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Living with Parkinson's disease – perceptions of invisibility in a photovoice study

Published online by Cambridge University Press:  30 January 2017

KERSTIN ROGER ,
MONIKA WETZEL  and
LESLIE PENNER
KERSTIN ROGER*
Affiliation:
Community Health Sciences, University of Manitoba, Winnipeg, Canada.
MONIKA WETZEL
Affiliation:
Policy Analyst, Manitoba Health Care Branch, Winnipeg, Canada.
LESLIE PENNER
Affiliation:
Clinical Coordinator, Sumac Place, Gibsons, Canada.
*
Address for correspondence: Kerstin Roger, Community Health Sciences, University of Manitoba, 220-35 Chancellor Circle, Winnipeg, Manitoba R3 T 2N2, Canada E-mail: [email protected]
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Abstract

Based on previous community research, we prioritise the need to understand better how experiences and feelings of invisibility could be shaped by relational dynamics, interfacing with service provision, and social forces, with the overarching view of understanding better the experiences of participants living with Parkinson's disease. A photovoice methodology was employed. A discussion of one case study of Bindy and Volta leads to a better understanding of how strong spousal support can significantly alter how one individual experiences and defines living with Parkinson's.

Keywords

Parkinson'squalitativespouse/familyphotovoice
Type
Article
Information
Ageing & Society , Volume 38 , Issue 5 , May 2018 , pp. 1041 - 1062
Copyright
Copyright © Cambridge University Press 2017 

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