Hostname: page-component-cd9895bd7-hc48f Total loading time: 0 Render date: 2024-12-23T16:09:23.141Z Has data issue: false hasContentIssue false

‘Breast Cancer on Long Island’: The Emergence of a New Object Through Mapping Practices

Published online by Cambridge University Press:  01 June 2007

Lisa Diedrich
Affiliation:
Women’s Studies Program, State University of New York at Stony Brook, 105 Old Chemistry Building, Stony Brook, NY 11794, USA E-mail: [email protected]
Emily Boyce
Affiliation:
Department of Sociology and Anthropology, Simon Fraser University, AQ 5054, 8888 University Drive, Burnaby BC, V5A 1S6, Canada E-mail: [email protected]
Get access

Abstract

In late 1980s and early 1990s ‘breast cancer on Long Island’ emerged as a distinct object characterized by higher than average incidence rates that some speculated could be explained by environmental factors. The scientific community and its discourses have played an authoritative role in delimiting what is officially ‘known’ and ‘not known’ about this specific disease ontology. This article moves beyond an epistemological focus towards what Annemarie Mol calls a ‘praxiographical’ inquiry into the everyday practices that produce complex disease objects. We consider how multiple and multi-sited practices of mapping breast cancer on Long Island—by activists, scientists and the state—contributed to the emergence of this new object, and to its multiple and shifting enactments over time. We explore the tensions and power relations between the ‘lay’ public and scientific ‘experts’, and how these influenced mapping practices and produced ‘breast cancer on Long Island’ as a complex and ongoing politico-scientific event.

Type
Articles
Copyright
Copyright © London School of Economics and Political Science 2007

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Baldwin, J. (1985). Tracking cancer on L.I. New York Times, 22 September.Google Scholar
Bottiglieri, D. (2005). Public Health Prevention Act—the precautionary principle: what it is and how is Huntington a pioneer in this field?’, HBCAC Newsletter, spring. URL (accessed March 2007): www.hcbac.org/newsletter/spring2005/public_health.htmGoogle Scholar
Brenner, B. (2003). We cannot let the process of science hold us back from working toward policies that will reduce the chemical exposures we all experience. Earth Island Journal, 18, 48.Google Scholar
Brown, P., Zavestoski, S., McCormick, S., Mandelbaum, J., & Luebke, T. (2001). Print media coverage of environmental causation of breast cancer. Sociology of Health and Illness, 23, 747775.CrossRefGoogle Scholar
Brown, P., Zavestoski, S., McCormick, S., Mayer, B., Morello-Frosch, R., & Gasior Altman, R. (2004). Embodied health movements: New approaches to social movements in health. Sociology of Health & Illness, 26, 5080.CrossRefGoogle ScholarPubMed
Davis, D.L., Aexelrod, D., Bailey, L., Gaynor, M., & Sasco, A.J. (1998). Rethinking breast cancer risk and the environment: The case for the precautionary principle. Environmental Health Perspectives, 106, 523529. URL (accessed March 2007): http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1533169CrossRefGoogle ScholarPubMed
Diedrich, L. (2007). Treatments: Language, politics, and the culture of illness. Minneapolis: University of Minnesota Press.Google Scholar
Ehrenreich, B. (2001). Welcome to Cancerland: A mammogram leads to a cult of pink kitsch. Harper’s, November, 4353.Google Scholar
Eisenstein, Z. (2001). Man-made breast cancers. Ithaca, NY: Cornell University Press.CrossRefGoogle Scholar
Epstein, S. (1998). Impure science: AIDS, activism, and the politics of knowledge. Berkeley: University of California Press.Google Scholar
Fagin, D. (1993). Cancer study for LI? Bill would OK 1st major look at role of environment. Newsday, 4 March.Google Scholar
Fagin, D. (2000). Not a cancer cause? Breast cancer study: No link to DDT, 3 other chemicals. Newsday, 14 November, A-7.Google Scholar
Fagin, D. (2002a). Years after studies’ launch, breast cancer answers elude (‘Tattered Hopes’, first in the series). Newsday, 28 July.Google Scholar
Fagin, D. (2002b). Study in frustration: Ambitious search for links between pollution and breast cancer on LI was hobbled from the start, critics say’ (‘Tattered Hopes’, second in the series) Newsday, 29 July.Google Scholar
Fagin, D. (2002c). Still searching: A computer mapping system was supposed to help unearth information about breast cancer and the environment (‘Tattered Hopes’, third in the series). Newsday, 30 July.Google Scholar
Fagin, D. (2002d). ‘No closed doors’: Activists to push studies on toxins, breast cancer link. Newsday, 7 August.Google Scholar
Fagin, D. (2002e). High-tech help: New computer-aided methods may help researchers identify the hidden causes of cancer clusters (‘Tattered Hopes’, fourth in the series). Newsday, 13 August.Google Scholar
Ferraro, S. (1993). The anguished politics of breast cancer. New York Times Magazine, 15 August.Google Scholar
Fortun, K. (2001). Advocacy after Bhopal: Environmentalism, disaster, new global orders. Chicago: University of Chicago Press.CrossRefGoogle Scholar
GammonM.D., M.D.,Neugut, A.I., Santella, R.M., Teitelbaum, S.L., Britton, J.A., Terry, M.B. et al. (2002a). The Long Island Breast Cancer Study Project: Description of a multi-institutional collaboration to identify environmental risk factors for breast cancer. Breast Cancer Research and Treatment, 74, 235254.CrossRefGoogle Scholar
Gammon, M.D., Santella, R.M., Neugut, A.I., Eng, S.M., Teitelbaum, S.L., Paykin, A. et al. (2002b).Environmental toxins and breast cancer on Long Island. I. Polycylic aromatic hydrocarbon DNA adducts. Cancer Epidemiology, Biomarkers & Prevention, 11, 677685.Google Scholar
Gammon, M.D., Wolff, M.S., Neugut, A.I., Eng, S.M., Teitelbaum, S.L., Britton, J.A. et al. (2002c). Environmental Toxins and Breast Cancer on Long Island. II. Organochlorine Compound Levels in Blood. Cancer Epidemiology, Biomarkers & Prevention, 11, 686697.Google ScholarPubMed
Goffman, E. (1959). The presentation of the self in everyday life. Garden City, NJ: Doubleday.Google Scholar
Kabat, G.C. (2003). Electric blanket use and breast cancer on Long Island. Epidemiology, 14, 514520.CrossRefGoogle ScholarPubMed
King, S. (2004). Pink Ribbons Inc.: Breast cancer activism and the politics of philanthropy. International Journal of Qualitative Studies in Education, 17, 473492.CrossRefGoogle Scholar
Klawiter, M. (2004). Breast cancer in two regimes: The impact of social movements on illness experience. Sociology of Health and Illness, 26, 845874.CrossRefGoogle ScholarPubMed
Lantz, P.M., & Booth, K.M. (1998). The social construction of the breast cancer epidemic. Social Science & Medicine, 46, 907918.CrossRefGoogle ScholarPubMed
Law, J. (1999). After ANT: Complexity, naming, and topology. In Law, J. & Hassard, J. (Eds), Actor network theory and after, 1–13. Oxford: Blackwell.Google Scholar
Law, J. (2002). Aircraft stories: Decentering the object in technoscience. Durham, NC: Duke University Press.Google Scholar
Lerner, B. (2001). The breast cancer wars: Hope, fear, and the pursuit of a cure in twentieth-century America. Oxford: Oxford University Press.Google Scholar
Lerner, B. (2002). What if proof is elusive? Newsday, 18 August.Google Scholar
Lorde, A. (1980). The cancer journals. San Francisco: Aunt Lute.Google Scholar
Marks, P. (1993). US to finance project to study breast cancer on Long Island. New York Times, 25 November, B-1.Google Scholar
McLafferty, S. (2002). Mapping women’s worlds: Knowledge, power and the bounds of GIS. Gender, Place and Culture, 9, 263269.CrossRefGoogle Scholar
Mol, A. (2002). The body multiple: Ontology in medical practice. Durham, NC: Duke University Press.CrossRefGoogle Scholar
Mol, A., & Law, J. (Eds) (2002). Complexities: Social studies of knowledge practices. Durham, NC: Duke University Press.Google Scholar
NYSDH (New York State Department of Health) (1990). Small area analysis of breast cancer incidence rates in Nassau and Suffolk Counties, New York, 1978–1987. Albany, NY: NYSDH.Google Scholar
NYSDH (New York State Department of Health) (1992). Long Island Breast Cancer Study, Report 4. Termiticide use and breast cancer risk. Albany, NY: NYSDH.Google Scholar
NYSDH (New York State Department of Health) (2006). Coram, Mt. Sinai, Port Jefferson Station (CMP) follow-up investigation: Final integration report. Albany, NY: NYSDH. URL (accessed March 2007): http://www.health. state.ny.us/environmental/investigations/cmp/Google Scholar
NYSDH (New York State Department of Health), Bureau of Cancer Epidemiology. (2005a). Cancer trends by county, 1976–2002, vol. 3, New York State. Albany, NY: NYSDH. URL (accessed July 2005): www.health. state.ny.nysdoh/cancer/nyscr/vol3.htmlGoogle Scholar
NYSDH (New York State Department of Health), Bureau of Cancer Epidemiology. (2005b). Cancer trends by region, 1976–2002, vol. 3, New York State. Albany, NY: NYSDH. URL (accessed July 2005): www.health. state.ny.nysdoh/cancer/nyscr/vol3.htmlGoogle Scholar
NYSDH (New York State Department of Health), Bureau of Environmental and Occupational Epidemiology. (1992). Location of 138 kV electric transmission lines in Nassau and Suffolk Counties, New York, and breast cancer incidence, 1978–1988. Albany, NY: NYSDH.Google Scholar
NYSDH (New York State Department of Health), SUNY at Stony Brook Department of Preventive Medicine, & Nassau County Department of Health (1988). The Long Island Breast Cancer Study, Report 1. Albany, NY: NYSDH.Google Scholar
NYSDH (New York State Department of Health), SUNY at Stony Brook Department of Preventive Medicine, & Nassau County Department of Health (1990a). The Long Island Breast Cancer Study, Report 2. Albany, NY: NYSDH.Google Scholar
NYSDH (New York State Department of Health), SUNY at Stony Brook Department of Preventive Medicine, & Nassau County Department of Health (1990b). The Long Island Breast Cancer Study, Report 3. Albany, NY: NYSDH.Google Scholar
O’Leary, E.S. (2003). Wire coding in the EMF and Breast Cancer on Long Island Study: relationship to magnetic fields. Journal of Exposure Analysis and Environmental Epidemiology, 13, 283293.Google ScholarPubMed
Potts, L.K. (2004). An epidemiology of women’s lives: The environmental risk of breast cancer. Critical Public Health, 14, 133147.CrossRefGoogle Scholar
Randall, L. (2005). Dangling particles. New York Times, 18 September, 13.Google Scholar
Schemo, D.S. (1992). Long Island presses for answers on breast cancer. New York Times, 5 October, 5.Google Scholar
Slatella, M. (1988). $1m study on cancer is urged. Newsday, 17 August.Google Scholar
Stellman, S.D., Djorjevic, M.J., Britton, J.A., Muscat, J.E., Citron, M.L., Kemeny, M, et al. (2000). Breast cancer risk in relation to adipose concentrations of organochlorine pesticides and polychlorinated biphenyls in Long Island, New York. Cancer Epidemiology, Biomarkers & Prevention, 9, 12411249.Google ScholarPubMed
Swirsky, J. (2005). Map of destiny: Pinpointing a cancer epidemic on the kitchen table. New York: Tempest Books.Google Scholar
Timander, L.M., & McLafferty, S. (1998). Breast cancer in West Islip, NY: A spatial clustering analysis with covariates. Social Science & Medicine, 46, 16231635.CrossRefGoogle Scholar
Tusiani, B. (1988). Breast cancer rate: Puzzle for L.I. New York Times, Long Island Weekly, 13 March, 13.Google Scholar