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Research Ethics and Justice: The Case of Finland

Published online by Cambridge University Press:  12 July 2019

Abstract:

This paper explores how Finnish research ethics deals with matters of justice on the levels of practical regulation, political morality, and theoretical studies. The bioethical sets of principles introduced by Tom Beauchamp and James Childress in the United States and Jacob Dahl Rendtorff and Peter Kemp in Europe provide the conceptual background, together with a recently introduced conceptual map of theories of justice and their dimensions. The most striking finding is that the internationally recognized requirement of informed consent for research on humans can be ideologically tricky in a Scandinavian welfare state setting.

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Copyright © Cambridge University Press 2019 

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Footnotes

This section aims to go beyond day-to-day issues in research ethics by considering their background theories and assumptions. The starting point of contributions can be in real-life questions and answers to them, but the main objective is to explore their historical and theoretical bases. For ideas and submissions, contact Tuija Takala at [email protected]

Acknowledgements: The authors thank the Academy of Finland (projects SA 272467 and SA 307467) and the Finnish Cultural Foundation (project Justice and Its Alternatives in a Globalizing World) for their financial support.

References

Notes

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47. Markku Oksanen and Elisa Aaltola.

48. Mika Hämäläinen.

49. Susanne Uusitalo.

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59. See note 11, Rendtorff and Kemp 2000 Vol. 1, at 18.

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61. See note 11, Rendtorff and Kemp 2000 Vol. 1, at 19.

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63. See note 11, Rendtorff and Kemp 2000 Vol. 1, at 22–3.

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132. See note 10, Takala 2009a.

133. See note 10, Takala 2009b.

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135. Häyry M. What do you think of philosophical bioethics? Cambridge Quarterly of Healthcare Ethics 2015;24:139–48.

136. Takala T. Get to the point! Philosophical bioethics and the struggle to remain relevant. Cambridge Quarterly of Healthcare Ethics 2015;24:149–53.

137. See note 11, Häyry, Takala 2005.

138. Takala T, Häyry M. Benefiting from past wrongdoing, human embryonic stem cell lines, and the fragility of the German legal position. Bioethics 2007;21:150–9.

139. Takala T. Setting a dangerous precedent? Ethical issues in human genetic database research. Medical Law International 2007;8:105–37.