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A Systematic Review of the Efficacy of Community-based, Leisure/Social Activity Programmes for People with Traumatic Brain Injury

Published online by Cambridge University Press:  23 February 2015

Robyn Tate*
Affiliation:
John Walsh Centre for Rehabilitation Research, Kolling Institute of Medical Research, Sydney Medical School – Northern, University of Sydney, Sydney, Australia
Donna Wakim
Affiliation:
John Walsh Centre for Rehabilitation Research, Kolling Institute of Medical Research, Sydney Medical School – Northern, University of Sydney, Sydney, Australia
Michelle Genders
Affiliation:
John Walsh Centre for Rehabilitation Research, Kolling Institute of Medical Research, Sydney Medical School – Northern, University of Sydney, Sydney, Australia
*
Address for correspondence: Professor Robyn Tate, John Walsh Centre for Rehabilitation Research, University of Sydney, Level 9, Kolling Institute of Medical Research, St Leonards, NSW 2065, Australia. E-mail: [email protected]
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Abstract

Background: Many people who have a severe traumatic brain injury (TBI) are not able to resume employment and consequently experience profound changes in their lifestyle. They have increased amounts of ’spare time’ yet often find it difficult to engage in meaningful activity. Leisure activities are one way in which meaningful activity can be increased.

Aims: This systematic review has two purposes: first, to identify and evaluate the efficacy of community-based interventions for leisure/social activity after TBI, and second to provide details on the types of intervention.

Method: Systematic searches were conducted of Medline, PsycINFO and PsycBITE to October 2014, as well as hand searches of two occupational therapy journals. Inclusion criteria were as follows: peer reviewed journal articles on adults with TBI who had participated in a trial evaluating a community-based intervention specifically targeting leisure/social activity. All research methodologies using primary studies that provided empirical, quantitative data were considered. Scientific quality of the studies was evaluated using the PEDro Scale for controlled trials and the Risk of Bias in N-of-1 Trials Scale for single-case designs.

Results: Two independent raters screened 196 abstracts, resulting in nine articles that met selection criteria. Data were then independently extracted by the raters. Four of the nine studies used a control condition in their research design (two randomised controlled trials, one controlled but non-randomised study, and one single-case experiment using a changing criterion design). Two of the studies conducted between-group analyses with significant treatment effects for mood and quality of life using active leisure programmes (Tai Chi Qigong and a combined programme of outdoor adventure experiences and goal setting respectively). Intervention programmes identified in the review were then grouped and described according to the approach or model used, including active leisure programmes, social peer mentoring, individual brokered leisure services and a therapeutic recreation model. Additional intervention models and approaches that did not result directly from the systematic review were also described because they provide information on the current approaches used in practice (Clubhouse model and leisure education programmes in the stroke population).

Conclusions: There is some evidence for the effectiveness of community-based interventions for leisure/social activity for people who have had a TBI to improve mood and quality of life. The conclusions of this review are that the interventions for this area need to be planned and specific, structured and goal-driven, intensive and conducted over a period of months.

Type
Systematic Review
Copyright
Copyright © Australasian Society for the Study of Brain Impairment 2015 

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References

Agency for Clinical Innovation. (2013). Investigation of vocational programs and outcomes for people with traumatic brain injury in New South Wales. Sydney, Australia: Brain Injury Rehabilitation Directorate, Agency for Clinical Innovation.Google Scholar
Andelic, N., Bautz-Holter, E., Ronning, P., Olafsen, K., Sigurdardottir, S., Schanke, A., . . . Roe, C. (2012). Does an early onset and continuous chain of rehabilitation improve the long-term functional outcome of patients with severe traumatic brain injury? Journal of Neurotrauma, 19 (1), 6674.CrossRefGoogle Scholar
Anderson, L., Schleien, S.J., McAvoy, L., Lais, G., & Seligmann, D. (1997). Creating positive change through an integrated outdoor adventure program. Therapeutic Recreation Journal, (4th quarter), 217229.Google Scholar
Barlow, D.H., Nock, M.K., & Hersen, M. (2009). Single case experimental designs. Strategies for studying behaviour change (3rd ed.) Boston: Pearson.Google Scholar
Bier, N., Dutil, E., & Couture, M. (2009). Factors affecting leisure participation after a traumatic brain injury: An exploratory study. Journal of Head Trauma Rehabilitation, 24 (3), 187194.CrossRefGoogle ScholarPubMed
*Blake, H., & Batson, M. (2009). Exercise intervention in brain injury: a pilot randomized study of Tai Chi Qigong. Clinical Rehabilitation, 23, 589598.Google Scholar
Bowen, A., Tennant, A., Neumann, V., & Chamberlain, A. (1999). Evaluation of a community-based neuropsychological service for people with traumatic brain injury. NeuroRehabilitation, 13, 147155.Google Scholar
Carbonneau, H., Fontaine, L., & Lussier, M.A. (2006). Programme d’éducation au loisir; approche en petit groupe. i. Sherbrooke, Canada: Centre de recherche sur le vieillissement.Google Scholar
Carbonneau, H., Hélie, C., & Ouellet, G. (1994). Evaluation d’un programme d’éducation au loisir. Etude pilote, Université du Québec à Sherbrooke.Google Scholar
*Carbonneau, H., Martineau, E., Andre, M., & Dawson, D. (2011). Enhancing leisure experiences post traumatic brain injury: A pilot study. Brain Impairment, 12 (2), 140151.Google Scholar
Carlson, P.M., Boudreau, M.L., Davis, J., Johnston, J., Lemsky, C., McColl, M.A., . . . Smith, C. (2006). ‘Participate to learn’: A promising practice for community ABI rehabilitation. Brain Injury, 20 (11), 11111117.Google Scholar
Cicerone, K.D., Mott, T., Azulay, J., & Friel, J.C. (2004). Community integration and satisfaction with functioning after intensive cognitive rehabilitation for traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 86 (6), 943950.Google Scholar
*Davis, P.K., & Chittum, R. (1994). A group-oriented contingency to increase leisure activities of adults with traumatic brain injury. Journal of Applied Behavior Analysis, 27 (3), 553554.Google Scholar
DeKort, A.C., Rulkens, M.P., Ijzerman, M.J., & Maathuis, C.G.B. (2002). The Come Back Programme: A rehabilitation programme for patients with brain injury with psychosocial problems despite previous rehabilitation. International Journal of Rehabilitation Research, 25 (4), 271278.Google Scholar
Desrosiers, J., Noreau, L., Rochette, A., Carbonneau, H., Fontaine, L., Viscoglisoi, C., & Bravo, G. (2007). Effect of a home leisure education program after stroke: A randomized controlled trial. Archives of Physical Medicine and Rehabilitation, 88 (9), 10951100.Google Scholar
Dikmen, S.S., Ross, B.L., Machamer, J.E., & Temkin, N.R. (1995). One year psychosocial outcome in head injury. Journal of the International Neuropsychological Society, 1, 6777.Google Scholar
*Douglas, J.M., Dyson, M., & Foreman, P. (2006). Increasing leisure activity following severe traumatic brain injury: does it make a difference? Brain Impairment, 7 (2), 107118.Google Scholar
Drummond, A.E.R., & Walker, M.F. (1995). A randomized controlled trial of leisure rehabilitation after stroke. Clinical Rehabilitation, 9, 283290.Google Scholar
Drummond, A., & Walker, M. (1996). Generalisation of the effects of leisure rehabilitation for stroke patients. British Journal of Occupational Therapy, 59 (7), 330334.Google Scholar
Evans, L., & Brewis, C. (2008). The efficacy of community-based rehabilitation programmes for adults with TBI. International Journal of Therapy and Rehabilitation, 15 (10), 446458.Google Scholar
*Fines, L., & Nichols, D. (1994). An evaluation of a twelve week recreational kayak program: effects on self-concept, leisure satisfaction and leisure attitude of adults with traumatic brain injuries. Journal of Cognitive Rehabilitation, (September/October), 1016.Google Scholar
Fleming, J., Braithwaite, H., Gustafsson, L., Griffin, J., Collier, A.M., & Fletcher, S. (2011). Participation in leisure activities during brain injury rehabilitation. Brain Injury, 25 (9), 806818.Google Scholar
Fleming, J., Kuipers, P., Foster, M., Smith, S., & Doig, E. (2009). Evaluation of an outpatient, peer group intervention for people with acquired brain injury based on the ICF ‘Environment’ dimension. Disability and Rehabilitation, 31 (20), 16661675.CrossRefGoogle ScholarPubMed
Gast, D.L. (2010). Single subject research methodology in behavioural sciences. New York: Routledge.Google Scholar
Gemmell, C., & Leathem, J.M. (2006). A study investigating the effects of Tai Chi Chuan: individuals with traumatic brain injury compared to controls. Brain Injury, 20 (2), 151156.CrossRefGoogle ScholarPubMed
Graven, C., Brock, K., Hill, K., & Joubert, L. (2011). Are rehabilitation and/or care co-ordination interventions delivered in the community effective in reducing depression, facilitating participation and improving quality of life after stroke? Disability and Rehabilitation, 33 (17–18), 15011520.Google Scholar
Hodges, J.S., Luken, K., & Zook, B. (2001). Recreational therapy can help adult brain injury survivors get back into the community. North Carolina Medical Journal, 62 (6), 360363.Google Scholar
Horner, R.H., Carr, E.G., Halle, J., McGee, G., Odom, S., & Wolery, M. (2005). The use of single-subject research to identify evidence-based practice in special education. Exceptional Children, 71 (2), 165179.Google Scholar
International Brain Injury Clubhouse Alliance. (2008). Retrieved from: http://www.braininjuryclubhouses.net/Google Scholar
Jacobs, H. (1997). The Clubhouse: Addressing work-related behavioral challenges through a supportive social community. Journal of Head Trauma Rehabilitation, 12 (5), 1427.Google Scholar
Johnson, K., & Davis, P.K. (1998). A supported relationships intervention to increase the social integration of persons with traumatic brain injuries. Behavior Modification, 22 (4), 502528.CrossRefGoogle ScholarPubMed
Jongbloed, L., & Morgan, D. (1991). An investigation of involvement in leisure activities after a stroke. American Journal of Occupational Therapy, 45 (5), 420427.Google Scholar
Kazdin, A.E. (2011). Single-case research designs: Methods for clinical and applied settings (2nd ed.). New York, NY: Oxford University Press.Google Scholar
Kratochwill, T.R., Hitchcock, J., Horner, R.H., Levin, J.R., Odom, S.L., Rindskopf, D.M., & Shadish, W.R. (2013). Single-case intervention research design standards. Remedial and Special Education, 34 (1), 2638.Google Scholar
Kreutzer, J.S., Marwitz, J.H., Walker, W., Sander, A., Sherer, M., Bogner, J., . . . Bushnik, T. (2003). Moderating factors in return to work and job stability after traumatic brain injury. Journal of Head Trauma Rehabilitation, 18 (2), 128138.Google Scholar
Kunstler, R., & Sokoloff, S. (1993). Clinical effectiveness of intensive therapeutic recreation: a multiple case study of private practice intervention. Loss, Grief & Care, 6 (4), 2330.CrossRefGoogle Scholar
Lancioni, G.E., Singh, N.N., O’Reilly, M.F., Sigafoos, J., De Pace, C., Chiapparino, C., . . . Spica, A. (2011). Technology-assisted programmes to promote leisure engagement in persons with acquired brain injury and profound multiple disabilities: two case studies. Disability and Rehabilitation: Assistive Technologies, 6 (5), 412419.Google Scholar
Maher, C.G., Sherrington, C., Herbert, R.D., Moseley, A.M., & Elkins, M. (2003). Reliability of the PEDro scale for rating quality of RCTs. Physical Therapy, 83, 713721.Google Scholar
Malec, J.F. (2001). Impact of comprehensive day treatment on societal participation for persons with acquired brain injury. Archives of Physical Medicine and Rehabilitation, 82 (7), 885895.Google Scholar
McCabe, P., Lippert, C., Weiser, M., Hilditch, M., Hartridge, C., Villamere, J., Erabi Group. (2007). Community reintegration following acquired brain injury. Brain Injury, 21 (2), 231257.Google Scholar
McColl, M.A., Carlson, P., Johnston, J., Minnes, P., Shue, K., Davies, D., & Karlovits, T. (1998). The definition of community integration: perspectives of people with brain injuries. Brain Injury, 12 (1), 1530.Google Scholar
*Mitchell, E.J., Veitch, C., & Passey, M. (2014). Efficacy of leisure intervention group in rehabilitation of people with an acquired brain injury. Disability and Rehabilitation, 36 (17), 14741482.Google Scholar
Moher, D., Liberati, A., Tetzlaff, J., Altman, D.G., The PRISMA Group. (2009). Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement. PLoS Medicine, 6 (7), e1000097.Google Scholar
Nour, K., Desrosiers, J., Gauthier, P., & Carbonneau, H. (2002). Impact of a home leisure educational program for older adults who have had a stroke (Home Leisure Educational Program). Therapeutic Recreation Journal, 36 (1), 4864.Google Scholar
Olver, J.H., Ponsford, J.L., & Curran, C.A. (1996). Outcome following traumatic brain injury: a comparison between 2 and 5 years after injury. Brain Injury, 10 (11), 841848.Google Scholar
Parker, C.J., Gladman, J.R., Drummond, A.E., Dewey, M.E., Lincoln, N.B., Barer, D., . . . Radford, K.A. (2001). A multicentre randomized controlled trial of leisure therapy and conventional occupational therapy after stroke. Clinical Rehabilitation, 15 (1), 4252.Google Scholar
Perdices, M., & Tate, R.L. (2009). Single-subject designs as a tool for evidence-based clinical practice: are they are they unrecognised and undervalued? Neuropsychological Rehabilitation, 19, 904927.Google Scholar
Ponsford, J., Harrington, H., Olver, J., & Roper, M. (2006). Evaluation of a community based model of rehabilitation following traumatic brain injury. Neuropsychological Rehabilitation, 16 (3), 315328.Google Scholar
Powell, J., Heslin, J., & Greenwood, R. (2002). Community based rehabilitation after severe traumatic brain injury: a randomised controlled trial. Journal of Neurology, Neurosurgery and Psychiatry, 72, 193202.Google Scholar
Ragheb, M.G., & Griffith, C.A. (1982). The contribution of leisure participation and leisure satisfaction to life satisfaction of older persons. Journal of Leisure Research, 14 (4), 295306.Google Scholar
Sander, A.M., Kreutzer, J.S., Rosenthal, M., Delmonico, R., & Young, M.E. (1996). A multicenter longitudinal investigation of return to work and community integration following traumatic brain injury. Journal of Head Trauma Rehabilitation, 11 (5), 7084.Google Scholar
Shatil, S., Ivanova, T.D., Mochizuki, G., & Garland, S.J. (2005). Effects of therapeutic golf rehabilitation on golf performance, balance, and quality of life in individuals following stroke: pilot study. Physiotherapy Canada, 57, 101112.Google Scholar
Sloan, S., Winkler, D., & Callaway, L. (2004). Community integration following severe traumatic brain injury: Outcomes and best practice. Brain Impairment, 5 (1), 1229.CrossRefGoogle Scholar
*Struchen, M.A., Davis, L.C., Bogaards, J.A., Hudler-Hall, T., Clark, A.N., Mazzei, D.M. . . . Caroselli, J.S. (2011). Making connections after brain injury: development and evaluation of social peer-mentoring program for persons with traumatic brain injury. Journal of Head Trauma Rehabilitation, 26 (1), 419.Google Scholar
Tate, R.L., Aird, V., & Taylor, C. (2012). Bringing single-case methodology into the clinic to enhance evidence-based practices. Brain Impairment, 13 (3), 347359.Google Scholar
Tate, R.L., Harris, R D., Cameron, I.D., Myles, B.M., Winstanley, J.B., & Hodgkinson, A.E. (2006). Recovery of impairments after severe traumatic brain injury: findings from a prospective, multicentre study. Brain Impairment, 7 (1), 115.Google Scholar
Tate, R.L., & Perdices, M. (2015). Single-subject designs. In Hamond, F.M., Malec, J.F. & Todd, N. (Eds.), Handbook for clinical research. Design, statistics, and implementation (pp. 1317). New York: demosMEDICAL.Google Scholar
Tate, R.L., Perdices, M., McDonald, S., Togher, L., Moseley, A., Winders, K., . . . Smith, K. (2004). Development of a database of rehabilitation therapies for the psychological consequences of acquired brain impairment. Neuropsychological Rehabilitation, 15 (5), 517534.Google Scholar
Tate, R.L., Perdices, M., Rosenkoetter, U., Wakim, D., Godbee, K., Togher, L., & McDonald, S. (2013). Revision of a method quality rating scale for single-case experimental designs and n-of-1 trials: The 15-item Risk of Bias in N-of-1 Trials (RoBiNT) Scale. Neuropsychological Rehabilitation, 23 (5), 619638.CrossRefGoogle ScholarPubMed
Tate, R.L., Strettles, B., & Osoteo, T. (2003). Enhancing outcomes after traumatic brain injury: A social rehabilitation approach. In Wilson, B.A. (Ed.), Neuropsychological rehabilitation: Theory and practice (pp. 137169). Lisse: Sets and Zietlinger.Google Scholar
*Thomas, M. (2004). The potential unlimited programme: an outdoor experiential education and group work approach that facilitates adjustment to brain injury. Brain Injury, 18 (12), 12711286.Google Scholar
Tsaousides, T., Ashman, T.A., & Gordon, W.A. (2013). Diagnosis and treatment of depression following traumatic brain injury. Brain Impairment, 14 (1), 6376.Google Scholar
*Walker, A.J., Onus, M., Doyle, M., Clare, J., & McCarthy, K. (2005). Cognitive rehabilitation after severe traumatic brain injury: A pilot programme of goal planning and outdoor adventure course participation. Brain Injury, 19 (14), 12371241.Google Scholar
Wilson, B.A., Gracey, F., Malley, D., Bateman, A., & Evans, J.J. (2009). The Oliver Zangwill Centre approach to neuropsychological rehabilitation. In Wilson, B.A., Gracey, F., Evans, J.J. & Bateman, A. (Eds.), Neuropsychological rehabilitation. Theory, models, therapy and outcome (pp. 4767). Cambridge: Cambridge University Press.Google Scholar
Winkler, D., Unsworth, C., & Sloan, S. (2005). Time use following a severe traumatic brain injury. Journal of Occupational Science, 12 (2), 6981.Google Scholar
Wise, E.K., Mathews-Dalton, C., Dikmen, S., Temkin, N., Machamer, J., Bell, K., & Powell, J.M. (2010). Impact of traumatic brain injury on participation in leisure activities. Archives of Physical Medicine and Rehabilitation, 91 (9), 13571362.Google Scholar