Hostname: page-component-586b7cd67f-r5fsc Total loading time: 0 Render date: 2024-11-22T19:24:18.908Z Has data issue: false hasContentIssue false

Patient and family–centred care for pediatric patients in the emergency department

Published online by Cambridge University Press:  21 May 2015

Kathleen Brown
Affiliation:
Division of Emergency Medicine, Children's National Medical Center, Washington, DC
Sharon E. Mace*
Affiliation:
Cleveland Clinic Lerner College of Medicine, Case Western Reserve University, Cleveland, Ohio
Ann M. Dietrich
Affiliation:
Ohio State University College of Medicine and Public Health, Columbus Children's Hospital, Columbus, Ohio
Stephen Knazik
Affiliation:
Departments of Pediatrics and Emergency Medicine, Wayne State University School of Medicine and the Emergency Department, Children's Hospital of Michigan, Detroit, Mich.
Neil E. Schamban
Affiliation:
Emergency Department, Newark Beth Israel Medical Center, Newark, NJ
*
Department of Emergency Medicine, E19, Cleveland Clinic, 9500 Euclid Ave. Cleveland OH 44195; [email protected]

Abstract

Core share and HTML view are not available for this content. However, as you have access to this content, a full PDF is available via the ‘Save PDF’ action button.

Patient and family–centred care (PFCC) is an approach to health care that recognizes the integral role of the family and encourages mutually beneficial collaboration between the patient, family and health care professionals. Specific to the pediatric population, the literature indicates that the majority of families wish to be present for all aspects of their child's care and be involved in medical decision-making. Families who are provided with PFCC are more satisfied with their care. Integration of these processes is an essential component of quality care. This article reviews the principles of PFCC and their applicability to the pediatric patient in the emergency department; and it discusses a model for integrating PFCC that is modifiable based on existing resources.

Résumé

RÉSUMÉ

Les soins axés sur le patient et la famille (SAPF) constituent une autre façon d'envisager les soins de santé. Ils reconnaissent le rôle intégral de la famille dans les soins de santé et favorisent la collaboration mutuellement bénéfique entre le patient, la famille et les professionnels des soins de santé. En ce qui a trait aux enfants, la littérature indique que la majeure partie des familles désirent être présentes pour tous les soins prodigués à leur enfant et souhaitent prendre part aux décisions médicales. De plus, les familles qui reçoivent des SAPF sont davantage satisfaites de la qualité des soins. L'intégration de ces pratiques est un élément essentiel de la prestation de soins de qualité. Cet article passe en revue les principes des SAPF et leur applicabilité aux enfants dans un service d'urgence. Il présente également un modèle d'intégration des SAPF modifiable en fonction des ressources existantes.

Type
Original Research • Recherche originale
Copyright
Copyright © Canadian Association of Emergency Physicians 2008

References

1. O’Malley, P, Mace, SE, Brown, K. Patient and family-centered care and the role of the emergency physician providing care to a child in the emergency department. Ann Emerg Med 2006; 48:643–5.Google Scholar
2. High, DM. All in the family: extended autonomy and expectations in surrogate health care decision making. Gerontologist 1988;28:4651.Google Scholar
3. Kristensson-Hallstrom, I. Parental participation in pediatric surgical care. AORN J 2000;71:1021–24, 1026–9.Google Scholar
4. Tait, AR, Voepel-Lewis, T, Munro, HM, et al. Parents’ preferences for participation in decisions made regarding their child’s anaesthetic care. Paediatr Anaesth 2001;11:283–90.Google Scholar
5. MacKean, GL, Thurston, WE, Scott, CM. Bridging the divide between families and health professional’s perspectives on family centered care. Health Expect 2005;8:7485.Google Scholar
6. American Academy of Pediatrics on Bioethics. Informed consent, parental permission, and assent in pediatric practice. Pediatrics 1995;95:314–7.Google Scholar
7. Rydman, RJ, Isola, ML, Roberts, RR, et al. Emergency department observation unit versus hospital inpatient care for a chronic asthmatic population: a randomized trial of health status outcome and cost. Med Care 1998;36:599609.Google Scholar
8. Weithorn, LA, Campbell, SB. The competency of children and adolescents to make informed treatment decisions. Child Dev 1982;53:1589–98.Google Scholar
9. Ambuel, B, Rappaport, J. Developmental trends in adolescents’ psychological and legal competence to consent to abortion. Law Hum Behav 1992;16:129–54.Google Scholar
10. American Heart Association. ECC guidelines: pediatric advanced life support major guidelines changes. Circulation 2000;102:1291.Google Scholar
11. Henderson, DP, Knapp, JF. Report of the National Consensus Conference on Family Presence during pediatric cardiopulmonary resuscitation and procedures. Pediatr Emerg Care 2005;21:787–91.Google Scholar
12. Helmer, SD, Smith, RS, Dort, JM, et al. Family presence during trauma resuscitation: a survey of AAST and ENA members. J Trauma 2000;48:1015–24.10.1097/00005373-200006000-00004Google Scholar
13. Beckman, AW, Sloan, BK, Moore, GP, et al. Should parents be present during emergency department procedures on children, and who should make that decision? A survey of emergency physician and nurse attitudes. Acad Emerg Med 2002;9:154–8.10.1197/aemj.9.2.154Google Scholar
14. O’Brien, MM, Creamer, KM, Hill, EE, et al. Tolerance of family presence during pediatric cardiopulmonary resuscitation: a snapshot of military and civilian pediatricians, nurses, and residents. Pediatr Emerg Care 2002;18:409–13.Google Scholar
15. Jarvis, AS. Parental presence during resuscitation: attitudes of staff on a paediatric intensive care unit. Intensive Crit Care Nurs 1998;14:37.Google Scholar
16. Mangurten, J, Scott, SH, Guzzetta, CE, et al. Effects of family presence during resuscitation and invasive procedures in a pediatric emergency department. J Emerg Nurs 2006;32:225–33.Google Scholar
17. Boyd, R, White, S. Does witnessed cardiopulmonary resuscitation alter perceived stress in accident and emergency staff? Eur J Emerg Med 2000;7:51–3.Google Scholar
18. Sacchetti, A, Carraccio, C, Leva, E, et al. Acceptance of family member presence during pediatric resuscitations in the emergency department: effects of personal experience. Pediatr Emerg Care 2000;16:85–7.Google Scholar
19. Bassler, PC. The impact of education on nurses’ beliefs regarding family presence in a resuscitation room. J Nurses Staff Dev 1999;15:126–31.Google Scholar
20. Doyle, CJ, Post, H, Burney, RE, et al. Family participation during resuscitation: an option. Ann Emerg Med 1987;16:673–5.Google Scholar
21. Ragaisis, KM. The psychiatric consultation-liaison nurse and medical family therapy. Clin Nurse Spec 1996;10:50–6.Google Scholar
22. Forster, HP, Schwartz, J, Derenzo, E. Reducing legal risk by practicing patient-centered medicine. Arch Intern Med 2002;162:1217–9.Google Scholar
23. Boie, ET, Moore, GP, Brummet, C, et al. Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents. Ann Emerg Med 1999;34:70–4.Google Scholar
24. Meyers, TA, Eichorn, DJ, Guzetta, CE. Do families want to be present during CPR? A retrospective survey. J Emerg Nurs 1998;24:400–5.Google Scholar
25. Wolfram, RW, Turner, ED, Philput, C. Effects of parental presence during young children’s venipuncture. Pediatr Emerg Care 1997;13:325–8.Google Scholar
26. Bauchner, H, Vinci, R, Bak, S, et al. Parents and procedures: a randomized controlled trial. Pediatrics 1996;98:861–7.Google Scholar
27. Powers, KS, Rubenstein, JS. Family presence during invasive procedures in the pediatric intensive care unit. Arch Pediatr Adolesc Med 1999;153:955–8.Google Scholar
28. Haimi-Cohen, Y, Amir, J, Harel, L, et al. Parental presence during lumbar puncture: anxiety and attitude toward the procedure. Clin Pediatr (Phila) 1996;35:24.Google Scholar
29. Emergency Nurses Association position statements: Family presence at the bedside during invasive procedures and/or resuscitation. J Emerg Nurs 1995;21:26A.Google Scholar
30. Eckle, N, Maclean, SL. Assessment of family centered care policies and practices for pediatric patients in nine US emergency departments. J Emerg Nurs 2001;27:238–45. Available: http://ena.org/about/position/familypresence.asp (assessed 2007Aug 7).10.1067/men.2001.115285Google Scholar
31. National Association of Emergency Medical Technicians. Available: http://naemt.org/EMSC/guidelines.pdf (assessed 2007 Aug 7).Google Scholar
32. King, G, King, S, Rosebaum, P, et al. Family centered caregiving and well-being of parents of children with disabilities: Linking process with outcome. J Pediatr Psychol 1999;24:4153.Google Scholar
33. Barrera, M. Brief clinical report: Procedural pain and anxiety management with mother and siblings as cotherapists. J Pediatr Psychol 2000;25:117–21.Google Scholar
34. Carraccio, CL, Dettmer, KS, DuPont, ML, et al. Family member knowledge of children’s medical problems: The need for universal application of an emergency data set. Pediatrics 1998;102:367–70.Google Scholar
35. Strickland, B. McPherson, M, Weissman, G, et al. Access to the medical home: results of the national survey of children with special health care needs. Pediatrics 2004;113:1485–92.Google Scholar
36. Bradford, KK, Kost, S, Selbst, SM, et al. Family member presence for procedures: the resident’s perspective. Ambul Pediatr 2005;5:294–7.Google Scholar
37. Schwartz, CE, Goulet, JL, Gorski, V, et al. Medical residents’ perceptions of end-of-life care training in a large urban teaching hospital. J Palliat Med 2003;6:3744.Google Scholar
38. Serwint, JR, Rutherford, LE, Hutton, N, et al. “I learned that no death is routine”: description of a death and bereavement seminar for pediatric residents. Acad Med 2002;77:278–84.Google Scholar
39. Barton, SJ. Family centered care when abuse or neglect is suspected. J Soc Pediatr Nurs 2000;5:96–9.Google Scholar
40. Kraman, SS, Hamm, G. Risk management: extreme honesty may be the best policy. Ann Intern Med 1996;131:963–7.Google Scholar