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A discourse of silence: professional carers reasoning about death and dying in nursing homes

Published online by Cambridge University Press:  11 January 2011

JANE ÖSTERLIND*
Affiliation:
School of Health and Medical Sciences, Örebro University, Örebro, Sweden. Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden.
GÖREL HANSEBO
Affiliation:
Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden.
JANICKE ANDERSSON
Affiliation:
Department of Social and Welfare Studies, Linköping University, Linköping, Sweden.
BRITT-MARIE TERNESTEDT
Affiliation:
Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden.
INGRID HELLSTRÖM
Affiliation:
Department of Social and Welfare Studies, Linköping University, Linköping, Sweden.
*
Address for correspondence: Jane Österlind, Department of Palliative Care Research, PO Box 111 89, Stockholm 100 61, Sweden. E-mail: [email protected]

Abstract

Nursing homes are a setting in which death and dying is common. How death and dying is articulated and the actions that take place in a nursing home constitute a discourse that guides the staff in their work. The aim of this study was to explore the discourse of death and dying in nursing homes from the perspective and understanding of the staff. The study draws on Foucault's discourse analysis. Data are from five focus-group discussions held with 28 staff of four different nursing homes in Sweden. The findings show that the discourse had three characteristics: (a) dying was silent and silenced, (b) emotions were pushed into the background, and (c) attentiveness to death arose after the moment of the elderly person's death. The structure of the discourse was characterised by a movement between two positions, avoiding and confronting death, the main focus being on avoidance. The articulation and practices of silence highlight a need to regard dying as a process that requires attention. One way to ensure appropriate attention could be to instil the philosophy of palliative care in nursing homes, including training and support for the staff in their work. The study demonstrates that nursing-home staff need more knowledge and support to enable them to feel that they do a good job.

Type
Articles
Copyright
Copyright © Cambridge University Press 2011

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References

Addington-Hall, J., Altmann, D. and McCanhy, M. 1998. Who gets hospice in-patient care? Social Science and Medicine, 46, 8, 1011–6.CrossRefGoogle Scholar
Ahmad, S. and O'Mahony, M. S. 2005. Where older people die: a retrospective population-based study. Quarterly Journal of Medicine, 98, 12, 865–70.CrossRefGoogle Scholar
Andersson-Segesten, K. 1989. The last period of life of the very old: a pilot study evaluating the psychological autopsy method. Scandinavian Journal of Caring Sciences, 3, 4, 177–81.CrossRefGoogle Scholar
Blomberg, K. and Sahlberg-Blom, E. 2007. Closeness and distance: a way of handling difficult situations in daily care. Journal of Clinical Nursing, 16, 2, 244–54.CrossRefGoogle ScholarPubMed
Buus, N. 2004. Nursing scholars appropriating new methods: the use of discourse analysis in scholarly nursing journals 1996–2003. Nursing Inquiry, 12, 1, 2733.CrossRefGoogle Scholar
Callahan, D. 1993. Pursuing a peaceful death. Hastings Center Report, 23, 4, 3238.CrossRefGoogle ScholarPubMed
Cheek, J. 2004. At the margins? Discourse analysis and qualitative research. Qualitative Health Research, 14, 8, 1140–50.CrossRefGoogle ScholarPubMed
Costello, J. 2006. Dying well: nurses' experiences of ‘good and bad’ deaths in hospital. Journal of Advanced Nursing, 54, 5, 594601.CrossRefGoogle ScholarPubMed
Crowe, M. 2005. Discourse analysis: towards an understanding of its place in nursing. Journal of Advanced Nursing, 5, 1, 5563.CrossRefGoogle Scholar
Davies, S. and Seymour, J. 2002. Historical and policy context. In Hockley, J. and Clark, D. (eds), Palliative Care for Older People in Care Homes. Open University Press, Buckingham, UK, 4–33.Google Scholar
Dunn, K., Otten, C. and Stephens, E. 2005. Nursing experience and the care of dying patients. Oncology Nursing Forum, 32, 1, 97–104.CrossRefGoogle ScholarPubMed
Dwyer, L.-L. 2008. Dignity in the End of Life. What Does it Mean to Older People and Staff? Doctoral dissertation, Örebro University, Örebro University Press, Örebro, Sweden.Google Scholar
Dwyer, L.-L., Nordenfelt, L. and Ternestedt, B.-M. 2009. Dignity as experienced by nursing-home staff. International Journal of Older People Nursing, 4, 3, 185–93.CrossRefGoogle ScholarPubMed
Fläckman, B., Fagerberg, I., Häggström, E., Kihlgren, A. and Kihlgren, M. 2007. Despite shattered expectations a willingness to care for elders remains with education and clinical supervision. Scandinavian Journal of Caring Sciences, 21, 3, 379–89.CrossRefGoogle ScholarPubMed
Foucault, M. 1971. Diskursens ordning [The Structure of Discourse]. Translation by M. Rosengren of L'ordre du discours (1993), Brutus Östlings Bokförlag Symposion, Stockholm.Google Scholar
Froggatt, K. and Payne, S. A. 2006. Survey of end-of-life-care in care homes: issues of definition and practice. Health and Social Care in Community, 14, 4, 341–8.CrossRefGoogle ScholarPubMed
Gomes, B. and Higginson, I. J. 2008. Where people die (1974–2030): past trends, future projections and implications for care. Palliative Medicine, 22, 1, 3341.CrossRefGoogle ScholarPubMed
Hallberg, I. R. 2004. Death and dying from old people's point of view: a literature review. Aging Clinical and Experimental Research, 16, 2, 87–103.CrossRefGoogle ScholarPubMed
Hallberg, I. R. 2006. Palliative care as a framework for older people's long term care. International Journal of Palliative Nursing, 12, 5, 224–9.CrossRefGoogle ScholarPubMed
Hockley, J. 2002. Organizational structures for enhancing standards of palliative care. In Hockley, J. and Clark, D. (eds), Palliative Care for Older People in Care Homes. Open University Press, Buckingham, UK, 165–81.Google Scholar
Howarth, D. 2000/2007. Diskurs [Discourse]. Liber, Malmö, Sweden.Google Scholar
Howarth, G. 2007. Death and Dying: A Sociological Introduction. Polity Press, Cambridge.Google Scholar
Jakobsson, E., Bergh, I., Gaston-Johansson, F., Stolt, C.-M. and Öhlén, J. 2006. The turning point: clinical identification of dying and reorientation of care. Journal of Palliative Medicine, 9, 6, 1348–58.CrossRefGoogle ScholarPubMed
James, I., Andershed, B. and Ternestedt, B.-M. 2007. A family's beliefs of cancer, death and dying in the end of life. Journal of Family Nursing, 13, 2, 226–52.CrossRefGoogle ScholarPubMed
Jamieson, L. and Williams, L. M. 2003. Focus group methodology: explanatory notes for the novice researcher. Contemporary Nurse, 14, 3, 271–80.CrossRefGoogle Scholar
Jenull, B. and Brunner, E. 2008. Death and dying in nursing homes: a burden for the staff? Journal of Applied Gerontology, 27, 2, 166–80.CrossRefGoogle Scholar
Karlsson, I., Fagerberg, I. and Ekman, S.-L. 2008. To both be like a captain and fellow worker of the caring team: the meaning of nurse assistants' expectations of registered nurses in Swedish residential care homes. International Journal of Older People Nursing, 3, 1, 3545.CrossRefGoogle Scholar
Kitzinger, J. 1995. Introducing focus groups. British Medical Journal, 311, 7000, 299302.CrossRefGoogle ScholarPubMed
Kristjanson, L. J., Walton, J. and Toye, C. 2005. End-of-life challenges in residential aged care facilities: a case for a palliative approach to care. International Journal of Palliative Nursing, 11, 3, 127–9.Google ScholarPubMed
Laclau, E. and Mouffe, C. 2001. Hegemony and Socialist Strategy: Towards a Radical Democratic Politics. Verso, London.Google Scholar
Lloyd-Williams, M., Sixsmith, A. and Sixsmith, J. 2007. The end of life: a qualitative study of the perceptions of people over the age of 80 on issues surrounding death and dying. Journal of Pain and Symptom Management, 34, 1, 60–6.CrossRefGoogle ScholarPubMed
Lo, R. S. K. and Woo, J. 2006. Palliative care in old age. Reviews in Clinical Gerontology, 16, 1, 3544.CrossRefGoogle Scholar
McCallum, J., Simson, L. A., Simson, J. and Friedland, Y. 2005. Patterns and predictors of nursing home placement over 14 years: the Dubbo Study of elderly Australians. Australian Journal on Aging, 24, 3, 169–73.CrossRefGoogle Scholar
McIlfatrick, S. and Johnston, D. 2007. Assessing palliative care needs: views of patients, informal carers and healthcare professionals. Journal of Advanced Nursing, 57, 1, 7786.CrossRefGoogle ScholarPubMed
McLafferty, I. 2004. Focus group interviews as a data collecting strategy. Journal of Advanced Nursing, 48, 2, 187–94.CrossRefGoogle ScholarPubMed
Meinow, B. 2008. Capturing health in the elderly population: complex health problems, mortality, and the allocation of home-help services. Dissertation, Stockholm University, Stockholm.Google Scholar
Ministry of Health and Social Affairs 2001. The Social Services Act 2001. Ministry of Health and Social Affairs, Stockholm, 453. Available online at http://www.sweden.gov.se/content/1/c6/04/34/02/9d488738.pdf [Accessed 3 February 2010].Google Scholar
Nilsson, M. 2009. Våra äldre. Om konstruktioner av äldre i offentligheten [Our Older People: On the Social Construction of Older People in Public Discourse]. Doctoral dissertation, Linköping University, Linköping University Press, Linköping, Sweden. (Abstract in English)Google Scholar
Österlind, J. 2009. När livsrummet krymper. Vård och omsorg av äldre personer i livets slutskede [When Living Space Shrinks – Caring for Older People at the End of Life]. Doctoral dissertation, Örebro University, Örebro University Press, Örebro, Sweden. (Abstract and summary in English).Google Scholar
Österlind, J., Hansebo, G., Lindqvist, R. and Ternestedt, B.-M. 2009. Moving on a roundabout at the end-of-life – what counts? Waiting times for transfer to sheltered accommodation for older people in Sweden. Health Policy, 91, 2, 183–8.CrossRefGoogle ScholarPubMed
Potter, J. 1996. Representing Reality: Discourse, Rhetoric and Social Construction. Sage, London.CrossRefGoogle Scholar
Sainio, J. and Hansebo, G. 2008. Att flytta till sjukhem. En ny fas i livet- en intervjustudie [Moving to a nursing-home. A new phase in life: an interview study]. Vård i Norden, 28, 2, 2731.Google Scholar
Seymour, J., Whiterspoon, R., Gott, M., Ross, H., Payne, S. and Owen, T. 2005. End of Life Care: Promoting Comfort, Choice and Wellbeing for Older People at the End of Their Lives. Policy Press with Help the Aged, Bristol, UK.Google Scholar
Steers, J., Brereton, L. and Ingleton, C. 2007. Palliative care for all? A review of the evidence in community hospitals. International Journal of Palliative Nursing, 13, 8, 392–9.CrossRefGoogle ScholarPubMed
Traynor, M. 2006. Discourse analysis: theoretical and historical overview and review of papers in the Journal of Advanced Nursing 1996–2004. Journal of Advanced Nursing, 54, 1, 6272.CrossRefGoogle ScholarPubMed
Walter, T. 1994. The Revival of Death. Routledge, London.Google Scholar
Whitaker, A. 2004. Livets sista boning: anhörigskap, åldrande och död på sjukhem [The Last Home: Family Ties, Ageing and Death in a Nursing Home]. Doctoral dissertation, Stockholm University, Akademitryck AB, Edsbruk, Sweden. (Abstract in English)Google Scholar
World Health Organization (WHO) 2002. Active Ageing: A Policy Framework. WHO, Geneva. Available online at http://whqlibdoc.who.int/hq/2002/WHO_NMH_NPH_02.8.pdf [Accessed 17 September 2008].Google Scholar
World Health Organization (WHO) 2004. Better Palliative Care for Older People. WHO, Geneva. Available online at http://www.euro.who.int/en/what-we-publish/abstracts/better-palliative-care-for-older-people [Accessed 18 August 2010].Google Scholar
Yates, P. and Stetz, K. M. 1999. Families' awareness of and response to dying. Oncology Nursing Forum, 26, 1, 113–20.Google ScholarPubMed