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Développement d’un programme d’éducation au loisir adapté comme moyen de soutien à l’implication d’aidants d’un proche atteint de démence*,†

Published online by Cambridge University Press:  01 June 2009

Hélène Carbonneau ,
Chantal D. Caron  and
Johanne Desrosiers
Hélène Carbonneau*
Affiliation:
Centre de recherche sur le vieillissement, Sherbrooke, Québec, Canada
Chantal D. Caron
Affiliation:
Centre de recherche sur le vieillissement, Sherbrooke, Québec, Canada Faculté de médecine et des sciences de la santé, Université de Sherbrooke, Sherbrooke, Québec, Canada
Johanne Desrosiers
Affiliation:
Centre de recherche sur le vieillissement, Sherbrooke, Québec, Canada Faculté de médecine et des sciences de la santé, Université de Sherbrooke, Sherbrooke, Québec, Canada
*
‡Correspondance à: / Correspondence to: Hélène Carbonneau CSSS-IUGS Centre de recherche sur le vieillissement 1036, Belvédère Sud Sherbrooke, Québec, Canada J1H 4C4 Téléphone : 819 821-1170 poste 2680 Télécopieur : 819 829-7141 Courriel : [email protected]
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Abstract

Leisure represents a positive way to keep relationships satisfactory between caregivers and a person with dementia. Adapted leisure education is a promising approach to assist the family to discover new ways to share good times with their relatives. This study aimed to develop an adapted leisure education program. It included an evaluation of the caregivers’ needs, the program content development, and a pilot study to experiment with the content of the program. Three focus groups of dementia caregivers (n = 19) were conducted to investigate caregivers needs. Based on content analysis of these focus groups and a literature review, the content of the program was developed. The pilot study (n = 4) included a quasi-experimental trial and an implementation evaluation. This study led to the development of an adapted leisure education program that puts caregiver support in a new perspective, focusing on positive aspects rather than the burden of caregiving.

Résumé

Le loisir représente une façon positive de maintenir des relations satisfaisantes entre les aidants et leur proche atteint de démence. L’éducation au loisir adapté est une voie prometteuse favorisant le soutien des aidants dans la reconstruction d’un vécu satisfaisant avec leur proche. La présente étude vise le développement d’un programme d’éducation au loisir adapté. Elle comporte trois parties : étude des besoins, élaboration du contenu et validation du contenu. Trois groupes de discussion focalisée formés d’aidants (n = 19) d’un proche atteint de démence ont d’abord été organisés. Le contenu du programme qui a ensuite été développé s’est appuyé sur une évaluation des besoins et une recension des écrits. Enfin, la validation du programme comportait une étude préexpérimentale (n = 4) jumelée à une évaluation d’implantation. Cette étude a mené au développement d’un programme d’éducation au loisir adapté qui introduit le soutien aux aidants dans une nouvelle perspective centrée sur les aspects positifs du rôle d’aidant plutôt que sur le fardeau.

Keywords

loisiraidantsdémencesoutienméthodes mixtesrecreationcaregiversdementiasupportmixed methods
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 28 , Issue 2 , June 2009 , pp. 121 - 134
Copyright
Copyright © Canadian Association on Gerontology 2009

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Footnotes

*

La présente étude a été financée par la Fondation de l’Institut universitaire de gériatrie de Sherbrooke (IUGS). Hélène Carbonneau est boursière des Instituts de recherche en santé du Canada – Institut du vieillissement et du programme FORMSAV du Réseau québécois de recherche sur le vieillissement. Chantal D. Caron est chercheuse-boursière junior 1 et Johanne Desrosiers est chercheuse-boursière nationale du Fonds de la recherche en santé. Merci au Centre de santé et de services sociaux – IUGS et à la Société Alzheimer de l’Estrie pour leur collaboration au recrutement des participants.

†

Affiche présentée à l’Association canadienne de gérontologie, Québec, octobre 2006

References

Références

Acton, G. et Kang, J. (2001). Interventions to reduce the burden of caregiving for an adult with dementia: a meta-analysis. Research in Nursing & Health, 24(5), 349–360.CrossRefGoogle ScholarPubMed
Adams, T. et Gardiner, P. (2005). Communication and interaction within dementia care triads: developing a theory for relationship-centred care. Dementia, 4(2), 185–205.CrossRefGoogle Scholar
Bandura, A. (2004). Auto-efficacité: le sentiment d’efficacité personnelle. Paris: De Boeck.Google Scholar
Bandura, A. (1982). The assessment and predictive generality of self-percepts of efficacy. Journal Behavior Therapy and Experimental Psychiatry, 13(3), 195–199.CrossRefGoogle ScholarPubMed
Beck, J. S. (1995). Cognitive therapy: basics and beyond. New York: Guilford Press.Google Scholar
Bedini, L. A. et Phoenix, T. L. (1999). Recreation programs for caregivers of older adults: A review and analysis of literature from 1990 to 1998. In Keller, M. J. (Ed.), Caregiving-leisure and aging (pp. 17–34). New York: Haworth Press.Google Scholar
Bravo, G., Gaulin, P. et Dubois, M. F. (1996). Validation d’une échelle de bien-être général auprès d’une population francophone âgée de 50 à 75 ans. Revue canadienne du vieillissement, 15(1), 112–128.CrossRefGoogle Scholar
Brodaty, H., Green, A. et Koschera, A. (2003). Meta-analysis of psychosocial interventions for caregivers of people with dementia. Journal of the American Geriatrics Society, 51(5), 657–664.Google Scholar
Burgio, L., Corcoran, M., Lichstein, K. L., Nichols, L., Czaja, S., Gallagher-Thompson, D. et al. (2001). Judging outcomes in psychosocial interventions for dementia caregivers: The problem of treatment implementation. The Gerontologist, 41(4), 481–489.CrossRefGoogle ScholarPubMed
Carbonneau, H. (1995). Programme d’éducation au loisir. Sherbrooke: Hôpital d’Youville.Google Scholar
Carbonneau, H., Caron, C. et Desrosiers, J. (soumis). Development of a conceptual framework of qualitative aspects of caregiving. Dementia.Google Scholar
Carbonneau, H., Fontaine, L. et Lussier, M. A. (2004). Approche loisir pour la clientèle avec déficits cognitifs graves: Quand la mémoire fuit, accompagner dans la tendresse. Sherbrooke: Institut universitaire de gériatrie de Sherbrooke.Google Scholar
Carradice, A., Beail, N. et Shankland, M. C. (2003). Interventions with family caregivers for people with dementia: efficacy problems and potential solution. Journal of Psychiatric and Mental Health Nursing, 10(3), 307–315.CrossRefGoogle ScholarPubMed
Cartwright, J. C., Archbold, P. G., Stewart, B. J. et Limandri, B. (1994). Enrichment processes in family caregiving to frail elders. Advances in Nursing Sciences, 17(1), 31–43.CrossRefGoogle ScholarPubMed
Chen, H. T. (2005). Practical program evaluation: assessing and improving planning, implementation, and effectiveness. Thousand Oaks: Sage.CrossRefGoogle Scholar
Combs, A. W., Richards, A. C. et Richards, F. (1976). Perceptual psychology: a humanistic approach to the study of persons. New York: Harper & Row.Google Scholar
Coutu-Wakulczyk, G., Montgomery, P. et O’Brien, K. (1989). Self-concepts and professional commitment of student enrolled in a B.Sc.N. distance education program. Sudbury: Laurentien University, School of Nursing.Google Scholar
Dattilo, J. et Murphy, W. D. (1991). Leisure education program planning: a systematic approach. State College, PA: Venture Publishing Inc.Google Scholar
Dupuis, S. L. et Pedlar, A. (1995). Family leisure programs in institutional care settings: buffering the stress of caregivers. Therapeutic Recreation Journal, 29(3), 184–205.Google Scholar
Farran, C. J. (1997). Theoretical perspectives concerning positive aspects of caring for elderly persons with dementia: stress/adaptation and existentialism. The Gerontologist, 37(2), 250–256.Google Scholar
Fazio, A. F. (1977). A concurrent validational study of the NCHS general well-being schedule. Vital and Health Statistics, 2(73), 1–53.Google Scholar
Hellström, I., Nolan, M. et Lundh, U. (2005). ‘We do things together’ A case study of ‘couplehood’ in dementia. Dementia, 4(1), 7–22.CrossRefGoogle Scholar
Kitwood, T. (1997). Dementia reconsidered: the person comes first. Buckingham: Open University Press.Google Scholar
Krueger, R. A. et Casey, M. A. (2000). Focus group: a practical guide for applied research (3rded.). Thousand Oaks: Sage.Google Scholar
Lévesque, L., Gendron, C., Vézina, J., Hébert, R., Ducharme, F., Lavoie, J.-P. et al. (2002). The process of a group intervention for caregivers of demented persons living at home: conceptual framework, components, and characteristics. Aging & Mental Health, 6(3), 239–247.CrossRefGoogle ScholarPubMed
Lyonette, C. et Yardley, L. (2003). The influence on carer well-being of motivations to care for older people and the relationship with the care recipient. Ageing and Society, 23(4), 487–506.Google Scholar
Mangen, D. J., Bengtson, V. L. et Landry, P. H. (Eds.) (1988). Measurement of intergenerational relations. Beverly Hills: Sage.Google Scholar
McCallion, P., Toseland, R. W. et Freeman, K. (1999). An evaluation of a family visit education program. Journal of the American Geriatrics Society, 47(2), 203–214.CrossRefGoogle ScholarPubMed
Miller, J. W., Coombs, W. T. et Fuqua, D. R. 1999. An examination of psychometric properties of bandura’s multidimensional scales of perceived self-efficacy. Measurement & Evaluation in Counseling & Development, 31(4), 186–197.Google Scholar
Mittelman, M. S., Roth, D. L., Haley, W. E. et Zarit, S. H. (2004). Effects of a caregiver intervention on negative caregiver appraisals of behavior problems in patients with Alzheimer’s disease: results of a randomized trial. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 59(1), 27–34.Google Scholar
Mundy, J. (1998). Leisure education: theory and practice (2nded.). Champaign: Sagamore Publishing.Google Scholar
Nolan, M., Lundh, U., Grant, G. et Keady, J. (2003). Partnerships in family care: understanding the caregiving career. Philadelphia: Open University Press.Google Scholar
Nolan, M., Ryan, T., Ederby, R., et Reid, D. (2002). Towards a more inclusice vision of dementia care practive and research. Dementia, 1(2), 193–211.Google Scholar
Noreau, L., Murphy, G., Tremblay, G. et Cantin, R. (1995). Niveau de pratique de loisirs et influence des caractéristiques personnelles et environnementales chez des personnes ayant une déficience motrice. Loisir et Société, 18(1), 209–232.CrossRefGoogle Scholar
Paillé, P. et Mucchielli, A. (2003). L’analyse qualitative en sciences humaines et sociales. Paris: Armand Collin.Google Scholar
Patton, M. Q. (1997). Utilization-focused evaluation: the new century text (3rded). Thousand Oaks: Sage.Google Scholar
Quayhagen, M. P. et Quayhagen, M. (1988). Alzheimer’s stress: coping with the caregiving role. The Gerontologist, 28(3), 391–396.CrossRefGoogle ScholarPubMed
Schulz, R., Burgio, L., Burns, R., Eisdorfer, C., Gallagher-Thompson, D., Gitlin, L. N. et Mahoney, D. F. (2003). Resources for enhancing Alzheimer’s caregiver health (REACH): overview, site-specific outcomes, and future directions. The Gerontologist, 43(4), 514–520.Google Scholar
Steffen, A. M., McKibbin, C., Zeiss, A. M., Gallagher-Thompson, D., et Bandura, A. (2002). The revised xcale for caregiving self-efficacy: Reliability and validity studies. Journal of Gerontology: PSYCHOLOGICAL SCIENCES 57B(1), P74–P86.Google Scholar
Sörensen, S., Pinquart, M. et Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42(3), 356–372.CrossRefGoogle ScholarPubMed
Tinsley, H. E. A. et Tinsley, D. J. (1981). An analysis of leisure counseling models. The Counseling Psychologist, 9(3), 45–53.CrossRefGoogle Scholar
Voelkl, J. E. (1998). The shared activities of older adults with dementia and their caregivers. Therapeutic Recreation Journal, 32(3), 231–239.Google Scholar
Williamson, G. M. et Shaffer, D. R. (2001). Relationship quality and potentially harmful behaviors by spousal caregivers: how we were then, how we are now: the Family Relationships in Late Life Project. Psychology and Aging, 16(2), 217–226.Google Scholar
Zarit, S. H., Gaugler, J. E. et Jarrott, S. E. (1999). Useful services for families: research finding and directions. International Journal of Geriatric Psychiatry, 14(3), 165–181.Google Scholar