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Relatives of Persons Suffering from Dementia: Differences in the Burden

Published online by Cambridge University Press:  14 November 2008

Mia S. H. Duijnstee
Mia S. H. Duijnstee
Affiliation:
Department of Nursing Science, University of Utrecht, Postbox 80036, 3508 TA Utrecht, The Netherlands.
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Abstract

Partners and children play a key role in home care for persons suffering from dementia. When we compare the burdens placed on these relatives, we find large differences. On the one hand, these result from actual differences in the care situation. On the other, they arise from the differences in the way the people involved experience more or less comparable circumstances. To determine the sources of the differences in the burden on the relatives, a distinction was made between objective and subjective care-giver burden. Qualitative research, therefore, aimed to provide an understanding of the personal interpretation by the people involved. This was realised in about 40 case studies involving relatives.

Keywords

Qualitative researchcase studies of family members of patients with dementiadifferences between objective and subjective caregiver burdenintervening factors (coping, acceptance, motivation)determination of the burden of primary caregiversextending the supply of help
Type
Research Article
Information
Ageing & Society , Volume 14 , Issue 4 , December 1994 , pp. 499 - 519
Copyright
Copyright Cambridge University Press 1994

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