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Acceptability and willingness to participate in the Tailored Activity Program: perceptions of people living with dementia, their care partners and health professionals

Published online by Cambridge University Press:  28 October 2020

Sally Bennett Open the ORCID record for Sally Bennett [Opens in a new window] ,
Catherine Travers Open the ORCID record for Catherine Travers [Opens in a new window] ,
Jacki Liddle Open the ORCID record for Jacki Liddle [Opens in a new window] ,
Sandra Smith ,
Lindy Clemson ,
Maria O’Reilly Open the ORCID record for Maria O’Reilly [Opens in a new window] ,
Michelle Allen ,
Kate Laver ,
Elizabeth Beattie  and
Lee-Fay Low
...Show all authors
Sally Bennett*
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Catherine Travers
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Jacki Liddle
Affiliation:
ARC Centre of Excellence for the Dynamics of Language, School of Information Technology and Electrical Engineering, The University of Queensland, Brisbane, Australia
Sandra Smith
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Lindy Clemson
Affiliation:
Faculty of Health Sciences, The University of Sydney, Sydney, Australia
Maria O’Reilly
Affiliation:
School of Health, Medical and Applied Sciences, CQUniversity, Bundaberg, Australia
Michelle Allen
Affiliation:
Qualitative Research Consultancy, Brisbane, Australia
Kate Laver
Affiliation:
Department of Rehabilitation Aged & Extended Care, Flinders University, Adelaide, Australia
Elizabeth Beattie
Affiliation:
School of Nursing, Queensland University of Technology, Brisbane, Australia
Lee-Fay Low
Affiliation:
Faculty of Medicine and Health, The University of Sydney, Sydney, Australia
Claire O’Connor
Affiliation:
Centre for Positive Ageing, HammondCare, Sydney, Australia School of Public Health and Community Medicine, University of New South Wales, Sydney, Australia
Laura N. Gitlin
Affiliation:
College of Nursing and Health Professions, Drexel University, Philadelphia, USA
*
*Corresponding author. Email: [email protected]
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Abstract

Objectives:

The Tailored Activity Program (TAP) is an evidence-based occupational therapist-led intervention for people living with dementia and their care partners at home, developed in the USA. This study sought to understand its acceptability to people living with dementia, their care partners, and health professionals, and factors that might influence willingness to participate prior to its implementation in Australia.

Methods:

This study used qualitative descriptive methods. Semi-structured interviews were conducted with people living with dementia in the community (n = 4), their care partners (n = 13), and health professionals (n = 12). People living with dementia were asked about health professionals coming to their home to help them engage in activities they enjoy, whereas care partners’ and health professionals’ perspectives of TAP were sought, after it was described to them. Interviews were conducted face-to-face or via telephone. All interviews were recorded and transcribed. Framework analysis was used to identify key themes.

Results:

Analysis identified four key themes labelled: (i) TAP sounds like a good idea; (ii) the importance of enjoyable activities; (iii) benefits for care partners; and (iv) weighing things up. Findings suggest the broad, conditional acceptability of TAP from care partners and health professionals, who also recognised challenges to its use. People living with dementia expressed willingness to receive help to continue engaging in enjoyable activities, if offered.

Discussion:

While TAP appeared generally acceptable, a number of barriers were identified that must be considered prior to, and during its implementation. This study may inform implementation of non-pharmacological interventions more broadly.

Keywords

Dementiaimplementationoccupational therapyqualitative
Type
Articles
Information
Brain Impairment , Volume 21 , Special Issue 3: Knowledge translation and dementia care , December 2020 , pp. 259 - 273
Copyright
© Australasian Society for the Study of Brain Impairment 2020

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