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Re-thinking and re-positioning ‘being in the moment’ within a continuum of moments: introducing a new conceptual framework for dementia studies

Published online by Cambridge University Press:  04 September 2020

John David Keady Open the ORCID record for John David Keady [Opens in a new window] ,
Sarah Campbell ,
Andrew Clark ,
Robyn Dowlen Open the ORCID record for Robyn Dowlen [Opens in a new window] ,
Ruth Elvish ,
Lesley Jones ,
Jackie Kindell ,
Caroline Swarbrick  and
Sion Williams
John David Keady*
Affiliation:
Division of Nursing, Midwifery and Social Work/Greater Manchester Mental Health NHS Foundation Trust, The University of Manchester, Manchester, UK
Sarah Campbell
Affiliation:
Department of Social Care and Social Work, Manchester Metropolitan University, Manchester, UK
Andrew Clark
Affiliation:
School of Health and Society, University of Salford, Salford, UK
Robyn Dowlen
Affiliation:
Centre for Cultural Value, School of Performance and Cultural Industries, University of Leeds, Leeds, UK
Ruth Elvish
Affiliation:
Division of Nursing, Midwifery and Social Work, The University of Manchester, UK
Lesley Jones
Affiliation:
School of Health and Society, University of Salford, Salford, UK
Jackie Kindell
Affiliation:
Pennine Care NHS Foundation Trust, Ashton-under-Lyne, UK
Caroline Swarbrick
Affiliation:
Centre for Ageing Research, Division of Health Research, Lancaster University, Lancaster, UK
Sion Williams
Affiliation:
School of Health Sciences, Bangor University, Bangor, UK
*
*Corresponding author. Email: [email protected]
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Abstract

This article draws upon six social research studies completed by members of the Dementia and Ageing Research Team at The University of Manchester and their associated networks over an eight-year period (2011–2019) with the aim of constructing a definition of ‘being in the moment’ and situating it within a continuum of moments that could be used to contextualise and frame the lived experience of dementia. Using the approach formulated by Pound et al. (2005) in synthesising qualitative studies, we identified this continuum of moments as comprising four sequential and interlinked steps: (a) ‘creating the moment’, defined as the processes and procedures necessary to enable being in the moment to take place – the time necessary for this to occur can range from fleeting to prolonged; (b) ‘being in the moment’, which refers to the multi-sensory processes involved in a personal or relational interaction and embodied engagement – being in the moment can be sustained through creativity and flow; (c) ‘ending the moment’, defined as when a specific moment is disengaged – this can be triggered by the person(s) involved consciously or subconsciously, or caused by a distraction in the environment or suchlike; and (d) ‘reliving the moment’, which refers to the opportunity for the experience(s) involved in ‘being in the moment’ to be later remembered and shared, however fragmentary, supported or full the recall.

Type
Article
Information
Ageing & Society , Volume 42 , Issue 3 , March 2022 , pp. 681 - 702
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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Footnotes

†

Present or former member of the Dementia and Ageing Research Team, The University of Manchester, UK

References

Bellass, S, Balmer, A, May, V, Keady, J, Buse, C, Capstick, A, Burke, L, Bartlett, R and Hodgson, J (2019) Broadening the debate on creativity and dementia: a critical approach. Dementia: The International Journal of Social Research and Practice 18, 2799–2820.CrossRefGoogle ScholarPubMed
Braun, V and Clarke, V (2019) Reflecting on reflexive thematic analysis. Qualitative Research in Sport, Exercise and Health 11, 589–597.CrossRefGoogle Scholar
Brotherhood, E, Ball, P, Camic, PM, Evans, C, Fox, N, Murphy, C, Walsh, F, West, J, Windle, G, Billiald, S and Firth, N (2017) Preparatory planning framework for Created Out of Mind: shaping perceptions of dementia through art and science. Wellcome Open Research 2, Article 108.CrossRefGoogle ScholarPubMed
Bryden, C (1998) Who Will I Be When I Die? London: Jessica Kingsley Publishers.Google Scholar
Bryden, C (2005) Dancing with Dementia: My Story of Living Positively with Dementia. London: Jessica Kingsley Publishers.Google Scholar
Calvert, L, Keady, J, Khetani, B, Riley, C, Open Doors Research Group and Swarbrick, C (2020) ‘…this is my home and my neighbourhood with my very good and not so good memories’: the story of autobiographical place-making and a recent life with dementia. Dementia: The International Journal of Social Research and Practice 19, 111–128.CrossRefGoogle Scholar
Campbell, S (2019) Atmospheres of Dementia Care: Stories Told Through the Bodies of Men (Doctoral thesis). University of Manchester, Manchester, UK.Google Scholar
Campbell, S, Clark, A, Keady, J, Kullberg, A, Manji, K, Rummery, K and Ward, R (2019) Participatory social network map making with family carers of people living with dementia. Methodological Innovations. Available online doi:10.1177/2059799119844445.CrossRefGoogle Scholar
Clark, A (2017) Seeing life? Working with the visual to understand landscapes of community. International Review of Qualitative Research 10, 190–210.CrossRefGoogle Scholar
Clarke, C, Wilkinson, H, Watson, J, Wilcockson, J, Kinnaird, L and Williamson, T (2018) A seat around the table: participatory data analysis with people living with dementia. Qualitative Health Research 28, 1421–1433.CrossRefGoogle ScholarPubMed
Csikszentmihalyi, M (1996) Creativity: Flow and the Psychology of Discovery and Invention. New York, NY: Harper Collins.Google Scholar
Csikszentmihalyi, M (1997) Finding Flow: The Psychology of Engagement with Everyday Life. New York, NY: Basic Books.Google Scholar
Csikszentmihalyi, M (2014) Flow and the Foundations of Positive Psychology. New York, NY: Springer.CrossRefGoogle Scholar
Department of Health (1983) Mental Health Act. London: HMSO.Google Scholar
Department of Health (2012) Prime Minister's Challenge on Dementia: Delivering Major Improvements in Dementia Care and Research by 2015. London: Department of Health.Google Scholar
Dowlen, R (2019) The ‘In the Moment’ Musical Experiences of People with Dementia: A Multiple-case Study Approach (Doctoral thesis). University of Manchester, Manchester, UK.Google Scholar
Gabb, J and Fink, J (2015) Telling moments and everyday experience: multiple methods research on couple relationships and personal lives. Sociology 49, 970–987.CrossRefGoogle ScholarPubMed
Georgakopoulou, A (2019) Sharing the moment as small stories: the interplay between practices and affordances in the social-media curation of lives. In De Fina, A and Perrino, A (eds). Storytelling in the Digital World. Amsterdam: John Benjamins, pp. 311–333.Google Scholar
Giddens, A (1991) Modernity and Self-identity: Self and Society in the Late Modern Age. Cambridge: Polity Press.Google Scholar
Gridley, K, Brooks, J, Birks, Y, Baxter, K and Parker, G (2016) Improving care for people with dementia: development and initial feasibility study for evaluation of life story work in dementia care. Health Services and Delivery Research 4, 23.CrossRefGoogle Scholar
Harding, E, Wait, S and Scrutton, J (2015) The State of Play in Person-centred Care: A Pragmatic Review About Person-centred Care is Defines, Applied and Measured Featuring Selected Key Contributors and Case Studies Across the Field. London: The Health Foundation. Available at http://www.healthpolicypartnership.com/wp-content/uploads/International-Environment-Scan-on-Person-Centred-Care-18th-Dec-FINAL.pdf.Google Scholar
Heron, J (1996) Co-operative Inquiry: Research into the Human Condition. London: Sage.Google Scholar
Hoge, EA, Bui, E, Marques, L, Metcalf, CA, Morris, LK, Robinaugh, DJ, Worthington, JJ, Pollack, MH and Simon, NM (2013) Randomized controlled trial of mindfulness meditation for generalized anxiety disorder: effects on anxiety and stress reactivity. Journal of Clinical Psychiatry 74, 786–792.CrossRefGoogle ScholarPubMed
Johnson, A (2010) Learning lessons: how I live with my Alzheimer's. Journal of Mental Health Training, Education and Practice 5, 7–9.CrossRefGoogle Scholar
Jonas-Simpson, C, Mitchell, GJ, Carson, J, Whyte, C, Dupuis, S and Gillies, J (2012) Phenomenological shifts for healthcare professionals after experiencing a research-based drama on living with dementia. Journal of Advanced Nursing 68, 1944–1955.CrossRefGoogle ScholarPubMed
Jones, L (2019) Exploring the Meaning, Presentation and Assessment of Complexity in Mental Health NHS Dementia Inpatient Wards: An Interpretive Description Study (Doctoral thesis). University of Manchester, Manchester, UK.Google Scholar
Killick, J (2016) Creativity and dementia. In Clarke, C and Wolverson, E (eds). Positive Psychology Approaches to Dementia. London: Jessica Kingsley Publishers, pp. 175–195.Google Scholar
Killick, J and Allan, K (2001) Communication and the Care of People with Dementia. Buckingham, UK: Open University Press.Google Scholar
Kindell, J (2015) Interaction-focussed Life Story Work in Semantic Dementia: A Mixed Methods Study (Doctoral thesis). University of Manchester, Manchester, UK.Google Scholar
Kindell, J, Wilkinson, R and Keady, J (2019) From conversation to connection: a cross-case analysis of life-story work with five couples where one partner has semantic dementia. Ageing & Society 39, 2322–2345.CrossRefGoogle Scholar
Kitwood, T (1990 a) Understanding senile dementia: a psychobiographical approach. Free Associations 1, 60–76.Google Scholar
Kitwood, T (1990 b) The dialectics of dementia: with particular reference to Alzheimer's disease. Ageing & Society 10, 177–196.CrossRefGoogle Scholar
Kitwood, T (1997) Dementia Reconsidered: The Person Comes First. Buckingham, UK: Open University Press.Google Scholar
Kitwood, T and Bredin, M (1992) Towards a theory of dementia care: personhood and well-being. Ageing & Society 12, 269–287.CrossRefGoogle ScholarPubMed
Kitwood, T and Brooker, D (2019) Dementia Reconsidered, Revisited: The Person Still Comes First. Buckingham, UK: Open University Press.Google Scholar
Kremer-Sadlik, T and Paugh, A (2007) Everyday moments: finding ‘quality time’ in American working families. Time and Society 16, 287–308.CrossRefGoogle Scholar
Mason, J (2018) Affinities: Potent Connections in Personal Life. London: John Wiley & Sons.Google Scholar
National Institute for Health and Care Excellence (2018) Dementia: Assessment, Management and Support for People Living with Dementia and Their Carers. NICE Guideline. Available at http://www.nice.org.uk/guidance/ng97.Google Scholar
Noblit, GW and Hare, RD (1988) Meta-ethnography: Synthesizing Qualitative Studies. London: Sage.CrossRefGoogle Scholar
Pound, P, Britten, N, Morgan, M, Yardley, L, Pope, C, Daker-White, G and Campbell, R (2005) Resisting medicines: a synthesis of qualitative studies of medicine taking. Social Science & Medicine 61, 133–155.CrossRefGoogle ScholarPubMed
Sabat, SR (2001) The Experience of Alzheimer's Disease: Life Through a Tangled Veil. Oxford: Blackwell Publishers.Google Scholar
Silvia, PJ, Beaty, RE, Nusbaum, EC, Eddington, KM, Levin-Aspenson, H and Kwapil, TR (2014) Everyday creativity in daily life: an experience-sampling study of ‘little-c’ creativity. Psychology of Aesthetics, Creativity and the Arts 8, 183–188.CrossRefGoogle Scholar
Simonton, DK (2013) What is a creative idea? Little-c versus Big-C creativity. In Thomas, K and Chan, J (eds). Handbook of Research on Creativity. Cheltenham, UK: Edward Elgar Publishing, pp. 69–83.Google Scholar
Swarbrick, CM, Open Doors, EDUCATE, Davis, K and Keady, J (2019) Visioning change: co-producing a model of involvement and engagement in research (Innovative Practice). Dementia: The International Journal of Social Research and Practice 18, 3165–3172.CrossRefGoogle Scholar
Tipper, B (2013) Moments of being and ordinary human–animal encounters. Virginia Woolf Miscellany 84, 14–16.Google Scholar
Ward, R, Clark, A, Campbell, S, Graham, B, Kullberg, A, Manji, K, Rummery, K and Keady, J (2018) The lived neighborhood: understanding how people with dementia engage with their local environment. International Psychogeriatrics 30, 867–880.CrossRefGoogle ScholarPubMed
Wong, SYS, Mak, WWS, Cheung, EYL, Ling, CYM, Tang, LWK, Wong, RLP, Lo, HHM, Mercer, S and Ma, HSW (2011) A randomized, controlled clinical trial: the effect of mindfulness-based cognitive therapy on generalized anxiety disorder among Chinese community patients: protocol for a randomized trial. BMC Psychiatry 11, 187.CrossRefGoogle ScholarPubMed
Woods, B, O'Philbin, L, Farrell, EM, Spector, AE and Orrell, M (2018) Reminiscence therapy for dementia. Cochrane Database of Systematic Reviews 3, CD001120.Google ScholarPubMed
Zeilig, H, West, J and van der Byl Williams, M (2018) Co-creativity: possibilities for using the arts with people with a dementia. Quality in Ageing and Older Adults 19, 135–145.CrossRefGoogle Scholar
Zeilig, H, Tischler, V, van der Byl Williams, M, West, J and Strohmaier, S (2019) Co-creativity, well-being and agency: a case study analysis of a co-creative arts group for people with dementia. Journal of Aging Studies 49, 16–24.CrossRefGoogle Scholar