No CrossRef data available.
Article contents
Genethics: “Planned Parenthood”
Published online by Cambridge University Press: 03 August 2009
Extract
This case is another in a series intended to highlight the new questions emerging from advances in mapping the human genome and the application of genetic findings to clinical practice. The National Human Genome Research Institute, a component of the National Institutes of Health, by law is directed to designate a portion of its annual budget to furthering understanding of the ethical, legal, and social questions emerging from research on the human genome. As part of the effort, the Institute supports research by scientists and scholars around the nation with the aim of clarifying and resolving the tough ethical and research choices facing this endeavor. But recently it has launched an intramural program, which is expected to take a catalytic role in grappling with the array of issues the researchers face in carrying out investigations in human genetics.
- Type
- Departments and Columns
- Information
- Copyright
- Copyright © Cambridge University Press 1997
References
Notes
* There is no connection between the research or clinical work mentioned in this case and the National Institutes of Health or Georgetown University.
1. Clark, RD, Fletcher, JC, Petersen, G. Conceiving a child for bone marrow donation: an ethical problem in prenatal diagnosis. Prenatal Diagnosis 1989;9:329–34.CrossRefGoogle ScholarPubMed
2. Auerbach, AD. Umbilical cord blood transplants for genetic disease: diagnostic and ethical issues in fetal studies. Blood Cells 1994;20:303–9.Google ScholarPubMed
3. See note 1. Clark, , Fletcher, , Petersen, . 1989: 332–3.Google Scholar
4. U.S. Congress, Office of Technology Assessment. Background paper: public perceptions of biotechnology. New Developments in Biotechnology. Washington, D.C.: U.S. Government Printing Office 1987. OTA,-BP-BA-45.Google ScholarPubMed
5. President's Commission for the Study of Ethical Problems in Medicine and Biomedical Research. Screening and Counseling for Genetic Conditions. Washington, D.C.: U.S. Government Printing Office, 1983:75–81.Google ScholarPubMed
6. See note 1. Clark, , Fletcher, , Petersen, . 1989:332–3.Google Scholar
7. Alby, N. The child conceived to give life. Bone Marrow Transplantation: Proceedings of the Symposium on Fetal and Neonatal Cell Transplantation and Retroviral Gene Therapy 1992;9(Suppl 1): 95–6.Google Scholar
8. Lo, PC. Treating Persons as Ends: An Essay on Kant's Moral Philosophy. Lanham, New York: University Press of America, 1987.Google Scholar
9. Korsgaard, CM. Kant's formula of humanity. Kant-Studien 1986;77(2):183–202.CrossRefGoogle Scholar
10. Curran, WJ. A problem of consent: kidney transplantation in minors. New York University Law Review 1959;34:891–905.Google Scholar
11. Holtug, N. Human gene therapy: down the slippery slope? Bioethics 1993;7:402–19.CrossRefGoogle Scholar
12. Gardner, W. Can human genetic enhancement be prohibited? Journal of Medicine and Philosophy 1995;20:65–84.CrossRefGoogle ScholarPubMed
13. We owe this point to Dr. Marian Secundy.
14. International Huntington Association and the World Federation of Neurology. Ethical issues policy statement on Huntington's disease molecular genetics predictive test. Journal of Medical Genetics 1990;27:34–8.CrossRefGoogle ScholarPubMed
15. UK Clinical Genetics Society. The genetic testing of children. Journal of Medical Genetics 1994;31:785–97;Google ScholarPubMedWertz, DC, Fanos, JH, Reilly, PM. Genetic testing for children and adolescents: who decides? JAMA 1994;272:875–81.CrossRefGoogle ScholarPubMed
16. Markel, D. Prenatal and childhood testing for adult-onset genetic disorders. Perspectives in Genetic Counseling 1994/1995;16(4):1,6.Google Scholar
17. Wertz, DC, Fletcher, JC. Fatal knowledge: prenatal diagnosis and sex selection. Hastings Center Report 1989;19(3):21–27.CrossRefGoogle ScholarPubMed
18. Thomasma, DC. Beyond medical paternalism and patient autonomy: a model of physician conscience for the physician-patient relationship. Annals of Internal Medicine 1983;98:243–8.CrossRefGoogle ScholarPubMed