Hostname: page-component-78c5997874-g7gxr Total loading time: 0 Render date: 2024-11-19T10:44:53.817Z Has data issue: false hasContentIssue false

The Residential Status of Working Age Adults Following Severe Traumatic Brain Injury

Published online by Cambridge University Press:  17 April 2018

Sandra Braaf*
Affiliation:
Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria, Australia
Ben Beck
Affiliation:
Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria, Australia
Libby Callaway
Affiliation:
Department of Occupational Therapy, Monash University, Frankston, Victoria, Australia
Jennie Ponsford
Affiliation:
School of Psychological Sciences, Monash University, Melbourne, Victoria, Australia Monash-Epworth Rehabilitation Research Centre, Melbourne, Victoria, Australia
Belinda J. Gabbe
Affiliation:
Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria, Australia
*
Address for correspondence: Dr. Sandra Braaf, Department of Epidemiology and Preventive Medicine, Faculty of Medicine, Nursing and Health Sciences, Monash University, 553 St Kilda Road, Melbourne, VIC 3004, Australia. E-mail: [email protected]
Get access

Abstract

Objective: To describe place of residence and examine factors associated with place of residence following severe traumatic brain injury (TBI) in working age adults.

Setting, participants, design: Retrospective cohort study (1 January 2007 to 31 December 2013) of adults (16–64 years) with severe TBI who survived to hospital discharge in Victoria, Australia.

Main measures: Place of residence (dichotomised as ‘private residence’ and ‘other destination’) at 6, 12 and 24 months post injury. A modified Poisson model was fitted with a random effect for the participant.

Results: There were 684 cases that were followed-up at one or more time points. At 24 months post injury, 87% (n = 537) adults with TBI were living at a private residence, of whom 66% did not require additional support. Cases were more likely to be living at a private residence at 24 months post injury compared to 6 months (adjusted relative risk = 1.08, 95% Confidence Interval, 1.04–1.11, p < .001). At 24 months post injury, 5% (n = 29) remained in rehabilitation and 4% (n = 23) lived in a nursing home.

Conclusion: While the majority of cases were living at a private residence at 2 years post injury, 13% were residing in rehabilitation, a nursing home or other supported living. Longer follow-up is needed to understand if a transition to a private residence is possible for these groups.

Type
Articles
Copyright
Copyright © Australasian Society for the Study of Brain Impairment 2018 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Andelic, N., Anke, A., Skandsen, T., Sigurdardottir, S., Sandhaug, M., Ader, T., & Roe, C. (2012). Incidence of hospital-admitted severe traumatic brain injury and in-hospital fatality in Norway: A national cohort study. Neuroepidemiology, 38 (4), 259267.Google Scholar
Association for the Advancement of Automotive Medicine. (2008). The abbreviated injury scale 2005, update 2008. Des Plaines, Illinois: AAAM.Google Scholar
Australian Bureau of Statistics. (2015). Population by age and sex, regions of Australia, 2015, 3235.0. Retrieved from http://www.abs.gov.au/AUSSTATS/[email protected]/Previousproducts/3235.0Main%20Features202015?opendocument&tabname=Summary&prodno=3235.0&issue=2015&num=&view=Google Scholar
Australian Institute of Health and Welfare (AIHW). (2014). Australia's health 2014. Canberra, Australia: AIHW.Google Scholar
Baker, A., Barker, S., Sampson, A., & Martin, C. (2016). Caregiver outcomes and interventions: A systematic scoping review of the traumatic brain injury and spinal cord injury literature. Clinical Rehabilitation, 31 (1), 4560. doi:10.1177/0269215516639357.Google Scholar
Baker, S., O'Neill, B., Haddon, W., & Long, W. (1974). The injury severity score: A method for describing patients with multiple injuries and evaluating emergency care. The Journal of Trauma, 14 (3), 187196.Google Scholar
Beck, B., Bray, J., Cameron, P., Cooper, J., & Gabbe, B. (2016). Trends in severe traumatic brain injury in Victoria, 2006–2014. The Medical Journal of Australia, 204 (11). doi: 10.5694/mja15.01369.Google Scholar
Beer, A., & Faulkner, D. (2009). The housing careers of people with a disability and carers of people with a disability, AHURI Reseach Paper. Retrieved from https://www.ahuri.edu.au/research/research-papers/the-housing-careers-of-people-with-a-disability-and-carers-of-people-with-a-disabilityGoogle Scholar
Brzuzy, S., & Corrigan, J.D. (1996). Predictors of living independently after moderate to severe traumatic brain injury: A comparison study. Journal of Head Trauma Rehabilitation, 11 (3), 7483.Google Scholar
Cameron, P.A., Gabbe, B.J., McNeil, J.J., Finch, C.F., Smith, K.L., Cooper, D.J., . . . Kossmann, T. (2005). The trauma registry as a statewide quality improvement tool. The Journal of Trauma, 59 (6), 14691476.Google Scholar
Chan, L., Doctor, J., Temkin, N., MacLehose, R.F., Esselman, P., Bell, K., & Dikmen, S. (2001). Discharge disposition from acute care after traumatic brain injury: The effect of insurance type. Archives of Physical Medicine and Rehabilitation, 82 (9), 11511154. Retrieved from https://doi.org/10.1053/apmr.2001.24892.Google Scholar
Charlson, M.E., Pompei, P., Ales, K.L., & MacKenzie, C.R. (1987). A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation. Journal of Chronic Diseases, 40 (5), 373383. Retrieved from https://doi.org/10.1016/0021-9681(87)90171-8.Google Scholar
Chen, A.Y., Zagorski, B., Parsons, D., Vander Laan, R., Chan, V., & Colantonio, A. (2012). Factors associated with discharge destination from acute care after acquired brain injury in Ontario, Canada. BMC Neurology, 12 (1), 19. doi:10.1186/1471-2377-12-16.Google Scholar
Cutchin, M.P., Owen, S.V., & Chang, P.-F. J. (2003). Becoming “at Home” in assisted living residences: Exploring place integration processes. The Journals of Gerontology: Series B, 58 (4), S234S243. doi:10.1093/geronb/58.4.S234.Google Scholar
Cuthbert, J.P., Corrigan, J.D., Harrison-Felix, C., Coronado, V., Dijkers, M.P., Heinemann, A.W., & Whiteneck, G.G. (2011). Factors that predict acute hospitalization discharge disposition for adults with moderate to severe traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 92 (5), 721730.e3. Retrieved from https://doi.org/10.1016/j.apmr.2010.12.023.Google Scholar
Degeneffe, C.E. (2001). Family caregiving and traumatic brain injury. Health and Social Work, 26, 257268.Google Scholar
Department of Health and Aged Care, Information and Research Branch. (2001). Measuring remoteness: Accessibility/remoteness index of Australia (ARIA). Canberra, Australia: Department of Health and Aged Care.Google Scholar
Eum, R.S., Brown, A.W., Watanabe, T.K., Zasler, N.D., Goldstein, R., Seel, R.T., . . . Glenn, M.B. (2016). Risk factors for institutionalization after traumatic brain injury inpatient rehabilitation. Journal of Head Trauma Rehabilitation, 32 (3), 158167. doi:10.1097/htr.0000000000000246.Google Scholar
Eum, R.S., Seel, R.T., Goldstein, R., Brown, A.W., Watanabe, T.K., Zasler, N.D., . . . Glenn, M.B. (2014). Predicting institutionalization after traumatic brain injury inpatient rehabilitation. Journal of Neurotrauma, 32 (4), 280286. doi:10.1089/neu.2014.3351.Google Scholar
Gabbe, B.J., Simpson, P.M., Sutherland, A.M., Wolfe, R., Fitzgerald, M., Judson, R., & Cameron, P.A. (2012). Improved functional outcomes for major trauma patients in a regionalised, inclusive trauma system. Annals of Surgery, 255 (6), 10091015. doi:10.1097/SLA.0b013e31824c4b91.Google Scholar
Gabbe, B.J., Sutherland, A.M., Hart, M.J., & Cameron, P.A. (2010). Population-based capture of long-term functional and quality of life outcomes after major trauma - The experiences of the Victorian State Trauma Registry. Journal of Trauma, 69 (3), 532536.Google Scholar
Grauwmeijer, E., Heijenbrok-Kal, M.H., Haitsma, I.K., & Ribbers, G.M. (2012). A prospective study on employment outcome 3 years after moderate to severe traumatic brain injury. Archives of Physical Medicine & Rehabilitation, 93 (6), 993999. doi:10.1016/j.apmr.2012.01.018.Google Scholar
Grote, S., Bocker, W., Mutschler, W., Bouillon, B., & Lefering, R. (2011). Diagnostic value of the Glasgow coma scale for traumatic brain injury in 18,002 patients with severe multiple injuries. Journal of Neurotrauma, 28 (4), 527534. doi:10.1089/neu.2010.1433.Google Scholar
Harrison, A., Hunter, E., Thomas, H., Bordy, P., Stokes, E., & Kitzman, P. (2016). Living with traumatic brain injury in a rural setting: Supports and barriers across the continuum of care. Disability and Rehabilitation, 39, 20712080. doi:10.1080/09638288.2016.1217081.Google Scholar
Heinemann, A.W., Sokol, K., Garvin, L., & Bode, R.K. (2002). Measuring unmet needs and services among persons with traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 83 (8), 10521059. https://doi.org/10.1053/apmr.2002.34283.Google Scholar
Johnstone, B., Mount, D., & Schopp, L.H. (2003). Financial and vocational outcomes 1 year after traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 84 (2), 238241. https://doi.org/10.1053/apmr.2003.50097.Google Scholar
Kim, H., Colantonio, A., Deber, R., & Vernich, L. (2006). Discharge destination from acute care after traumatic brain injury. Canadian Journal of Neurological Sciences, 33 (1), 4852. doi:10.1017/S0317167100004686.Google Scholar
Kimmel, L.A., Holland, A.E., Lannin, N., Edwards, E.R., Page, R.S., Bucknill, A., . . . Gabbe, B.J. (2017). Clinicians’ perceptions of decision making regarding discharge from public hospitals to in-patient rehabilitation following trauma. Australian Health Review, 41 (2), 192200.Google Scholar
McIntyre, D., Fleming, J., Foster, M., & Tweedy, S. (2017). Experiences of adults with high-care needs and their family members with housing and support pathways in Australia. Disability and Rehabilitation, 39 (18), 18291839. doi:10.1080/09638288.2016.1212108.Google Scholar
Metcalfe, A. (2006). ‘It was the right time to do it’: Moving house, the life-course and kairos. Mobilities, 1 (2), 243260. doi:10.1080/17450100600726621.Google Scholar
Nalder, E., Fleming, J., Foster, M., Cornwell, P., Shields, C., & Khan, A. (2012). Identifying factors associated with perceived success in the transition from hospital to home after brain injury. Journal of Head Trauma Rehabilitation, 27 (2), 143153.Google Scholar
National Disability Insurance Scheme. (2016). Reasonable and necessary supports. Retrieved from http://www.ndis.gov.au/participants/reasonable-and-necessary-supports.Google Scholar
Penna, S., Novack, T. A., Carlson, N., Grote, M., Corrigan, J. D., & Hart, T. (2010). Residence following traumatic brain injury: A longitudinal study. Journal of Head Trauma Rehabilitation, 25 (1), 5260.Google Scholar
Productivity Commission. (2011). Disability care and support. Canberra: Productivity Commission.Google Scholar
Sloan, S., Callaway, L., Winkler, D., McKinley, K., Ziino, C., & Anson, K. (2009). Changes in care and support needs following community-based intervention for individuals with acquired brain injury. Brain Impairment, 10 (3), 295306.Google Scholar
Solovieva, T.I., & Walls, R.T. (2014). Barriers to traumatic brain injury services and supports in rural setting. Journal of Rehabilitation, 80 (4), 1018.Google Scholar
Sveen, U., Ostensjo, S., Laxe, S., & Soberg, H. L. (2013). Problems in functioning after a mild traumatic brain injury within the ICF framework: The patient perspective using focus groups. Disability and Rehabilitation, 35 (9), 749757.Google Scholar
Tam, S., McKay, A., Sloan, S., & Ponsford, J. (2015). The experience of challenging behaviours following severe TBI: A family perspective. Brain Injury, 29 (7–8), 813821. doi:10.3109/02699052.2015.1005134.Google Scholar
Teasdale, G., & Jennett, B. (1974). Assessment of coma and impaired consciousness: A practical scale. The Lancet, 304 (7872), 8184. Retrieved from https://doi.org/10.1016/S0140-6736(74)91639-0.Google Scholar
Tomberg, T., Toomela, A., Ennok, M., & Tikk, A. (2007). Changes in coping strategies, social support, optimism and health-related quality of life following traumatic brain injury: A longitudinal study. Brain Injury, 21 (5), 479488. doi:10.1080/02699050701311737.Google Scholar
van Baalen, B., Odding, E., & Stam, H.J. (2008). Cognitive status at discharge from the hospital determines discharge destination in traumatic brain injury patients. Brain Injury, 22 (1), 2532. doi:10.1080/02699050701810662.Google Scholar
van Velzen, J.M., van Bennekom, C.A.M., Edelaar, M.J.A., Sluiter, J.K., & Frings-Dresen, M.H.W. (2009). How many people return to work after acquired brain injury?: A systematic review. Brain Injury, 23 (6), 473488. doi:10.1080/02699050902970737.Google Scholar
Walder, A.D., Yeoman, P.M., & Turnbull, A. (1995). The abbreviated injury scale as a predictor of outcome of severe head injury. Intensive Care Medicine, 21 (7), 606609. doi:10.1007/bf01700170.Google Scholar
Whiteneck, G.G., Gerhart, K.A., & Cusick, C.P. (2004). Identifying environmental factors that influence the outcomes of people with traumatic brain injury. Journal of Head Trauma Rehabilitation, 19 (3), 191204.Google Scholar
Williamson, O., Gabbe, B., Forbes, A., Wolfe, R., Sutherland, A., & Cameron, P. (2011). Comparing the responsiveness of functional outcome assessment instruments for trauma registries. Journal of Trauma, 71 (1), 6368.Google Scholar
Williamson, O., Gabbe, B.J., Sutherland, A.M., & Hart, M.J. (2012). Does recall of preinjury disability change over time? Injury Prevention, 19, 238243. doi:10.1136/injuryprev-2012-040457.Google Scholar
Wilson, J., Pettigrew, L., & Teasdale, G. (1998). Structured interviews for the Glasgow Outcome Scale and the Extended Glasgow Outcome Scale: Guidelines for their use. Journal of Neurotrauma, 15 (8), 573585. doi:10.1089/neu.1998.15.573.Google Scholar
Winkler, D., Callaway, L., Sloan, S., & Holgate, N. (2015). Everyday choice making: Outcomes of young people with acquired brain injury after moving from residential aged care to community-based supported accommodation. Brain Impairment, 16 (3), 221235. doi:10.1017/BrImp.2015.32.Google Scholar
Winkler, D., Farnworth, L., Sloan, S., Brown, T., & Callaway, L. (2010a). Comparison of people with ABI living in two accommodation settings: Shared supported accommodation and residential aged care. Brain Impairment, 11 (3), 313325. doi:10.1375/brim.11.3.313.Google Scholar
Winkler, D., Sloan, S., & Callaway, L. (2010b). People under 50 with acquired brain injury living in residential aged care. Brain Impairment, 11 (3), 299312. doi:10.1375/brim.11.3.299.Google Scholar
Zygun, D.A., Laupland, K.B., Hader, W.J., Kortbeek, J.B., Findlay, C., Doig, C.J., & Hameed, S.M. (2005). Severe traumatic brain injury in a large Canadian health region. Canadian Journal of Neurological Sciences, 32 (1), 8792. doi:10.1017/S0317167100016930.Google Scholar