Hostname: page-component-586b7cd67f-tf8b9 Total loading time: 0 Render date: 2024-11-22T09:24:22.917Z Has data issue: false hasContentIssue false
  • English
  • Français

Barriers to Residential Planning: Perspectives from Selected Older Parents Caring for Adult Offspring with Lifelong Disabilities

Published online by Cambridge University Press:  31 March 2010

Christine Joffres
Christine Joffres*
Affiliation:
Dalhousie University
*
Requests, etc., Dr. Christine Joffres, Department of Community Health & Epidemiology, Dalhousie University, 5849 University Avenue, Halifax, N. S. B3H 4H7. [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

This paper presents a typology of older parents caring for adult offspring with lifelong disabilities, as well as barriers to residential planning from the perspectives of older parents caring for adult offspring with lifelong disabilities. Project participants included 54 older parents and one grandparent (all aged 60+). Information was collected via focus groups in six provinces across Canada. Transcripts were analysed using different analytical procedures, including pattern identification, clustering of conceptual groupings, identification of relationships between variables, constant comparisons, and theoretical memos. Older parents' reluctance to engage in the planning of future living options was found to be multi-factorial and linked to the macro- and micro-systems within which these families were embedded.

Résumé

Ce manuscrit présente une typologie de parents âgés qui s'occupent d'enfants adultes ayant des déficiences permanentes et des barrières que ces parents perçoivent vis à vis de la planification résidentielle de leurs enfants adultes avec des déficiences permanentes. Les participants de ce projet sont des parents âgés (60 ans et plus). L'information présentée a été recueillie par l'intermédiaire de six groupes de discussion à travers le Canada. Les transcriptions ont été analysées avec différentes procédures d'analyse, y compris l'identification de schémas, le regroupement de concepts similaires, l'identification de relations entre les variables, des comparaisons constantes, et des memoranda théoriques. Les résultats indiquent que la réticence des parents à s'engager dans la planification résidentielle de leurs enfants était causée par une multitude de facteurs reliés aux macro- et micro-systèmes dans lesquels ces familles vivaient.

Keywords

Residential planningolder parentsadult childrenlifelong disabilitiesPlanification résidentielleparents aîné(e)senfants adultesinvalidité permanente
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 21 , Issue 2 , Summer/Été 2002 , pp. 303 - 311
Copyright
Copyright © Canadian Association on Gerontology 2002

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Blacher, J., & Hanneman, R. (1993). Out-of-home placement of children and adolescents with severe handicaps: Behavioral intentions and behavior. Research in Developmental Disabilities, 14, 145–160.CrossRefGoogle ScholarPubMed
Black, M.M., Cohn, J.F., Smull, M.W., & Crites, L.S. (1985). Individual and family factors associated with risk of institutionalization of mentally retarded adults. American Journal of Mental Deficiency, 90, 271–276.Google ScholarPubMed
Black, M.M., Molaison, V.A., & Smull, M.W. (1990). Families caring for a young adult with mental retardation: Service needs and urgency of community living requests. American Journal on Mental Retardation, 95, 32–39.Google Scholar
Braddock, D. (1999). Aging and developmental disabilities: Demographic and policy issues affecting American families. Mental Retardation, 4, 154–161.Google Scholar
Campbell, J.A., & Essex, L.E. (1994). Factors affecting parents in their future planning for a son or daughter with developmental disabilities. Education and Training in Mental Retardation and Developmental Disabilities, September, 222–228.Google Scholar
Cole, D.A., & Meyer, L.H. (1989). Impact of needs and resources on family plans to seek out-of-home placements. American Journal on Mental Retardation, 93, 380–387.Google Scholar
Essex, L.E., Seltzer, M.M., & Krauss, M.W. (1997). Residential transitions of adults with mental retardation: Predictors of waiting list use and placement. American Journal on Mental Retardation, 101(6), 613–629.Google ScholarPubMed
Freedman, R.I., Krauss, W.M., & Seltzer, M.M. (1997). Aging parents' residential plans for adult children with mental retardation. Mental Retardation, 35(2), 114–123).2.0.CO;2>CrossRefGoogle ScholarPubMed
Fujiura, G. T. (1998). The demography of family households. American Journal on Mental Retardation, 103, 225–235.2.0.CO;2>CrossRefGoogle ScholarPubMed
Grant, G. (1989). Letting go: Decision-making among family carers of people with a mental handicap. Australia and New Zealand Journal of Developmental Disabilities, 15, 189–200.CrossRefGoogle Scholar
Griffiths, D.L., & Unger, D.G. (1994). Views about planning for the future among parents and siblings of adults with mental retardation. Family Relations, 43, 221–227.CrossRefGoogle Scholar
Guba, E.G., & Lincoln, Y.S. (1981). Effective evaluation: Improving the usefulness of evaluation results through responsive and naturalistic approaches. San Francisco: Jossey-Bass Publishers.Google Scholar
Hayden, M.F., & DePaepe, P. (1994). Waiting for community services: The impact on persons with mental retardation and other developmental disabilities. In Hayden, M.F. & Abery, B.H. (Eds), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities (pp. 176–206). Baltimore: Brookes.Google Scholar
Heller, T., & Factor, A. (1988). Permanency planning among black and white family caregivers of older adults with mental retardation. Mental Retardation, 26, 203–208.Google ScholarPubMed
Heller, T., & Factor, A. (1991). Permanency planning for adults with mental retardation living with family caregivers. American Journal on Mental Retardation, 96, 163–176.Google ScholarPubMed
Heller, T., & Factor, A. (1994). Facilitating future planning and transitions out of the home. In Seltzer, M.M., Krauss, M.W., & Janicki, M.P. (Eds.), Life course perspectives on adulthood and old age (pp. 39–52. Washington, DC: The American Association on Mental Retardation.Google Scholar
Kaufman, A.V., Adams, J.P., & Campbell, V.A. (1991). Permanency planning by older parents who care for adult children with mental retardation. Mental Retardation, 5, 293–300.Google Scholar
Larkey, L., & Morrill, C. (1995). Organizational commitment as a symbolic process. Western Journal of Communication, 59, 193–213.CrossRefGoogle Scholar
Lefley, H.P., & Hatfield, A.B. (1999). Helping parental caregivers and mental illness consumers cope with parental aging and loss. Psychiatric Services, 50, 369–375.CrossRefGoogle ScholarPubMed
Merton, R.K. (1990). The focused interview: A manual of problems and procedures. New York: Free Press.Google Scholar
Miles, M.B., & Huberman, A.M. (1994a). Data management and analysis methods. In Denzin, N. & Lincoln, Y.S. (Eds.), Handbook of qualitative research (pp. 228–245). Thousand Oaks, CA: Sage Publications, Inc.Google Scholar
Miles, M.B., & Huberman, A.M. (1994b). Qualitative data analysis: An expanded sourcebook (2nd. ed.). Newbury Park, CA: Sage Publications, Inc.Google Scholar
Moustakas, C.E. (1994). Phenomenological research methods. Thousand Oaks, CA: Sage Publications.CrossRefGoogle Scholar
Pruchno, R.A., & Patrick, H.J. (1999). Effects of formal and familial residential plans for adults with mental retardation on their aging mothers. American Journal on Mental Retardation, 104(1), 38–52.2.0.CO;2>CrossRefGoogle ScholarPubMed
Randall, D.M. (1990). The consequences of organizational commitment: Methodological investigation. Journal of Organizational Behavior, 11, 361–378.CrossRefGoogle Scholar
Sherman, B. (1988). Predictors of the decision to place developmentally disabled family members in residential care. American Journal of Mental Deficiency, 92, 344–351.Google ScholarPubMed
Smith, G.C., Hatfield, A.B., & Miller, D.C. (2000). Planning by older mothers for the future care of offspring with serious mental illness. Psychiatric Services, 51, 1162–%1166.CrossRefGoogle ScholarPubMed
Smith, G.C., & Tobin, S.S. (1993). Practice with older parents of developmentally disabled adults. Clinical Gerontologist, 14(1), 59–77.CrossRefGoogle Scholar
Smith, G.C., Tobin, S.S., & Fullmer, E.M. (1995). Elderly mothers caring at home for offspring with mental retardation: A model of permanency planning. American Journal on Mental Retardation, 99(5), 487–499.Google Scholar
Strauss, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage Publications, Inc.Google Scholar
Tausig, M. (1985). Factors in family decision-making about placement for developmentally disabled individuals. American Journal of Mental Deficiency, 89, 352–361.Google ScholarPubMed