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Pilot Study of a Parent Guided Website Access Package for Early Intervention Decision-Making for Autism Spectrum Disorder*

Published online by Cambridge University Press:  16 November 2017

Sarah Carlon Open the ORCID record for Sarah Carlon [Opens in a new window] ,
Mark Carter  and
Jennifer Stephenson
Sarah Carlon*
Affiliation:
Macquarie University, Australia
Mark Carter
Affiliation:
Macquarie University, Australia
Jennifer Stephenson
Affiliation:
Macquarie University, Australia
*
Correspondence: Sarah Carlon, Building X5A, Macquarie University, NSW 2109, Australia. Email: [email protected]
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Abstract

A pilot study of the effectiveness of guided access to websites that provide information on intervention options for children with autism spectrum disorder (ASD) was conducted with 12 parents of preschool-aged children with ASD. Guided access to reliable websites that included information about the efficacy of interventions for ASD (Raising Children Network, 2006–2014; Research Autism, 2006–2014) was provided in the format of a DVD presentation. The guidelines for choosing interventions provided on the Raising Children Network (2009) website were reiterated and assistance was provided with navigation and interpretation of the sites. Participants reported the guided access to reliable websites as useful and also reported an increased level of confidence in making intervention decisions after using the package. However, the guided access did not appear to influence the factors that parents considered important in decision-making, their understanding of the level of research support for interventions, nor their desire to use different interventions. Implications for future research and attempts to disseminate information to parents are discussed.

Keywords

ASDautismautism websitesevidence-based practiceinterventionparental decision-making
Type
Original Articles
Information
Australasian Journal of Special Education , Volume 41 , Issue 2 , December 2017 , pp. 141 - 156
Copyright
Copyright © The Author(s) 2017 

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Footnotes

*

This manuscript was accepted under the Editorship of Umesh Sharma.

References

ARTD Consultants. (2012). Evaluation of the helping children with autism package: FaHCSIA components. Retrieved from http://www.fahcsia.gov.au/sites/default/files/documents/08_2012/hcwa_technical_report.pdf Google Scholar
Bowker, A., D'Angelo, N. M., Hicks, R., & Wells, K. (2011). Treatments for autism: Parental choices and perceptions of change. Journal of Autism and Developmental Disorders, 41, 1373–1382. doi:10.1007/s10803-010-1164-y CrossRefGoogle ScholarPubMed
Carlon, S., Carter, M., & Stephenson, J. (2015). Decision-making regarding early intervention by parents of children with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 27, 285–305. doi:10.1007/s10882-014-9415-z CrossRefGoogle Scholar
Carlon, S., Stephenson, J., & Carter, M. (2014). Parent reports of treatments and interventions used with children with autism spectrum disorders (ASD): A review of the literature Australasian Journal of Special Education, 38, 63–90. doi:10.1017/jse.2014.4 CrossRefGoogle Scholar
Carlon, S., Stephenson, J., & Carter, M. (2015). Parent perspectives on sources of information about autism spectrum disorder interventions in Australia. Australasian Journal of Special Education, 39, 113–127. doi:10.1017/jse.2015.9 CrossRefGoogle Scholar
Carter, M., Roberts, J., Williams, K., Evans, D., Parmenter, T., Silove, N., . . . Warren, A. (2011). Interventions used with an Australian sample of preschool children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5, 1033–1041. doi:10.1016/j.rasd.2010.11.009 CrossRefGoogle Scholar
Grant, N., Rodger, S., & Hoffman, T. (2016). Intervention decision-making processes and information preferences of parents of children with autism spectrum disorders. Child: Care, Health and Development, 42, 125–134. doi:10.1111/cch.12296 CrossRefGoogle ScholarPubMed
Hart, W., Albarracín, D., Eagly, A. H., Brechan, I., Lindberg, M. J., & Merrill, L. (2009). Feeling validated versus being correct: A meta-analysis of selective exposure to information. Psychological Bulletin, 135, 555–588. doi:10.1037/a0015701 CrossRefGoogle ScholarPubMed
Klein, G. (2008). Naturalistic decision making. Human Factors: The Journal of the Human Factors and Ergonomics Society, 50, 456–460. doi:10.1518/001872008x288385 CrossRefGoogle ScholarPubMed
Kunda, Z. (1990). The case for motivated reasoning. Psychological Bulletin, 108, 480–498.CrossRefGoogle ScholarPubMed
Mackintosh, V. H., Myers, B. J., & Goin-Kochel, R. P. (2005). Sources of information and support used by parents of children with autism spectrum disorders. Journal on Developmental Disabilities, 12 (1), 41–52.Google Scholar
Matson, J. L., Adams, H. L., Williams, L. W., & Rieske, R. D. (2013). Why are there so many unsubstantiated treatments in autism? Research in Autism Spectrum Disorders, 7, 466–474. doi:10.1016/j.rasd.2012.11.006 CrossRefGoogle Scholar
Meso, P., Troutt, M. D., & Rudnicka, J. (2002). A review of naturalistic decision making research with some implications for knowledge management. Journal of Knowledge Management, 6, 63–73. doi:10.1108/13673270210417709 CrossRefGoogle Scholar
Mulligan, J., MacCulloch, R., Good, B., & Nicholas, D. B. (2012). Transparency, hope, and empowerment: A model for partnering with parents of a child with autism spectrum disorder at diagnosis and beyond. Social Work in Mental Health, 10, 311–330. doi:10.1080/15332985.2012.664487 CrossRefGoogle Scholar
National Autism Center. (2015). National standards project, phase 2. Retrieved from http://www.nationalautismcenter.org/national-standards-project/phase-2/ Google Scholar
Nickerson, R. S. (1998). Confirmation bias: A ubiquitous phenomenon in many guises. Review of General Psychology, 2, 175–220. doi:10.1037/1089-2680.2.2.175 CrossRefGoogle Scholar
Prior, M., Roberts, J. M. A., Rodger, S., & Williams, K. (with Dodd, S., Ridley, G., & Sutherland, R.) (2011). A review of the research to identify the most effective models of practice in early intervention of children with autism spectrum disorders. Retrieved from https://www.dss.gov.au/sites/default/files/documents/09_2012/review_of_the_research_report_2011_0.pdf Google Scholar
Raising Children Network. (2009). Choosing interventions for autism spectrum disorder. Retrieved 8 October 2010 from http://raisingchildren.net.au/articles/autism_spectrum_disorder_choosing_interventions.html Google Scholar
Raising Children Network. (2006–2014). Parent guide to therapies. Retrieved 30 May 2012 from http://raisingchildren.net.au/parents_guide_to_therapies/parents_guide_to_therapies.html Google Scholar
Raising Children Network. (2014a). Experts & advisors. Retrieved 12 June 2015 from http://raisingchildren.net.au/experts__advisors/experts_advisors.html Google Scholar
Raising Children Network. (2014b). Helping children with autism (HCWA): An Australian Government initiative. Retrieved 23 June 2015 from http://raisingchildren.net.au/articles/hcwa_funding_partner.html Google Scholar
Reichow, B., Halpern, J. I., Steinhoff, T. B., Letsinger, N., Naples, A., & Volkmar, F. R. (2012). Characteristics and quality of autism websites. Journal of Autism and Developmental Disorders, 42, 1263–1274. doi:10.1007/s10803-011-1342-6 CrossRefGoogle ScholarPubMed
*Research Autism. (2006–2014). Treatments and therapies for autism currently under scientific evaluation by Research Autism. Retrieved 1 June 2012 from http://researchautism.net/autism_treatments_therapies_interventions.ikml Google Scholar
Research Autism. (2015a). About us. Retrieved 10 July 2015 from http://www.researchautism.net/about-us-research-autism Google Scholar
Research Autism. (2015b). FAQs about our evaluations of interventions. Retrieved 10 July 2015 from http://www.researchautism.net/autism-interventions/other-aspects-autism-interventions/process-for-evaluating-studies/faqs-about-our-evaluations-of-interventions Google Scholar
Sabo, R. M. (2008). Autism consumer health web sites: Are readability levels too high? Journal of Consumer Health on the Internet, 12, 337–348. doi:10.1080/15398280802451621 CrossRefGoogle Scholar
Sabo, R. M., & Lorenzen, J. M. (2008). Consumer health web sites for parents of children with autism. Journal of Consumer Health on the Internet, 12, 37–49. doi:10.1080/15398280802081436 CrossRefGoogle Scholar
Salomone, E., Charman, T., McConachie, H., & Warreyn, P. (2015). Prevalence and correlates of use of complementary and alternative medicine in children with autism spectrum disorder in Europe. European Journal of Pediatrics, 174, 1277–1285. doi:10.1007/s00431-015-2531-7 CrossRefGoogle ScholarPubMed
Schopler, E., Van Bourgondien, M. E., Wellman, G. J., & Love, S. R. (2010). Childhood Autism Rating Scale – Second Edition. Los Angeles, CA: Western Psychological Services.Google Scholar
Valentine, K. (2010). A consideration of medicalisation: Choice, engagement and other responsibilities of parents of children with autism spectrum disorder. Social Science & Medicine, 71, 950–957. doi:10.1016/j.socscimed.2010.06.010 CrossRefGoogle ScholarPubMed
Wong, C., Odom, S. L., Hume, K. A., Cox, A. W., Fettig, A., Kucharczyk, S., . . . Schultz, T. R. (2015). Evidence-based practices for children, youth, and young adults with autism spectrum disorder: A comprehensive review. Journal of Autism and Developmental Disorders, 45, 1951–1966. doi:10.1007/s10803-014-2351-z CrossRefGoogle Scholar
Wong, H. H. L., & Smith, R. G. (2006). Patterns of complementary and alternative medical therapy use in children diagnosed with autism spectrum disorders. Journal of Autism and Developmental Disorders, 36, 901–909. doi:10.1007/s10803-006-0131-0 CrossRefGoogle ScholarPubMed