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Making Sense of Dementia: Carers' Perceptions

Published online by Cambridge University Press:  14 November 2008

Janet Askham
Janet Askham
Affiliation:
Age Concern Institute of Gerontology, King's College London, Cornwall House Annexe, London SE1 8TX.
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Abstract

This paper is about how the informal care givers of people recently diagnosed as suffering from dementia perceive and describe that condition. Data are drawn from semi-structured interviews with 106 such care givers (mainly adult children and spouses) carried out in a London Borough and a southern English market town. People's accounts of how they defined what was happening to their relative (his/her condition) could be divided into several categories; these are shown to be based on a number of different parameters: for example, normal versus abnormal; orderly versus unpredictable; simple versus complex; an illness versus not an illness. The reasons for the wide variety of understandings of dementia are examined; it is suggested that it may be due to general lack of information or poor communication with health service staff; to a need to choose a definition which accords with a particular kind of relationship with the dementia sufferer; to the kind of self-presentation favoured by the sufferer; or to the desire to achieve certain kinds of end within particular social contexts.

Keywords

Carersdementiainterpretationmeaningrelatives
Type
Research Article
Information
Ageing & Society , Volume 15 , Issue 1 , March 1995 , pp. 103 - 114
Copyright
Copyright Cambridge University Press 1995

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References

Askham, J. and Thompson, C. 1990. Dementia and Home Care, ACIOG Research Papers No. 5, ACE Books, London.Google Scholar
Gubrium, J. F. 1986. Old timers and Alzheimer's: the Descriptive Organization of Senility. Jai Press Inc., Greenwich, Connecticut.Google Scholar
Gubrium, J. F. 1987. Structuring and de-structuring the course of illness: the Alzheimer's disease experience. Sociology of Health and Illness, 9, 1, 1–24.Google Scholar
Gubrium, J. F. and Lynott, R.J. 1985. Alzheimer's disease as biographical work. In Peterson, W. A. and Quadagno, J. (eds), Social Bonds in Later Life, Sage, Beverley Hills.Google Scholar
Kuypers, J. and Bengtson, V. 1990. Toward understanding health in older families impacted by catastrophic illness. In Brubaker, T. (ed) Family Relationships in Later Life, second edition. Sage, London.Google Scholar
Lynott, R.J. 1983. Alzheimer's disease and institutionalisation: the ongoing construction of a decision. Journal of Family Issues, 4, 559–574.Google Scholar
Morgan, D. and Laing, G. 1991. The diagnosis of Alzheimer's disease: spouses' perspectives. Qualitative Health Research, 1, 3, 370–388.Google Scholar
Pollitt, P., Anderson, I. and O'Connor, D. 1991. For better or for worse: the experience of caring for an early dementing spouse. Ageing and Society, 11, 4, 443–469.Google Scholar
Sabat, S. and Harré, R. 1992. The construction and deconstruction of self in Alzheimer's disease. Ageing and Society, 12, 4, 443–461.Google Scholar
Stores, G. 1987. Organic mental states. In Weatherall, D. J., Ledingham, J. G. G. and Warrell, D. A. (eds), Oxford Textbook of Medicine, second edition, Oxford Medical Publications, Oxford University Press, Oxford.Google Scholar
Ungerson, C. 1983. Women and caring skills, tasks and taboos. In Gamarnikow, E., Morgan, D., Purvis, J. and Taylorson, D. (eds) The Public and the Private. Heinemann, London.Google Scholar
Ungerson, C. 1987. Policy is Personal: Sex, Gender and Informal Care. Tavistock, London.Google Scholar