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Quality of Life: An Opportunity to Reorganise Services Within a Person Centred Approach to Disability

Published online by Cambridge University Press:  27 August 2015

Roy I. Brown*
Affiliation:
Flinders University, Australia
*
Roy Brown, School of Special Education and Disability Studies, Flinders University of South Australia, GPO Box 2100, Adelaide, SA 5001, Australia. Email: [email protected]
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Abstract

This paper examines defining features and principles of quality of life as discussed in the literature on disability. It is suggested that many features of such a model require examination and changes to some of our approaches to rehabilitation, and professional values. It is also argued that the concept has serious implications for research, and opens up new ways of viewing aspects of methodology. Finally, the article suggests that quality of life as formulated in the paper has implications beyond disability and its acceptance challenges policy and management practices as viewed within an economic rationalist framework.

Type
Articles
Copyright
Copyright © Cambridge University Press 2000

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References

Andrews, F.M. (1974). Social indicators of perceived life quality. Social Indicators Research, 1, 279299.CrossRefGoogle Scholar
Bronfenbrenner, U. (1979). The Ecology of Human Development. Cambridge, Massachusetts: Harvard University Press.Google Scholar
Brown, I. & Brown, R.I. (Ed). (2000). Exceptionality Education Canada (In Press).Google Scholar
Brown, R.I. (2000) Learning from Quality of Life Models. In Janicki, M.P. and Ansellow, E.E (Eds.). Community Supports for Ageing Adults with Life Long Disabilities. Brooks (In press).Google Scholar
Brown, R.I. and Bayer, M. B. (1992). Rehabilitation Questionnaire and Manual: A Personal Guide to the Individual's Quality of Life. Toronto: Captus Press.Google Scholar
Brown, R.I., Bayer, M.B., & Brown, P.M. (1992). Empowerment and Developmental Handicaps: Choices and Quality of Life. Toronto, Ontario: Captus Press and London: Chapman and Hall.Google Scholar
Brown, R.I., Bayer, M.B. and MacFarlane, C. (1989). Rehabilitation Programmes: Performance and Quality of Life of Adults with Developmental Handicaps. Toronto: Lugus.Google Scholar
Brown, R. I., Brown, P. M., and Bayer, M. B. (1994). A Quality of Life Model: New Challenges Arising from a Six Year Study. In Goode, D. (Ed.). Quality of Life for Persons with Disabilities, International Perspectives and Issues. Cambridge: Brookline Books.Google Scholar
Brown, R.I. & Shearer, J. (2000). Quality of Life: Some Implications for the Process of Inclusion. Exceptionality Education Canada. (In Press).Google Scholar
Cummins, R.A. (1992) Comprehensive quality of life scale — Intellectual disability. (ComQolIID). Manual, Third edition, Psychology Research Centre, Deakin University, Toorak Australia.Google Scholar
Cummins, R.A. (1995). Directory of Instruments to Measure Quality of life and Cognate Areas. Deakin University: Burwood, Victoria, Australia.Google Scholar
Cummins, R.A. (1997). Assessing Quality of Life in Brown, Roy I. (Ed.) Quality of Life for People with Disabilities: Models, Research and Practice. Cheltenham: Stanley Thornes.Google Scholar
Cummins, R.A. (1999). Integrating quality of life with service delivery: A new model. Keynote paper, 35th Annual Conference, Australian Society for the Study of Intellectual Disability, Sydney, 09.Google Scholar
Felce, D. & Perry, J. (1997). Quality of life: the scope of the term and its breadth of measurement in Brown, Roy I. (Ed.) Quality of Life for People with Disabilities: Models, Research and Practice. Cheltenham: Stanley Thornes.Google Scholar
Goode, D.A. (Ed.) (1994a) Quality of life for persons with disabilities: International perspectives and issues. Cambridge, MA: Brookline.Google Scholar
Goode, D.A. (1994b). A world without words: The social construction of children born deaf/blind. Philadelphia: Temple University Press.Google Scholar
Hegarty, S. (1994). Quality of Life at School. In Goode, D (Ed.) Quality of Life for Persons with Disabilities. Cambridge MA: Brookline.Google Scholar
Mercier, C. (1994). Improving the Quality of Life of People with Severe Mental Disorders. In Romney, D., Brown, R.I. & Fry, P.S. (Eds). Improving the Quality of Life: Recommendations for People with and without Disabilities. Netherlands: Kluwer.Google Scholar
Mitchell, D. and Winslade, J. (1997) Developmental Systems and Narrative Approaches to Working with Families of Persons with Disabilities in Brown, Roy I. (Ed.) Quality of Life for People with Disabilities Models, Research and Practice. Cheltenham: Stanley Thornes.Google Scholar
Ory, M.G. & Cox, D.M. (1994). Forging Ahead: Linking Health and Behaviour to Improve Quality of Life in Older People. In Romney, D.M., Brown, R.I. & Fry, P.S. (Eds). Improving the Quality of Life: Recommendations for People with and without Disabilities. Netherlands: Kluwer.Google Scholar
Saul, J.R. (1993). Voltaire's Bastards: The Dictatorship of Reason in the West. Penguin: Canada.Google Scholar
Raphael, D. (1997). Quality of Life of Persons with Developmental Disabilities: Five Issues Concerning Its Nature and Measurement. Journal on Developmental Disabilities 5(2), 4466.Google Scholar
Renwick, R. & Brown, I. (1996). The Centre for Health Promotion's Conceptual Approach to Quality of Life: Being, Belong & Becoming. In Renwick, R., Brown, I. and Nagler, M. (Eds.). Quality of Life in Health Promotion and Rehabilitation: Conceptual Approaches, Issues, and Applications. California: Sage.Google Scholar
Romney, D.M., Brown, R.I. & Fry, P.S. (1994). Improving the Quality of Life: Recommendations for People with and without Disabilities. Netherlands: Kluwer.CrossRefGoogle Scholar
Salamanca Statement and Framework for Action on Special Needs Education, (1994) World Conference on Special Needs Education: Access and Quality. UNESCO: Ministry of Education and Science, Spain.Google Scholar
Taylor, S.J. (1994). In Support of Research on Quality of Life, but against QOL. In Goode, D. (Ed.) Quality of Life for Persons with Disabilities: International Perspectives and Issues. Cambridge, MA: Brookline.Google Scholar
Timmons, V. & Brown, R.I. (1997). Quality of life — Issues for children with handicaps in In Brown, R. I., (Ed.). Quality of Life for People with Disabilities: Models, Research and Practice. Cheltenham: Stanley Thornes.Google Scholar