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The Understanding of Death in Terminally Ill Cancer Patients in China: An Initial Study

Published online by Cambridge University Press:  30 May 2018

HAI SHAN HUANG ,
TIE YING ZENG ,
JING MAO  and
XIAO HONG LIU
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Abstract:

Patient’s needs and rights are the key to delivering state-of-the-art modern nursing care. It is especially challenging to provide proper nursing care for patients who are reaching the end of life (EOL). In Chinese culture nursing practice, the perception and expectations of these EOL patients are not well known. This article explores the feelings and wishes of 16 terminally ill Chinese cancer patients who are going through the dying process. An open-ended questionnaire with eight items was used to interview 16 terminally ill Chinese cancer patients, and was then analyzed by a combined approach employing grounded theory and interpretive phenomenological analysis. Four dimensions were explored: first, patient’s attitudes towards death, such as accepting the fact calmly, striving to survive, and the desire for control; second, the care desired during the dying process, including avoiding excessive treatment and dying with dignity; third, the degree of the patient’s acceptance of death; and fourth, the consequences of death. This cognitive study offers a fundamental understanding of perceptions of death of terminally ill cancer patients from the Chinese culture. Their attitude toward death was complex. They did not prefer aggressive treatment and most of them had given a great deal of thought to their death.

Keywords

end-of-lifenursing careChinese culturecancer patientsterminal illnessperceptions of death
Type
Special Section: Bioethics Beyond Borders
Information
Cambridge Quarterly of Healthcare Ethics , Volume 27 , Issue 3 , July 2018 , pp. 421 - 430
Copyright
Copyright © Cambridge University Press 2018 

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References

Notes

1. Teno, JM, Fisher, ES, Hamel, MB, Coppola, K, Dawson, NV. Medical care inconsistent with patients’ treatment goals: association with 1-year Medicare resource use and survival. Journal of the American Geriatrics Society 2002;50(3):496–500.CrossRefGoogle Scholar

2. Haishan, H, Hongjuan, L, Tieying, Z, Xuemei, P. Preference of Chinese general public and healthcare providers for a good death. Nursing Ethics 2015;22(2):217–27.CrossRefGoogle ScholarPubMed

3. Ohnsorge, K, Gudat, H, Rehmann-Sutter, C. The intentions in wishes to die: analysis and a typology –A report of 30 qualitative case studies with terminally ill cancer patients in palliative care. Psycho-oncology 2014;23:1021–6.CrossRefGoogle Scholar

4. See note 2, Haishan et al. 2015.

5. See note 3, Ohnsorge et al. 2014.

6. Eliott JA, Olver IN. Hope and hoping in the talk of dying cancer patients. Social Science & Medicine 2007;64:138–49.

7. Tieying, Z, Haishan, H, Meizhen, Z, Yan, L, Pengqian, F. Health professionals’ attitude towards information disclosure to cancer patients in China. Nursing Ethics 2011;18(3):356–63.CrossRefGoogle Scholar

8. See note 2, Haishan et al. 2015.

9. Woo J, Lo R, Cheng J O, Wong F, Mark B. Quality of end-of-life care for non-cancer patients in a non-acute hospital. Journal of Clinical Nursing 2011;20(13–14):1834–41.

10. Chan WC. Being aware of the prognosis: how does it relate to palliative care patients’ anxiety and communication difficulty with family members in the Hong Kong Chinese context? Journal of Palliative Medicine 2011;14(14):997–1003.

11. See note 2, Haishan et al. 2015.

12. Huang XY, Chang JY, Sun FK, Ma WF. Nursing students’ experiences of their first encounter with death during clinical practice in Taiwan. Journal of Clinical Nursing 2010;19(15–16):2280–90.

13. Mor, V, Laliberte, L, Morris, JN, Wiemann, M. The Karnofsky Performance Status Scale: an examination of its reliability and validity in a research setting. Cancer 1984;53(9):2002–7.3.0.CO;2-W>CrossRefGoogle Scholar

14. See note 9, Woo et al. 2011.

15. See note 10, Chan 2011.

16. Kao CY, Wang HM, Tang SC, Huang KG, Jaing TH, Liu CY, et al. Predictive factors for do-not-resuscitate designation among terminally ill cancer patients receiving care from a palliative care consultation service. Journal of Pain and Symptom Management 2014;47(2):271–82.

17. See note 16, Kao et al 2014.

18. Liu, SM, Lin, HR, Lu, FL, Lee, TY. Taiwanese parents’ experience of making a “do not resuscitate” decision for their child in pediatric intensive care unit. Asian Nursing Research 2014;8(1):29–35.CrossRefGoogle ScholarPubMed

19. Wilson E, Morbey H, Brown J, Payne S, Seale C, Seymour J. Administering anticipatory medications in end-of-life care: a qualitative study of nursing practice in the community and in nursing homes. Palliative Medicine 2015;29(1):60–70.

20. Bahar Z, Beşer A, Ersin F, Kıssal A, Aydoğdu NG. Traditional and religious death practices in western turkey. Asian Nursing Research 2012;6(3):107–14.

21. Wong, MS, Chan, SW. The experiences of Chinese family members of terminally ill patients–a qualitative study. Journal of Clinical Nursing 2007;16(12):2357–64.

22. See note 18, Liu et al. 2014.

23. Vahidi, M, Mahdavi, N, Asghari, E, Ebrahimi, H, Eivazi Ziaei, J, Hosseinzadeh, M, et al. Other side of breast cancer: factors associated with caregiver burden. Asian Nursing Research 2016;10(3):201–6.CrossRefGoogle ScholarPubMed