investigation of factors associated with depression. Journal of Applied Social Psychology, 20(2), 115–129.CrossRefGoogle Scholar
Toseland, R.W. (1990). Long-term effectiveness of peer-led and professionally led support groups for caregivers. Social Service Review, 64(2), 308–327.CrossRefGoogle Scholar
Toseland, R.W., Labrecque, M.S., Goebel, S.T., & Whitney, M.H. (1992). An evaluation of a group program for spouses of frail elderly veterans. The Gerontologist, 32(3), 382–390.CrossRefGoogle ScholarPubMed
Toseland, R.W., Rossiter, C.M., & Labrecque, M.S. (1989). The effectiveness of peerled and professionally led groups to support family caregivers. The Gerontologist, 29(4), 465–471.CrossRefGoogle ScholarPubMed
Wasow, M. (1986). Support groups for family caregivers of patients with alzheimer's disease. Social Work, 31(2), 93–97.CrossRefGoogle ScholarPubMed
Whitlatch, C.J., Zarit, S.H., & von Eye, A. (1991). Efficacy of interventions with caregivers: A reanalysis. The Gerontologist, 31(1), 9–14.CrossRefGoogle ScholarPubMed
Winogrond, I.R., Fisk, A.A., Kirsling, R.A., & Keyes, B. (1987). The relationship of caregiver burden and morale to alzheimer's disease patient function in a therapeutic setting. The Gerontologist, 27(3), 336–339.CrossRefGoogle Scholar
Zarit, S.H., Anthony, C.R., & Boutselis, M. (1987). Interventions with caregivers of dementia patients: Comparison of two approaches. Psychology and Aging, 2, 225–232.CrossRefGoogle Scholar
Zarit, S.H., Orr, N.K., & Zarit, J.M. (1985). The Hidden Victims of Alzheimer's Disease — Families Under Stress. New York and London: New York University Press.Google Scholar
Zarit, S.H., Reever, K.E., & Back-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist, 20(6), 649–655.CrossRefGoogle ScholarPubMed
Zarit, S.H., Tood, P.A., & Zarit, J.M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist, 26(3), 260–266.CrossRefGoogle ScholarPubMed
Zarit, S.H., & Zarit, J.M. (1982). Families under stress: Interventions for caregivers of senile dementia patients. Psychotherapy, Theory, Research and Practice, 19(4), 461–471.CrossRefGoogle Scholar