Hostname: page-component-586b7cd67f-dsjbd Total loading time: 0 Render date: 2024-11-22T18:13:55.770Z Has data issue: false hasContentIssue false

Future Concerns Among Families Following Brain Injury in the United States: Views from the Brain Injury Association of America State Affiliates

Published online by Cambridge University Press:  07 November 2013

Mark Tucker
Affiliation:
Interwork Institute San Diego State University
Charles Edmund Degeneffe*
Affiliation:
Associate Professor and Coordinator Rehabilitation Counseling Program San Diego State University
*
Address correspondence to: Charles Edmund Degeneffe Rehabilitation Counseling Program San Diego State University San Diego, CA 92018 E-mail: [email protected]
Get access

Abstract

The objective of this study was to examine brain injury professionals’ perspectives on the future concerns of families of persons with brain injuries in the United States of America. A total of 28 persons in leadership positions with the Brain Injury Association of America (BIAA) participated. Through qualitative data analysis of an open-ended question in an electronic survey containing both qualitative and quantitative questions, participants identified future concerns related to future caregiving responsibilities, financial concerns, living arrangements, recovery, access to professional care, relationships and employment. The findings indicate that many families are unprepared to meet the future care and support needs of their injured family members.

Type
Articles
Copyright
Copyright © The Author(s), published by Cambridge University Press on behalf of Australian Academic Press Pty Ltd 2013 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bishop, M., Degeneffe, C.E., & Mast, M. (2006). Family needs after traumatic brain injury: Implications for rehabilitation counseling. Australian Journal of Rehabilitation Counselling, 12 (2), 7387.CrossRefGoogle Scholar
Brain Injury Association of America (2011a). About us. Retrieved from http://www.biausa.org/About-Us/about-brain-injury-association.htmGoogle Scholar
Brain Injury Association of America (2011b). Ensure returning service members receive access to effective TBI treatments. Retrieved from www.biausa.orgGoogle Scholar
Brain Injury Association of America (2013). The TBI Model Systems. Retrieved from http://www.biausa.org/tbims.htmGoogle Scholar
Brain Injury Association of America (2006). Traumatic Brain Injury Act appropriations. Retrieved from http://www.biausa.org/Google Scholar
Degeneffe, C.E. (2012, August). Correlates of family care planning for persons with brain injuries: Sibling and parent perspectives. Poster session presented at the annual meeting of the American Psychological Association, Orlando, FL.CrossRefGoogle Scholar
Degeneffe, C. (2001). Family caregiving and traumatic brain injury. Health and Social Work, 26 (4), 257268.CrossRefGoogle ScholarPubMed
Degeneffe, C.E., Boot, D., Kuehne, J., Kuraishi, A., Maristela, F., Noyes, J., Price, R., Slooten, A., & Will, H. (2008). Community-based interventions for persons with traumatic brain injury: A primer for rehabilitation counselors. Journal of Applied Rehabilitation Counseling, 39 (1), 4252.CrossRefGoogle Scholar
Degeneffe, C.E., & Olney, M.F. (2008). Future concerns of adult siblings of persons with traumatic brain injury. Rehabilitation Counseling Bulletin, 51, 240250.CrossRefGoogle Scholar
Degeneffe, C. E. & Tucker, M. (2012). Quality of life following brain injury: Perspectives from Brain Injury Association of America state affiliates. Rehabilitation Research, Policy, and Education, 26, 213216.CrossRefGoogle Scholar
Depuis, P.R. (2007). HyperResearch (Version 2.8). Randolph, MA: Research Ware, Inc.Google Scholar
Dillman, D. (2000). Mail and Internet Surveys: The tailored design method (2nd ed.). New York: John Wiley & Sons, Inc.Google Scholar
Griffin, J.M., Friedemann-Sanchez, G., Jensen, A.C., Taylor, B.C., Gravely, A., Clothier, B., Simon, A.B., Bangerter, A., Pickett, T., Thors, C., Ceperich, S., Poole, J., & van Ryn, M. (2011). The invisible side of war: Families caring for US service members with traumatic brain injuries and polytrauma. Journal of Head Trauma Rehabilitation. Retrieved from DOI: 10.1097/HTR.0b013e3182274260Google Scholar
Kolakowsky-Hayner, S.A., Miner, K.D., & Kreutzer, J.S. (2001). Long-term life quality and family needs after traumatic brain injury. Journal of Head Trauma Rehabilitation, 16 (4), 374385.CrossRefGoogle ScholarPubMed
Medlar, T. (1998). The sexuality education program of the Massachusetts statewide head injury program. Sexuality and Disability, 16, 1119.CrossRefGoogle Scholar
Orsillo, S.M., McCaffrey, R.J., & Fisher, J.M. (1993). Siblings of head- injured individuals: A population at risk. Journal of Head Injury Rehabilitation, 8 (1), 102115.Google Scholar
Rontondi, A.J., Sinkule, J., & Spring, M. (2005). An interactive web-based intervention persons with TBI and their families. Journal of Head Trauma Rehabilitation, 20 (2), 173185.CrossRefGoogle Scholar
Spearman, R.C., Stamm, B.H., Rosen, B.H., Kayala, D.E., Zillinger, M., Breese, P., & Wargo, L.M. (2001). The use of Medicaid waivers and their impact on services. Journal of Head Trauma Rehabilitation, 16 (1), 4760.CrossRefGoogle ScholarPubMed
Strauss, A., & Corbin, J. (1990). Basics of Qualitative Research: Grounded theory procedures and techniques. Newbury Park, CA: Sage Publications, Inc.Google Scholar
United States Department of Veterans Affairs (2011). New to Caregiving. Retrieved from http://www.caregiver.va.gov/toolbox_new.aspGoogle Scholar
Walker, N.W., Boling, M.S., & Cobb, H. (1999). Training of school psychologists in neuropsychology and brain injury: Results of a national survey of training programs. Child Neuropsychology, 5, 137142.CrossRefGoogle Scholar
Wehman, P., Targett, P., West, M., & Kregel, J. (2005). Productive work and employment for persons with traumatic brain injury. Journal of Head Trauma Rehabilitation, 20 (2), 115127.CrossRefGoogle ScholarPubMed