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Four Themes in Recent Swedish Bioethics Debates
Published online by Cambridge University Press: 20 May 2011
Extract
A wide variety of bioethical themes have recently been debated and researched in Sweden, including genetic screening, HPV vaccination strategies, end-of-life care, injustices and priority setting in healthcare, dual-use research, and the never-ending story of scientific fraud. Also, there are some new events related to Swedish biobanking that might be of general interest. Here we will concentrate on four themes: end-of-life care, dual-use research, scientific fraud, and biobanking.
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- Special Section: Bioethics beyond Borders 2011
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- Copyright © Cambridge University Press 2011
References
1. See, e.g., the debate contributions gathered by Läkartidningen, journal of the Swedish Medical Association; available at http://www.lakartidningen.se/07engine.php?articleId=11190 (last accessed 20 Nov 2010) and http://www.lakartidningen.se/07engine.php?articleId=11610 (last accessed 20 Nov 2010).
2. See note 1, the second link.
3. Ohlin, E, Lövtrup, M. Astrid Lindgren-fallet: Läkaren åtalad för dråp [The Astrid Lindgren case: The physician charged for manslaughter]. Läkartidningen 2010;107(6):317.Google Scholar
4. Tarschys, D. Återhållsamhet kan skapa onödigt lidande [Restraint might cause unnecessary suffering]. Svenska Dagbladet 2009 Mar 15Google Scholar; Hammarlund, C-O. Den juridiska processen gör alla inblandade till offer [The legal process makes everyone involved a victim]. Läkartidningen 2009;106(11):728.Google Scholar
5. Forty-five intensive-care physicians. Avbruten behandling är inte dödshjälp [Withdrawal of treatment is not euthanasia]. Svenska Dagbladet 2009 Mar 10Google Scholar; Gunnarsdotter, S. För en person som är döende finns ingen anledning att snåla in på smärtlindring [There is no reason to be mean with painkillers for a dying person]. Läkartidningen 2009;106(12):866–7.Google Scholar
6. Haverdahl, A-L. Kvinna ber om hjälp att få dö [Woman asks for help to die]. Svenska Dagbladet 2010 Mar 18.Google Scholar
7. See note 6, Haverdahl 2010.
8. Haverdahl, A-L. Svårt sjuka får mer makt över sin död [The severely ill get more power over their death]. Svenska Dagbladet 2010 Apr 26.Google Scholar
9. Engström, I. När får man avbryta livsuppehållande behandling? [When is it allowed to withdraw life support treatment?] Läkartidningen 2010;107(12):808.Google Scholar
10. Lindblad, A, Löfmark, R, Lynöe, N. Would physician-assisted suicide jeopardize trust in the medical services? An empirical study of attitudes among the general public in Sweden. Scandinavian Journal of Public Health 2009;37(3):260–4CrossRefGoogle ScholarPubMed; Lindblad, A, Löfmark, R, Lynöe, N. Physician-assisted suicide: A survey of attitudes among Swedish physicians. Scandinavian Journal of Public Health 2008;36(7):720–7CrossRefGoogle ScholarPubMed; Lindblad, A, Juth, N, Fürst, CJ, Lynöe, N. Continuous deep sedation, physician-assisted suicide, and euthanasia in Huntington’s disorder. International Journal of Palliative Nursing 2010;16(11):527–33CrossRefGoogle ScholarPubMed; Lindblad, A, Juth, N, Fürst, CJ, Lynöe, N. When enough is enough; terminating life-sustaining treatment at the patient’s request: a survey of attitudes among Swedish physicians and the general public. Journal of Medical Ethics 2010;36(5):284–9CrossRefGoogle ScholarPubMed; Cohen, J, Bilsen, J, Fischer, S, Löfmark, R, Norup, M, van der Heide, A, et al. . End-of-life decision-making in Belgium, Denmark, Sweden and Switzerland: Does place of death make a difference? Journal of Epidemiology and Community Health 2007;61(12):1062–8CrossRefGoogle Scholar; Cohen, J, van Delden, J, Mortier, F, Löfmark, R, Norup, M, Cartwright, C, et al. . Influence of physicians’ life stances on attitudes to end-of-life decisions and actual end-of-life decision-making in six countries. Journal of Medical Ethics 2008;34(4):247–53CrossRefGoogle ScholarPubMed; see also Hoff, L, Hermerén, G. Information from physicians and retention of information by patients: Obstacles to the awareness of patients of progressing disease when life is near the end. BMC Palliative Care 2008;28(7):2.CrossRefGoogle Scholar
11. See note 10, Lindblad et al. 2009; Lindblad et al. 2008.
12. See note 10, Lindblad et al. 2010 on Huntington’s disease.
13. See note 10, Lindblad et al. 2009; Lindblad et al. 2008.
14. See note 10, Lindblad et al. 2010 on terminating life-sustaining treatment.
15. Swedish Society of Medicine, delegation of ethics. Etiska riktlinjer för palliativ sedering i livets slutskede [Ethical Guidelines for Palliative Sedation at the End of Life], adopted August 24, 2010.
16. Leijonhufvud, M, Lynöe, N. Sederingsterapi som förkortar livet—dråp eller adekvat behandling? [Sedation therapy that shortens life—Homicide or adequate treatment?] Läkartidningen 2010;107(45):2772–3.Google Scholar
17. Juth, N, Lindblad, A, Lynöe, N, Sjöstrand, M, Helgesson, G. European Association for Palliative Care (EAPC) framework for palliative sedation: An ethical discussion. BMC Palliative Care 2010;9(1):20.CrossRefGoogle Scholar
18. The Law on control over products with dual-use and over technical assistance (SFS 2000:1064); the Ordinance on control of products with dual-use and of technical assistance (SFS 2000:1217).
19. Swedish Security Service. Att skydda svensk bioteknik [Protecting Swedish biotech]. Stockholm: Swedish Security Service; 2004. The brochure is available at the Codex Web site: http://www.codex.vr.se (last accessed 20 Nov 2010).
20. World Health Organization. Laboratory Biosecurity Guidance. Geneva: World Health Organization; 2006:iiii.Google Scholar
21. Council of the European Union. Council Joint Action 2008/307/CFSP of 14 April 2008 in support of World Health Organisation activities in the area of laboratory bio-safety and bio-security in the framework of the European Union Strategy against the proliferation of Weapons of Mass Destruction, Official Journal L 106, 16/04/2008 P. 0017–0023.
22. Skeri, N. Spionaget mot forskningen ökar [Espionage on research on the increase]. Uppsala Nya Tidning 11 Nov 2009.Google Scholar
23. European Commission, CORDIS. Getting through ethics review, dual use (FP 7); available at http://cordis.europa.eu/fp7/ethics_en.html (last accessed 20 Nov 2010).
24. Swedish Security Service. Vad är det du exporterar? Och till vem? [What are you exporting? And to whom?] Stockholm: Swedish Security Service; 2010. (The brochure is available at the Codex Web site; see note 19.)
25. Clevestig, P. Handbook of Applied Biosecurity for Life Science Laboratories. Stockholm: SIPRI; 2009.Google Scholar
26. Kuhlau, F, Eriksson, S, Evers, K, Höglund, AT. Taking due care: Moral obligations in dual use research. Bioethics 2008;22:477–87.CrossRefGoogle ScholarPubMed
27. A second article focuses on the precautionary principle and its possible application to research in the life sciences. Kuhlau, F, Höglund, AT, Evers, K, Eriksson, S. A precautionary principle for dual use research in the life sciences. Bioethics 2011;25(1):1–8.CrossRefGoogle ScholarPubMed
28. Forsman, B. Tandlöst förslag mot forskningsfusk [Toothless bill on research misconduct]. Forskning & Framsteg 2009(1); available at http://www.fof.se/tidning/2009/1/tandlost-forslag-mot-forskningsfusk (last accessed 20 Nov 2010).Google Scholar
29. Hermerén, G, Omling, P. Hårdare tag mot fuskande forskare [Tougher times for cheaters]. Svenska Dagbladet 2010 Oct 7.Google Scholar
30. See note 29, Hermerén, Omling 2010.
31. National Board of Health and Welfare. Register; available at http://www.socialstyrelsen.se/register (last accessed 20 Nov 2010).
32. LifeGene homepage; available at https://www.lifegene.se/ (last accessed 20 Nov 2010).
33. Árnason, V. Coding and consent: Moral challenges of the database project in Iceland. Bioethics 2004;18:27–49CrossRefGoogle ScholarPubMed; Caulfield, T. Biobanks and blanket consent: The proper place of the public good and public perception rationales. Kings Law Journal 2007;18:209–26.CrossRefGoogle ScholarElger, B. Consent and use of samples. In: Elger, B, Biller-Andorno, N, Mauron, A, Capron, AM, eds. Ethical Issues in Governing Biobanks. Global Perspectives. Farnham, UK: Ashgate Publishing; 2008:57–88Google Scholar; Hofmann, B. Broadening consent—and diluting ethics? Journal of Medical Ethics 2009;35:125–9.CrossRefGoogle ScholarPubMed
34. Nilstun, T, Hermerén, G. Human tissue samples and ethics—attitudes of the general public in Sweden to biobank research. Medicine, Health Care & Philosophy 2006;9:81–6CrossRefGoogle ScholarPubMed; Melas, PA, Sjöholm, LK, Forsner, T, Edhborg, M, Juth, N, Forsell, Y, Lavebratt, C. Examining the public refusal to consent to DNA biobanking: Empirical data from a Swedish population-based study. Journal of Medical Ethics 2010;36:93–8CrossRefGoogle ScholarPubMed; Johnsson, L, Helgesson, G, Rafnar, T, Chia, K-S, Eriksson, S, Halldorsdottir, I, Hansson, MG. Hypothetical and factual willingness to participate in biobank research. European Journal of Human Genetics 2010;18:1261–4CrossRefGoogle ScholarPubMed; Johnsson, L, Hansson, MG, Eriksson, S, Helgesson, G. Patients’ refusal to consent to storage and use of samples in Swedish biobanks: Cross-sectional study. British Medical Journal 2008;337:a345CrossRefGoogle ScholarPubMed; Helgesson, G, Swartling, U. Views on data use, confidentiality, and consent in a predictive screening involving children. Journal of Medical Ethics 2008;34:206–9CrossRefGoogle Scholar; Hansson, MG, Dillner, J, Bartram, CR, Carlson, JA, Helgesson, G. Should donors be allowed to give broad consent to future biobank research? Lancet Oncology 2006;7(3):266–9CrossRefGoogle ScholarPubMed; Helgesson, G, Dillner, J, Carlson, J, Bartram, CR, Hansson, MG. Ethical framework for previously collected biobank samples. Nature Biotechnology 2007;25:973–6CrossRefGoogle ScholarPubMed; Hansson, MG. Ethics and biobanks. British Journal of Cancer 2009;100:8–12CrossRefGoogle ScholarPubMed; Helgesson, G, Eriksson, S. Does informed consent have an expiry date? A critical reappraisal of informed consent as a process. Cambridge Quarterly of Healthcare Ethics 2011;20(1):85–92CrossRefGoogle Scholar; Hansson, MG. The need to downregulate: A minimal ethical framework for biobank research. Methods of Molecular Biology 2011;675:39–59.CrossRefGoogle ScholarPubMed
35. Hofmann, BM. Bypassing consent for research on biological material. Nature Biotechnology 2008;26(9):979–80CrossRefGoogle ScholarPubMed; cf. Bexelius, C, Hoeyer, K, Lynöe, N. Will forensic use of medical biobanks decrease public trust in healthcare services? Some empirical observations. Scandinavian Journal of Public Health 2007;35:442–4.CrossRefGoogle ScholarPubMed
36. Alskog, A. PKU-biobanken öppnas inte för polisen [The PKU biobank is not opened for the police]. Riksdag & Departement, 2010 Oct 5; available at http://www.rod.se/v%C3%A5rd/pku-biobanken-%C3%B6ppnas-inte-f%C3%B6r-polisen (last accessed 20 Nov 2010).Google Scholar
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