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Long Term Changes in Family Needs After Brain Injury: A Preliminary Review

Published online by Cambridge University Press:  27 August 2015

Peter Stebbins
Peter Stebbins*
Affiliation:
Deakin University
*
Unit 7, 26 Eumeralla Rd., Caulfield South VIC 3162, Australia
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Abstract

When a family member acquires a brain injury the family as a whole is likely to experience severe emotional stress and strain in coping with and adjusting to the injured family member. Longitudinal studies of family adjustment have shown that families find it increasingly difficult to cope with the brain injured family member as the time (years) since injury increases. The increasing difficulty family members experience in coping with their brain injured relative led several researchers to investigate the needs of family members. Research investigating family needs after brain injury is limited to the first couple of years post trauma despite the finding that stress and burden continue to increase as the years progress. This paper reviews family needs research over the last three decades and provides a discussion of family needs and surrounding issues relevant to rehabilitation professionals.

Type
Articles
Information
The Australian Journal of Rehabilitation Counselling , Volume 3 , Issue 1 , 1997 , pp. 30 - 39
Copyright
Copyright © Cambridge University Press 1997

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References

REFERENCES

Anderson-Parente, J., DeCesare, A., & Parente, R. (1990). Spouses who stayed. Journal of Cognitive Rehabilitation, 8(1), 22–25.Google Scholar
Australian Bureau of Statistics. (1993). Disability, aging & carers, Australia: Brain Injury & Stroke. Canberra: Government Printer.Google Scholar
Brooks, N. (1991). The head injured family. Journal of Clinical and Experimental Neuropsychology, 13(1), 155–188.CrossRefGoogle Scholar
Brooks, N., Campsie, L., Symington, C., Beattie, A., & McKinlay, W. (1986). The five year outcome of severe blunt head injury: A relative's view. Journal of Neurological & Neurosurgical Psychiatry, 49, 764–770.CrossRefGoogle ScholarPubMed
Campbell, C. (1988). Needs of relatives and helpfulness of support groups in severe head injury. Rehabilitation Nursing, 13, 320–325.CrossRefGoogle ScholarPubMed
Camplair, P., & Kreutzer, J. (1989). Psychosocial needs of families of adult head injury survivors. Presented at the 13th Annual Postgraduate Course on the Rehabilitation of the Brain Injured Adult and Child; 06 1989; Williamsburg, VA.Google Scholar
Devany, C., & Kreutzer, J. (1992). A factor analytic study of the Family Needs Questionnaire. Presented at the 16th Annual Postgraduate Conference on the Rehabilitation of the Brain Injured Adult and Child; 06 1992; Williamsburg, VA.Google Scholar
Florian, V., Katz, S., & Lahav, V. (1989). Impact of traumatic brain damage on family dynamics and functioning: A review. Brain Injury, 3(3), 219–233.CrossRefGoogle ScholarPubMed
Florian, V., & Katz, S. (1991). The other victims of traumatic brain injury: Consequences for family members. Neuropsychology, 5(4). 267–279.CrossRefGoogle Scholar
Kramer, J. (1991). The experience of being a parent. In Williams, J. & Kay, T. (Eds.). Head injury: A family matter. Sydney: Paul H. Brookes.Google Scholar
Kreutzer, J., Serio, C., & Bergquist, S. (1994). Family needs after brain injury: A quantitative analysis, Journal of Head Trauma Rehabilitation, 9(3), 104–115.CrossRefGoogle Scholar
Kreutzer, J., Gervasio, A., & Camplair, P. (1994). Primary caregivers' psychological status and family functioning after traumatic brain injury. Brain Injury, 8(3), 197–210.CrossRefGoogle ScholarPubMed
Lezak, M. (1978). Living with the characterologically altered brain injured patient. Journal of Clinical Psychiatry, 39, 592–598.Google ScholarPubMed
Lezak, M. (1988). Brain damage is a family affair. Journal of Clinical and Experimental Neuropsychology, 10(1), 111–123.CrossRefGoogle ScholarPubMed
Livingston, M., Brooks, D., & Bond, M. (1985). Three months after severe head trauma: Psychiatric and social impact on relatives. Journal Of Neurological & Neurosurgical Psychiatry, 48, 870–875.CrossRefGoogle ScholarPubMed
Mathias, M. (1984). Personal needs of family members of critically ill patients with and without brain injury. Journal of Neurosurgical Nursing, 16, 36–44.CrossRefGoogle Scholar
Maurer, J. (1991). Special issues for a sibling. In Williams, J. & Kay, T. (Eds.). Head injury: A family matter. Sydney: Paul H. Brookes.Google Scholar
Maus-Clum, N., & Ryan, M. (1981). Brain injury and the family. Journal of Neurosurgical Nursing, 13(4), 165–169.CrossRefGoogle Scholar
McKinlay, W., Brooks, N., Bond, M., Martinage, D., & Marshall, M. (1981). The short term outcome of severe blunt head injury as reported by relatives of the injured person. Journal of Neurological & Neurosurgical Psychiatry, 44, 527–533.CrossRefGoogle Scholar
Nodell, S. (1990). The forgotten feeling, fears and family: Sibling issues from a parent's perspective. Journal of Cognitive Rehabilitation, 8(2), 6–7.Google Scholar
Oddy, M., Humphrey, M., & Uttley, D. (1978). Stress upon the relatives of head-injured patients. British Journal of Psychiatry, 133, 507–518.CrossRefGoogle ScholarPubMed
Oddy, M., & Humphrey, M. (1980). Social recovery during the year following severe head injury. Journal of Neurological & Neurosurgical Psychiatry, 43, 789–802.CrossRefGoogle ScholarPubMed
Panting, A., & Merry, P. (1972). The long-term rehabilitation of severe head injuries with particular reference to the need for social and medical support for the patient's family. Rehabilitation, 38, 33–37.Google Scholar
Peters, L., Stambrook, M., & Moore, A. (1990). Psychological sequelae of Closed Head Injury: Effects on marital relationships. Brain Injury, 4(1), 39–47.CrossRefGoogle Scholar
Ponsford, J., Sloan, S., & Snow, P. (1995). Traumatic brain injury: Rehabilitation for everyday adaptive living. United Kingdom: Lawrence Earlbaum & Assoc.Google Scholar
Smeltzer, S., & Bare, B. (1992). Brunner & Suddarth's textbook of medical-surgical nursing. Philadelphia, PA: J.B. Lippincott Co.Google Scholar
Thomsen, I. (1972). The patient with severe head injury and his family. Scandinavian Journal of Rehabilitation Medicine, 6, 180–183.Google Scholar
Thomsen, I. (1984). Late outcome of very severe blunt head trauma: A 10-15 year second follow-up. Journal of Neurological & Neurosurgical Psychiatry, 47, 260–268.CrossRefGoogle ScholarPubMed
Wilier, B., & Corrigan, J. (1994). Whatever it takes: A model for community based services. Brain Injury, 8(2), 59–71.Google Scholar
Wilier, B., & Linn, R. (1993). Practical issues in behaviour management for family members of individuals with traumatic brain injury. Neuro-Rehabilitation, 3(2), 40–49.Google Scholar
Wilton, N. (1981). The viewpoint of the parents of the brain damaged patient. In Dinning, T., & Connelley, T., (Eds.). Head injuries: An integrated approach. Brisbane: Watson Fergueson & Co.Google Scholar
Yeatman, A. (1996). Getting real: The interim report of the review of the Commonwealth/ State Disability Agreement. Canberra: Government Printer.Google Scholar