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Health Ideologies, Objectivism, and the Common Good: On the Rights of Dissidents
Published online by Cambridge University Press: 16 August 2011
Extract
With the development of large-scale health registries and human biobanks to be used as research infrastructures, bioethicists, lawyers, philosophers, and social scientists have worked intensely to cast light on current challenges to the principle of informed consent.
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- Special Section: From Informed Consent to No Consent?
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- Copyright © Cambridge University Press 2011
References
1. Sekretariatet for Nasjonalt helseregisterprosjekt. Gode helseregistre—bedre helse. Oslo: Folke-helseinstituttet; 2010.
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3. See note 2, Sekretariatet for Nasjonalt helseregisterprosjekt 2010:14.
4. See note 1, Sekretariatet for Nasjonalt helseregisterprosjekt 2010:3.
5. See note 1, Sekretariatet for Nasjonalt helseregisterprosjekt 2010.
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12. See note 7, Beauchamp, Childress 2009:221. Original emphasis.
13. See note 7, Beauchamp, Childress 2009:222.
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17. To my surprise, in one of these projects sensitive health data on children were included and published even when the parents refused to give consent. In fact, refusal to give consent was used as an explanatory variable for mental health problems. Stormark, KM, Heiervang, E, Heimann, M, Lundervold, A, Gillberg, C.Predicting nonresponse bias from teacher ratings of mental health problems in primary school children. Journal of Abnormal Child Psychology 2008;36:411–9.CrossRefGoogle ScholarPubMed
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