Hostname: page-component-cd9895bd7-7cvxr Total loading time: 0 Render date: 2024-12-24T14:16:35.245Z Has data issue: false hasContentIssue false

Living Alone towards the End of Life

Published online by Cambridge University Press:  14 November 2008

Clive Seale
Affiliation:
Department of Sociology, Goldsmiths College, Lewisham Way, London, SE14 6NW, U.K.

Abstract

Drawing on the accounts given by 163 relatives, friends and others who knew a sample of people who lived alone in the last twelve months of their lives, this paper examines a variety of strategies used by speakers to maintain their moral identities. Respondents sought to locate themselves as members of a community of care by stressing their activity in surveillance of the living conditions of those who lived alone, describing their part in the orchestration of help by members of a team of professional and lay carers, and in conducting negotiations over the placement in institutions of people who failed to maintain adequate reputations for independent living. A variety of strategies for justifying or excusing placement decisions—including criticisms of the behaviour of the people who lived alone—are described. At the same time, the accounts are read as a resource for understanding the perspective of the people who lived alone. People who live alone towards the end of life face particularly pressing threats to their capacity to maintain meaning and purpose. Declining physical capacity threatens loss of control and the onset of social death, conspiring to undermine ontological security. The struggle to maintain a reputation for independence in the face of neighbourly surveillance for signs of slippage is described. The paper concludes by identifying a central dilemma for carers: how to provide care that allows its recipient to manage self-identity independently.

Type
Research Article
Copyright
Copyright © Cambridge University Press 1996

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

1 Giddens, A. 1991. Modernity and self-identity. Polity, Cambridge.Google Scholar

2 Finch, J. and Mason, J. 1993. Negotiating family responsibilities. Routledge, London.CrossRefGoogle Scholar

3 For example: Armstrong, D. 1983. Political anatomy of the body: medical knowledge in Britain in the twentieth century. Cambridge University PressGoogle Scholar; Rose, N. 1989. Governing the soul. Routledge, LondonGoogle Scholar; Nettleton, S. 1992. Power, pain and dentistry. Open University Press, Buckingham.Google Scholar

4 Krivo, L.J. and Mutchler, J. E. 1989. Elderly persons living alone: the effect of community context on living arrangements. Journal of Gerontology 44, 2, S55S62.CrossRefGoogle ScholarPubMed

5 Jones, D. A., Victor, C. R. and Vetter, N.J. 1985. The problem of loneliness in the elderly in the community: characteristics of those who are lonely and the factors related to loneliness. Journal of the Royal College of General Practitioners 35, 136139Google ScholarPubMed; Creecy, R. F., Berg, W. E. and Wright, R. 1985. Loneliness among the elderly: a causal approach. Journal of Gerontology 40, 4, 487493CrossRefGoogle ScholarPubMed; Hansson, R. O., Jones, W. H., Carpenter, B. N. and Remondet, J. H. 1986. Loneliness and adjustment to old age. International Journal of Aging and Human Development 24, 1, 4153CrossRefGoogle ScholarPubMed; Lee, G. R. and Ishii-Kuntz, M. 1987. Social interaction, loneliness and emotional well-being among the elderly. Research on Aging 9, 4, 459482.CrossRefGoogle ScholarPubMed

6 Seabrook, J. 1988. Old in a cold season. New Society 8th January, 89.Google Scholar

7 Kemp, F. M. and Acheson, R. M. 1989. Care in the community: elderly people living alone at home. Community Medicine. 11, 1, 2126Google ScholarPubMed; Sinclair, I., Crosbie, D., O'Connor, P., Stanforth, L. and Vickery, A. 1989. Bridging two worlds: social work and the elderly living alone. Avebury, Aldershot.Google Scholar

8 Henderson, A. S., Scott, R. and Kay, D. W. K. 1986. The elderly who live alone: their mental health and social relationships. Australian and New Zealand Journal of Psychiatry 20, 202209CrossRefGoogle ScholarPubMed; Magaziner, J., Cadigan, D. A., Hebel, J. R. and Parry, R. E. 1988. Health and living arrangements among older women: does living alone increase the risk of illness? Journal of Gerontology 43, 5, M127–M133.CrossRefGoogle ScholarPubMed

9 Muir Gray, J. A. 1977. Combating isolation: a role for volunteers? Modern Geriatrics March, 588Google Scholar; Larson, R., Zuzaneck, J., Mannell, R. 1985. Being alone versus being with people: disengagement in the daily experience of older adults. Journal of Gerontology 40, 3, 375381.CrossRefGoogle ScholarPubMed

10 Hadley, R. and Webb, A. 1974. Loneliness, social isolation and old people: some implications for social policy (Manifesto Series No. 25), Age Concern, London.Google Scholar

11 Power, B. 1980. Old and alone in Ireland. Society of St. Vincent de Paul, Dublin.Google Scholar

12 Rubinstein, R. L. 1986. Singular paths: old men living alone. Columbia University Press.Google Scholar

13 Cartwright, A. and Seale, C. F. 1990. The natural history of a survey: an account of the methodological issues encountered in a study of life before death. Kings Fund, London.Google Scholar

14 Seale, C. F. and Cartwright, A. 1994. The year before death. Avebury, Aldershot.Google Scholar

15 Data were analysed with the aid of ETHNOGRAPH, a computer package for the analysis of qualitative data. All data were coded, and searches made for negative instances that contradicted emerging categories, leading to modifications of the eventual coding scheme.

16 Hammersley, M. and Atkinson, P. 1983. Ethnography: principles in practice. Tavistock, London.Google Scholar

17 Seale, C. F. 1990. Caring for people who die: the experience of family and friends. Ageing and Society, 10, 4, 413428CrossRefGoogle Scholar. Reprinted In Seale, C. F. and Cartwright, A. 1994. The year before death. Avebury, Aldershot (Chapter 5).Google Scholar

18 Quantitative words like ‘the majority’, ‘some’ and ‘many’ are used in this report, as well as actual numbers, to indicate how common are particular instances in the qualitative data. This is intended to help the reader judge the weight to give these instances, and to avoid the danger of anecdotalism in focusing on those that are quantitatively rare. While these words are based on actual numbers of instances, the repetitive usage of numbers in this context would induce a spurious sense of precision. ‘The majority’ means more than 50%; ‘some’ means more than two; ‘many’ means more than 10.

19 Gubrium, J. F. 1986. The social preservation of mind: the Alzheimer's disease experience. Symbolic Interaction 9, 1, 3751.CrossRefGoogle Scholar