Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies

doi:10.1017/9781108759083

Human Germline Genome Modification and the Right to Science

A Comparative Study of National Laws and Policies

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Baylis, Françoise Darnovsky, Marcy Hasson, Katie and Krahn, Timothy M. 2020. Human Germline and Heritable Genome Editing: The Global Policy Landscape. The CRISPR Journal, Vol. 3, Issue. 5, p. 365.

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2020. Books Received. American Journal of International Law, Vol. 114, Issue. 2, p. 349.

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Dupan, Anna Bikbulatova, Juliana and Fetyukov, F.V. 2022. Instruments for the protection of human rights violated during the study of human genome. SHS Web of Conferences, Vol. 134, Issue. , p. 00019.

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Nicol, Dianne Niemeyer, Simon Paxton, Rebecca and Rudge, Christopher 2023. Points to consider in the development of national human genome editing policy. Cambridge Prisms: Precision Medicine, Vol. 1, Issue. ,

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Edited by Andrea Boggio, Bryant University, Rhode Island, Cesare P. R. Romano, Loyola Marymount University, California, Jessica Almqvist, Universidad Autónoma de Madrid

Publisher:: Cambridge University Press
Online publication date:: November 2019
Print publication year:: 2020
Online ISBN:: 9781108759083
DOI:: https://doi.org/10.1017/9781108759083

Subjects:: Medico-Legal, Bioethics and Health Law, Law, Comparative Law

32.99 (GBP)

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The advent of the CRISPR/Cas9 class of genome editing tools is transforming not just science and medicine, but also law. When the genome of germline cells is modified, the modifications could be inherited, with far-reaching effects in time and scale. Legal systems are struggling with keeping up with the CRISPR revolution and both lawyers and scientists are often confused about existing regulations. This book contains an analysis of the national regulatory framework in eighteen selected countries. Written by national legal experts, it includes all major players in bioengineering, plus an analysis of the emerging international standards and a discussion of how international human rights standards should inform national and international regulatory frameworks. The authors propose a set of principles for the regulation of germline engineering, based on international human rights law, that can be the foundation for regulating heritable gene editing both at the level of countries as well as globally.

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Human Germline Genome Modification and the Right to Science

A Comparative Study of National Laws and Policies

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