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The Canadian Question: What's So Great About Intelligence?
Published online by Cambridge University Press: 29 July 2009
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A personable teenager with Down's syndrome became a Canadian cause célèbre a few months ago when University Hospital in Edmonton, Alberta, denied him a position on the organ transplantation waiting list. Terry Urquart lacked “reasonable” intelligence, hospital officials said, a criterion for all transplant candidates at that hospital. Protests by the boy's family, and by groups active in the cause of those with developmental disabilities, became well-photographed stories on the nightly television news and in the nation's newspapers. It did not hurt the Urquart cause one bit that the 17-year-old teenager had won a gold medal in skiing at the International Special Olympics.
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- Canadian Perspective
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- Copyright © Cambridge University Press 1996
References
Notes
1. See, for example, Dawson, C. Supporter rally for teen's transplant. Calgary Herald 1995;03 28:B3;Google ScholarHearts needed. Toronto Star 1995;04 18:A20;Google ScholarPubMedHealth service trying to play God. Calgary Herald 1995;04 13:A6.Google Scholar
2. [Anonymous], Child a human being. Calgary Herald 1995;04 23:A7.Google Scholar
3. Donohue, T. Morally outrageous. Ottawa Citizen 1995;03 22:A12.Google Scholar
4. ]Anonymous[.Transplant rules revised. Edmonton Journal 1995;04 5:B2.Google Scholar
5. Henton, D. Wasted transplants under fire in Alberta. Toronto Start 1995;04 7:A10.Google Scholar
6. Eichler, M. Frankenstein meets Kafka: the Royal Commission on New Reproductive Technologies. In: Basen, G, Eichler, M, Lippman, A, Eds. Misconceptions: The Social Construction of Choice and the New Reproductive and Genetic Technologies, Vol I. Prescott, Canada: Voyageur Publishing, 1994:Chap 12.Google Scholar
7. See note 6. Basen, , Eichler, , Lippman, , Eds. 1994.Google Scholar
8. For a review of the impact of these cases, see Lantons, J. Baby Doe five years later: implications for child health. New England Journal of Medicine 1987;317:444–7;CrossRefGoogle ScholarYork, GY, Ballarno, RM, York, RO. Baby Doe regulations and medical judgment. Social Science and Medicine 1990;30:657–64.CrossRefGoogle ScholarPubMed
9. Van Leeuwen, E, Kimsma, GK. Acting or letting go: medical decision making in neonatology in The Netherlands. Cambridge Quarterly of Healthcare Ethics 1993;2:265–9.CrossRefGoogle ScholarPubMed
10. Senate of Canada On Life and Death: Report of the Special Senate Committee on Euthanasia and Assisted Suicide. Ottawa, Canada: Senate of Canada, 1995.Google ScholarPubMed
11. See, for example, Varda Burstyn's report on genetics, NRT, and the view of German historians. Burstyn V. Breeding discontent. Saturday Night Magazine 1993;15/16:62–7.Google Scholar
12. Oliver Sacks' work on the capabilities of those neurologically damaged is central to these questions. See The Man Who Mistook His Wife for a Hat. New York: Summit Books, 1985:Sect 4;Google ScholarPubMedAn Anthropologist on Mars. New York: Knopf, 1995:188–204.Google Scholar
13. After winning the 1994 Nobel prize, Kenzaburo Oe said he was no longer going to write fiction because he had completed his mission: to speak somehow for his severely brain-damaged son, Hikari. For a review of Oe's work, his mission, and his views of the “birth defective,” see Remnick, D. Reading Japan. The New Yorker 1995;02 6:38–43.Google Scholar
14. Goundry, SA. The new reproductive technologies, public policy and the equality rights of women and men with disabilities. In: Basen, G, Eichler, M, Lippman, A. Eds. Misconceptions: The Social Construction of Choice and the New Reproductive and Genetic Technologies. Prescott, Canada: Vouageur Publishing, 1994:158;Google ScholarMessing, K, Oulette, G. A prevention oriented approach to reproductive problems: identifying environmental effects. In: Basen, G, Eichler, M, Lippman, A, Eds. Misconceptions: The Social Construction of Choice and the New Reproductive and Genetic Technologies. Prescott, Canada: Vouageur Publishing, 1994:56–62.Google Scholar
15. Jacquard, A, Moriarty, MM. Trans. In Praise of Difference. New York: Columbia University Press, 1984:169–70. “The goal is, therefore, no longer the Improvement of individuals,' but the preservation of diversity.”Google Scholar
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