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Foreword: Phase II of the Genetics Revolution: Sophisticated Issues for Home and Abroad

Published online by Cambridge University Press:  24 February 2021

Frances H. Miller
Frances H. Miller*
Affiliation:
Boston University School of Law; Boston University School of Public Health; Boston University School of Health Care Management.
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American Journal of Law & Medicine , Volume 28 , Issue 2-3: The Genetics Revolution: Conflicts, Challenges and Conundra , 2002 , pp. 145 - 150
Copyright
Copyright © American Society of Law, Medicine and Ethics and Boston University 2002

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References

1 Andrews, Lori B., Mehlman, Maxwell J. Rothstein, Mark A. , Genetics: Ethics, Law and Policy (2002)Google Scholar.

2 Symposium, The Human Genome Initiative and the Impact of Genetic Testing and Screening Technologies, 17 Am. J.L. & Med. 1 (1991)Google Scholar.

3 Abby Lippman, Prenatal Genetic Testing and Screening: Constructing Needs and Reinforcing Inequities, 17 Am. J.L. & Med. 15 (1991)Google Scholar.

4 Sonia Mateu Suter,The Routinization of Prenatal Testing, 28 Am. J.L. & Med. 233 (2002)Google Scholar.

5 Andrews, Lori B. & Jaeger, Ami S., Confidentiality of Genetic Information in the Workplace, J.L. & Med. 75(1991)Google Scholar.

6 Roche, Patricia A., The Genetic Revolution at Work: Legislative Efforts to Protect Employees, 28 Am. J.L. & Med. 271 (2002)Google Scholar.

7 Larry Gostin, Genetic Discrimination: The Use of Genetically Based Diagnostic and Prognostic Tests by Employers and Insurers, 17 Am. J.L. & Med. 109 (1991)Google Scholar.

8 Roche, supra note 6.

9 See Symposium, Genetics and the Law: The Ethical, Legal, and Social Implications of Technology and Biomedical Ethics, 3 U. Chi. Roundtable 417 (1996)Google Scholar; Symposium, Law & Genetics on the Threshold of the New Millennium, 49 Emory L.J. 745 (2000)Google Scholar.

10 Symposium, Testing and Telling?: Implications for Genetic Privacy, Family Disclosure and the law, 1 J. Health Care L. & POL'Y 301 (1998)Google Scholar.

11 Symposium, Workshop on the BRCA1 Breast Cancer Gene in the Jewish Population 7 Health Matrix l (1997).Google Scholar

12 Symposium, Genetic Technology: Social Values and Personal Autonomy in the 21st Century, 34 Wake Forest L. Rev. 557 (1999).Google Scholar

13 Symposium, Legal Disputes Over Body Tissue, 75 Chi.-Kent L. Rev. 3 (1999).Google Scholar

14 Symposium, International Health Law, 33 HOUS. L. Rev. 1283 (1997)Google Scholar.

15 Symposium, Communities of Color and Genetic Testing: Purpose, Voice & Values, 27 HALL L. Rev. 887 (1997)Google Scholar.

16 Aubrey Milunsky, Your Genetic Destiny: Know Your Genes, Secure Your Health, Your Life (2001).Google Scholar

17 See, e.g., Tanzi, Rudolph E. & Parson, Ann B ., Decoding Darkness: The Search For Genetic Causes Of Alzheimer'S Disease (2000)Google Scholar.

18 See generally Francis Fukuyama, Our Posthuman Future: Consequences Of the Biotechnology Revolution (2002)Google Scholar.

19 Sheryl Gay Stolberg,House Republicans Press Senate on Cloning, N.Y. Times, May 15, 2002Google Scholar, at A21.

20 Annas, George J. et.al.,Protecting the Endangered Human: Toward an International Treaty Prohibiting Cloning and Inheritable Alterations, 28 Am. J.L. & Med. 151, 170 (2002)Google Scholar.

21 Mehlman, Maxwell J. & Rabe, Kirsten, Any DNA to Declare? Regulating Offshore Access to Genetic Enhancement, 28 Am. J.L. & Med. 179, 182 (2002).Google Scholar

22 Id. at 212.

23 Anderlik, Mary R. & Rothstein, Mark A. ,DNA-Based Identity Testing and the Future of the Family, 28 Am. J.L. & Med. 215, 217-18.Google Scholar

24 Id. at 217.

25 For a lyrical tribute to the impact a nurturing (step)father can make to his (step)son's life, see Eric Steel,My Father, My Architect, N.Y. Times, June 16, 2002, § 6 (Magazine), 66Google Scholar.

26 Anderlik & Rothstein, supra note 23, at 224-25.

27 Suter, supra note 4, at 250.

28 See The Genetic Nondiscrimination in Health Insurance and Employment Act, S. 318, 107th Cong. (2001); H.R. 602, 107th Cong. (2001).

29 Genetic Testing Gets Backing from Aetna: Insurer Asks Rivals to Back Anti-Bias Bill, BOSTON GLOBE, June 19, 2002, at C6 (quoting Aetna Chief Executive Dr. John W. Rowe).

30 Press Release, E.E.O.C., EEOC Petitions Court to Ban Genetic Testing of Railroad Workers in First EEOC Case Challenging Genetic Testing Under Americans with Disabilities Act (Feb. 9, 2001), available at http://www.eeoc.gov/press/2-9-01-c.html.

31 An Act Relative to Insurance and Genetic Testing and Privacy, 2000 Mass. Acts 254.

32 Health Insurance Portability and Accountability Act of 1996, Pub. L. No. 104-191, 110 Stat. 1936, 2023 (codified in scattered sections of 26 U.S.C., 28 U.S.C. and 42 U.S.C.).

33 Kulynych, Jennifer & Korn, David ,Use and Disclosure of Health Information in Genetic Research: Weighing the Impact of the New Federal Medical Privacy Rule, 28 Am. J.L. & Med. 309, 309 (2002)Google Scholar (quoting Charles A. Welch).