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Conceptualising trust in aged care

Published online by Cambridge University Press:  19 March 2020

Andrew Simon Gilbert Open the ORCID record for Andrew Simon Gilbert [Opens in a new window]
Andrew Simon Gilbert*
Affiliation:
National Ageing Research Institute, Melbourne, Australia Department of Social Inquiry, La Trobe University, Melbourne, Australia
*
Email: [email protected]
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Abstract

This article calls for a sociological understanding of the importance of trust to aged care. It connects existing theories of trust to empirical evidence from gerontology and nursing research. Trust is defined as a response to and management of social vulnerability. It is argued this makes trust a fundamental concept for understanding human service and social care institutions, including aged care. In light of Australia's Royal Commission into Aged Care Quality and Safety, as well as generational shifts in consumer expectations and care ethics, the article highlights four distinct yet interrelated forms of trust: interpersonal, institutional, organisational and public trust. All of these forms are shown to be critical in conceptualising and evaluating the perceived trust deficit facing contemporary aged-care systems, and existing evidence shows how these forms of trust can reinforce, conflict and misalign with each other. Efforts to rebuild trust in aged care at an organisational and institutional level should ensure mechanisms facilitate rather than hinder the formation of interpersonal trust relations between individual service users, their families and aged care staff. Broader social policy reforms must also consider and address the way cultural understandings of ageing, and media representations of aged care, have diminished the public's trust in the sector, and how the cycle of scandals, reviews and piecemeal reforms contributes to this.

Keywords

Australiaaged careinterpersonal trustinstitutional trustorganisational trustpublic trusttrustvulnerability
Type
Article
Information
Ageing & Society , Volume 41 , Issue 10 , October 2021 , pp. 2356 - 2374
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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References

Aged Care Quality and Safety Commission (2018) Guidance and Resources for Providers to Support the Aged Care Quality Standards. Available at https://www.agedcarequality.gov.au/sites/default/files/media/Guidance_%26_Resource_Quality_Standards.pdf.Google Scholar
Aged Care Workforce Strategy Taskforce (2018) A Matter of Care: Australia's Aged Care Workforce Strategy. Available at https://agedcare.health.gov.au/sites/default/files/documents/09_2018/aged_care_workforce_strategy_report.pdf.Google Scholar
Australian Institute of Health and Welfare (2017) Australia's Welfare 2017: In Brief. Available at https://www.aihw.gov.au/reports/australias-welfare/australias-welfare-2017-in-brief/contents/ageing-and-aged-care.Google Scholar
Bachmann, R and Inkpen, AC (2011) Understanding institutional-based trust building processes in inter-organizational relationships. Organization Studies 32, 281–301.CrossRefGoogle Scholar
Bachmann, R and Zaheer, A (eds) (2006) Handbook of Trust Research. Cheltenham, UK: Edward Elgar.CrossRefGoogle Scholar
Bachmann, R, Gillespie, N and Priem, R (2015) Repairing trust in organizations and institutions: toward a conceptual framework. Organization Studies 36, 1123–1142.CrossRefGoogle Scholar
Beard, RL (2008) Trust and memory: organizational strategies, institutional conditions and trust negotiations in specialty clinics for Alzheimer's disease. Culture, Medicine and Psychiatry 32, 11–30.CrossRefGoogle ScholarPubMed
Beck, U and Beck-Gernsheim, E (2002) Individualization: Institutionalized Individualism and its Social and Political Consequences. London: Sage.Google Scholar
Bidewell, JW and Chang, E (2011) Managing dementia agitation in residential aged care. Dementia 10, 299–315.CrossRefGoogle Scholar
Biggs, S and Lowenstein, A (2011) Generational Intelligence: A Critical Approach to Age Relations. London: Routledge.Google Scholar
Black, SP (2018) The ethics and aesthetics of care. Annual Review of Anthropology 47, 79–95.CrossRefGoogle Scholar
Boogaard, JA, Werner, P, Zisberg, A and van der Steen, JT (2017) Examining trust in health professionals among family caregivers of nursing home residents with advanced dementia. Geriatrics & Gerontology International 17, 2466–2471.CrossRefGoogle ScholarPubMed
Boscart, VM, Sidani, S, Poss, J, Davey, M, d'Avernas, J, Brown, P, Heckman, G, Ploeg, J and Costa, AP (2018) The associations between staffing hours and quality of care indicators in long-term care. BMC Health Services Research 18, 750.CrossRefGoogle ScholarPubMed
Bradshaw, SA, Playford, ED and Riazi, A (2012) Living well in care homes: a systematic review of qualitative studies. Age and Ageing 41, 429–440.CrossRefGoogle ScholarPubMed
Braithwaite, J (2001) Regulating nursing homes: the challenge of regulating care for older people in Australia. BMJ 323, 443–446.CrossRefGoogle ScholarPubMed
Braithwaite, J and Makkai, T (1994) Trust and compliance. Policing and Society 4, 1–12.CrossRefGoogle Scholar
Braithwaite, J, Makkai, T and Braithwaite, V (2007) Regulating Aged Care: Ritualism and the New Pyramid. Cheltenham, UK: Edward Elgar.CrossRefGoogle Scholar
Brookes, G, Harvey, K, Chadborn, N and Dening, T (2017) ‘Our biggest killer’: multimodal discourse representations of dementia in the British press. Social Semiotics 28, 371–395.CrossRefGoogle Scholar
Brown, PR and Meyer, SB (2015) Dependency, trust and choice? Examining agency and ‘forced options’ within secondary-healthcare contexts. Current Sociology 63, 729–745.CrossRefGoogle Scholar
Brownie, S and Horstmanshof, L (2012) Creating the conditions for self-fulfilment for aged care residents. Nursing Ethics 19, 777–786.CrossRefGoogle ScholarPubMed
Buch, ED (2015) Anthropology of aging and care. Annual Review of Anthropology 44, 277–293.CrossRefGoogle Scholar
Carnell, K and Paterson, R (2017) Review of National Aged Care Quality Regulatory Processes. Available at https://health.gov.au/resources/publications/review-of-national-aged-care-quality-regulatory-processes-report.Google Scholar
Chou, S-C, Boldy, DP and Lee, AH (2002) Resident satisfaction and its components in residential aged care. The Gerontologist 42, 188–198.CrossRefGoogle ScholarPubMed
Connolly, A (2018) Who cares? Four Corners (Television programme). Australian Broadcasting Corporation.Google Scholar
Cook, G and Brown-Wilson, C (2010) Care home residents’ experiences of social relationships with staff. Nursing Older People 22, 24–29.CrossRefGoogle ScholarPubMed
Cullen, D (2003) The Evolution of the Australian Government's Involvement in Supporting the Needs of Older People. Available at https://www.researchgate.net/publication/322305918.Google Scholar
Dinc, L and Gastmans, C (2013) Trust in nurse–patient relationships: a literature review. Nursing Ethics 20, 501–516.CrossRefGoogle ScholarPubMed
Driessen, A, van der Klift, I and Krause, K (2017) Freedom in dementia care? On becoming better bound to the nursing home. Etnofoor 29, 29–41.Google Scholar
Dwyer, LL, Andershed, B, Nordenfelt, L and Ternestedt, BM (2009) Dignity as experienced by nursing home staff. International Journal of Older People Nursing 4, 185–193.CrossRefGoogle ScholarPubMed
Dyer, SM, Liu, E, Gnanamanickam, ES, Milte, R, Easton, T, Harrison, SL, Bradley, CE, Ratcliffe, J and Crotty, M (2018) Clustered domestic residential aged care in Australia: fewer hospitalisations and better quality of life. Medical Journal of Australia 208, 433–438.CrossRefGoogle Scholar
Falk, H, Wijk, H, Persson, LO and Falk, K (2013) A sense of home in residential care. Scandinavian Journal of Caring Sciences 27, 999–1009.CrossRefGoogle ScholarPubMed
Faster Horses (2018) Inside Aged Care 2018 Report. Available at https://fasterhorses.consulting/products/.Google Scholar
Fine, MD (2006) A Caring Society? Care and the Dilemmas of Human Services in the 21st Century. London: Palgrave Macmillan.Google Scholar
Fossey, J, Ballard, C, Juszczak, E, James, I, Alder, N, Jacoby, R and Howard, R (2006) Effect of enhanced psychosocial care on antipsychotic use in nursing home residents with severe dementia: cluster randomised trial. BMJ 332, 756–761.CrossRefGoogle ScholarPubMed
Giddens, A (1990) The Consequences of Modernity. Cambridge, UK: Polity.Google Scholar
Gilbert, AS, Antoniades, J and Brijnath, B (2019) The symbolic mediation of patient trust: Transnational health-seeking among Indian-Australians. Social Science & Medicine 235, 112359.CrossRefGoogle ScholarPubMed
Gille, F, Smith, S and Mays, N (2017) Towards a broader conceptualisation of ‘public trust’ in the health care system. Social Theory & Health 15, 25–43.CrossRefGoogle Scholar
Gilleard, C and Higgs, P (2018) An enveloping shadow? The role of the nursing home in the social imaginary of the fourth age: aging, disability, and long-term residential care. In Chivers, S and Kriebernegg, U (eds), Care Home Stories: Aging, Disability, and Long-term Residential Care. Bielefeld, Germany: Transcript-Verlag, pp. 229–246.Google Scholar
Gillespie, N (2015) Survey measures of trust in organizational contexts: an overview. In Lyon, F, Möllering, G and Saunders, MNK (eds), Handbook of Research Methods on Trust. Cheltenham, UK: Edward Elgar, pp. 225–239.CrossRefGoogle Scholar
Gilson, L (2003) Trust and the development of health care as a social institution. Social Science & Medicine 56, 1453–1468.CrossRefGoogle ScholarPubMed
Groves, A, Thomson, D, McKellar, D and Procter, N (2017) The Oakden Report. SA Health, Department for Health and Ageing. Available at https://www.sahealth.sa.gov.au/wps/wcm/connect/public+content/sa+health+internet/resources/oakden+report+final.Google Scholar
Hall, MA, Dugan, E, Zheng, B and Mishra, AK (2003) Trust in physicians and medical institutions: what is it, can it be measured, and does it matter? Milbank Quarterly 79, 613–639.CrossRefGoogle Scholar
Hasham, N (2018) PM calls royal commission into aged care after inexcusable ‘failures’. Sydney Morning Herald, September 15. Available at https://www.smh.com.au/politics/federal/pm-calls-royal-commission-into-aged-care-after-inexcusable-failures-20180915-p5040n.html.Google Scholar
Higgs, P and Gilleard, C (2014) Frailty, abjection and the ‘othering’ of the fourth age. Health Sociology Review 23, 10–19.CrossRefGoogle Scholar
Hochschild, AR (2012) The Managed Heart: Commercialization of Human Feeling. Berkeley, CA: University of California Press.CrossRefGoogle Scholar
Hutchinson, M (2018) The crisis of public trust in governance and institutions: implications for nursing leadership. Journal of Nursing Management 26, 83–85.CrossRefGoogle ScholarPubMed
Ibrahim, JE (2019) Royal Commission into Aged Care Quality and Safety: the key clinical issues. Medical Journal of Australia 210, 439–441.CrossRefGoogle Scholar
Ibrahim, JE and Davis, M-C (2013) Impediments to applying the ‘dignity of risk’ principle in residential aged care services. Australasian Journal on Ageing 32, 188–193.CrossRefGoogle ScholarPubMed
Innes, A (2002) The social and political context of formal dementia care provision. Ageing & Society 22, 483–499.CrossRefGoogle Scholar
Jennings, B (2001) Freedom fading: on dementia, best interests, and public safety. Georgia Law Review 35, 593–619.Google ScholarPubMed
Kim, EJ and Buschmann, MT (1999) The effect of expressive physical touch on patients with dementia. International Journal of Nursing Studies 36, 235–243.CrossRefGoogle ScholarPubMed
King, D (2007) Rethinking the care-market relationship in care provider organisations. Australian Journal of Social Issues 42, 199–212.CrossRefGoogle Scholar
Kitwood, T (1997) Dementia Reconsidered: The Person Comes First. Buckingham, UK: Open University Press.Google Scholar
Kroeger, F (2011) Trusting organizations: the institutionalization of trust in interorganizational relationships. Organization 19, 743–763.CrossRefGoogle Scholar
Kroeger, F (2017) Facework: creating trust in systems, institutions and organisations. Cambridge Journal of Economics 41, 487–514.Google Scholar
Kroeger, F (2019) Unlocking the treasure trove: how can Luhmann's theory of trust enrich trust research? Journal of Trust Research 9, 110–124.CrossRefGoogle Scholar
Lambert, EG, Hogan, NL, Barton-Bellessa, SM and Jiang, S (2012) Examining the relationship between supervisor and management trust and job burnout among correctional staff. Criminal Justice and Behavior 39, 938–957.CrossRefGoogle Scholar
Lewis, JD and Weigert, A (1985) Trust as a social reality. Social Forces 63, 967–985.CrossRefGoogle Scholar
Luhmann, N (2013) Theory of Society, Vol. 2. Stanford, CA: Stanford University Press.Google Scholar
Luhmann, N (2017) Trust and Power. Cambridge: Polity.Google Scholar
Miller, EA, Livingstone, I and Ronneberg, CR (2017) Media portrayal of the nursing homes sector: a longitudinal analysis of 51 U.S. newspapers. The Gerontologist 57, 487–500.Google ScholarPubMed
Miller, EA, Ronneberg, CR and Livingstone, I (2018) The tone of nursing home portrayal in 51 newspapers in the United States. World Medical & Health Policy 10, 146–168.CrossRefGoogle Scholar
Minney, MJ and Ranzijn, R (2016) ‘We had a beautiful home … but I think I'm happier here’: a good or better life in residential aged care. The Gerontologist 56, 919–927.CrossRefGoogle ScholarPubMed
Misztal, BA (2012) Trust: acceptance of, precaution against and cause of vulnerability. In Sasaki, M and Marsh, RM (eds), Trust: Comparative Perspectives. Leiden, Netherlands: Brill, pp. 209–236.Google Scholar
Morgner, C (2018) Trust and society: suggestions for further development of Niklas Luhmann's theory of trust. Canadian Review of Sociology 55, 232–256.CrossRefGoogle ScholarPubMed
Nichols, P, Horner, B and Fyfe, K (2015) Understanding and improving communication processes in an increasingly multicultural aged care workforce. Journal of Aging Studies 32, 23–31.CrossRefGoogle Scholar
Nilsson, M (2019) Proximity and the trust formation process. European Planning Studies 27, 841–861.CrossRefGoogle Scholar
Nordstrom, K and Wangmo, T (2018) Caring for elder patients: mutual vulnerabilities in professional ethics. Nursing Ethics 25, 1004–1016.CrossRefGoogle ScholarPubMed
Nusem, E, Wrigley, C and Matthews, J (2017) Exploring aged care business models: a typological study. Ageing & Society 37, 386–409.CrossRefGoogle Scholar
Ostaszkiewicz, J, O'Connell, B and Dunning, T (2016) Fear and overprotection in Australian residential aged-care facilities: the inadvertent impact of regulation on quality continence care. Australasian Journal on Ageing 35, 119–126.CrossRefGoogle ScholarPubMed
Oudman, E and Veurink, B (2014) Quality of life in nursing home residents with advanced dementia: a 2-year follow-up. Psychogeriatrics 14, 235–240.CrossRefGoogle ScholarPubMed
Peace, S, Holland, C and Kellaher, L (2011) ‘Option recognition’ in later life: variations in ageing in place. Ageing & Society 31, 734–757.CrossRefGoogle Scholar
Phillipson, C (2013) Ageing. Cambridge: Polity Press.Google Scholar
Pickering, CEZ, Nurenberg, K and Schiamberg, L (2017) Recognizing and responding to the ‘toxic’ work environment: worker safety, patient safety, and abuse/neglect in nursing homes. Qualitative Health Research 27, 1870–1881.CrossRefGoogle ScholarPubMed
Popham, C and Orrell, M (2012) What matters for people with dementia in care homes? Aging & Mental Health 16, 181–188.CrossRefGoogle ScholarPubMed
Productivity Commission (2011) Caring for Older Australians. Available at https://www.pc.gov.au/inquiries/completed/aged-care/report/aged-care-volume1.pdf.Google Scholar
Rosemond, C, Hanson, LC and Zimmerman, S (2017) Goals of care or goals of trust? How family members perceive goals for dying nursing home residents. Journal of Palliative Medicine 20, 360–365.CrossRefGoogle ScholarPubMed
Rousseau, DM, Sitkin, SB, Burt, RS and Camerer, C (1998) Not so different after all: a cross-discipline view of trust. Academy of Management Review 23, 393–404.CrossRefGoogle Scholar
Royal Commission into Aged Care Quality and Safety (2019 a) A History of Aged Care Reviews. Available at https://agedcare.royalcommission.gov.au/publications/Documents/background-paper-8.pdf.Google Scholar
Royal Commission into Aged Care Quality and Safety (2019 b) Interim Report: Neglect. Available at https://agedcare.royalcommission.gov.au/publications/Pages/interim-report.aspx.Google Scholar
Royal Commission into Aged Care Quality and Safety (2019 c) Transcript of Proceedings. Available at https://agedcare.royalcommission.gov.au/hearings/Documents/transcripts-2019/transcript-20-february-2019.pdf.Google Scholar
Rozanova, J, Miller, EA and Wetle, T (2016) Depictions of nursing home residents in US newspapers: successful ageing versus frailty. Ageing & Society 36, 17–41.CrossRefGoogle ScholarPubMed
Runci, SJ, Eppingstall, BJ, van der Ploeg, ES and O'Connor, DW (2014) Comparison of family satisfaction in Australian ethno-specific and mainstream aged care facilities. Journal of Gerontological Nursing 40, 54–63.CrossRefGoogle ScholarPubMed
Ryan, AA and McKenna, H (2015) ‘It's the little things that count’. Families’ experience of roles, relationships and quality of care in rural nursing homes. International Journal of Older People Nursing 10, 38–47.CrossRefGoogle ScholarPubMed
Ryvicker, M (2011) Staff–resident interaction in the nursing home: an ethnographic study of socio-economic disparities and community contexts. Journal of Aging Studies 25, 295–304.CrossRefGoogle Scholar
Schirmer, W and Michailakis, D (2016) Loneliness among older people as a social problem: the perspectives of medicine, religion and economy. Ageing & Society 36, 1559–1579.CrossRefGoogle Scholar
Shapiro, SP (1987) The social control of impersonal trust. American Journal of Sociology 93, 623–658.CrossRefGoogle Scholar
Shin, JH (2015) Declining body, institutional life, and making home – are they at odds? The lived experiences of moving through staged care in long-term care settings. HEC Forum 27, 107–125.CrossRefGoogle ScholarPubMed
Skatssoon, J (2019) Report reveals falling trust in aged care. Community Care Review. Available at https://www.australianageingagenda.com.au/2019/09/18/report-reveals-fall-in-trust-in-aged-care-system/.Google Scholar
Smith, C (2019) Navigating the Maze: An Overview of Australia's Current Aged Care System. Royal Commission into Aged Care Quality and Safety. Available at https://agedcare.royalcommission.gov.au/publications/Documents/background-paper-1.pdf.Google Scholar
The Guardian (2018) Aged care royal commission will help ‘re-establish trust’, Morrison says. October 9. Available at https://www.theguardian.com/australia-news/2018/oct/09/aged-care-royal-commission-will-help-re-establish-trust-morrison-says.Google Scholar
Thelen, T, Thiemann, A and Roth, D (2014) State kinning and kinning the state in Serbian elder care programs. Social Analysis 58, 3, 107–123.CrossRefGoogle Scholar
Tuckett, A (2007) The meaning of nursing-home: ‘Waiting to go up to St. Peter, OK! Waiting house, sad but true’ – an Australian perspective. Journal of Aging Studies 21, 119–133.CrossRefGoogle Scholar
Tuckett, A, Parker, D, Eley, RM and Hegney, D (2009) ‘I love nursing, but..’ – qualitative findings from Australian aged-care nurses about their intrinsic, extrinsic and social work values. International Journal of Older People Nursing 4, 307–317.CrossRefGoogle ScholarPubMed
Turner, JH (2007) Human Emotions: A Sociological Theory. London: Routledge.CrossRefGoogle Scholar
Twigg, J (2000) Bathing – The Body and Community Care. London: Routledge.Google Scholar
van der Borg, WE, Verdonk, P, Dauwerse, L and Abma, TA (2017) Work-related change in residential elderly care: trust, space and connectedness. Human Relations 70, 805–835.CrossRefGoogle ScholarPubMed
Vassilev, I and Pilgrim, D (2007) Risk, trust and the myth of mental health services. Journal of Mental Health 16, 347–357.CrossRefGoogle Scholar
Ward, PR (2017) Improving access to, use of, and outcomes from public health programs: the importance of building and maintaining trust with patients/clients. Frontiers in Public Health 5, 22.CrossRefGoogle ScholarPubMed
Ward, PR (2019) Trust: what is it and why do we need it? In Jacobsen, MH (ed.), Emotions, Everyday Life and Sociology. London: Routledge, pp. 13–26.Google Scholar
Wells, Y and Solly, K (2018) Analysis of Consumer Experience Report Data: Final Report to the Australian Aged Care Quality Agency. La Trobe University. Available at https://www.agedcarequality.gov.au/sites/default/files/media/la_trobe_analysis_of_cer_data.pdf.Google Scholar