Other aspects of community neurological rehabilitation

Michael P. Barnes; Harriet Radermacher

doi:10.1017/CBO9780511544859.009

9 - Other aspects of community neurological rehabilitation

Published online by Cambridge University Press: 11 August 2009

Michael P. Barnes and

Harriet Radermacher

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Michael P. Barnes: Affiliation:
University of Newcastle upon Tyne
Harriet Radermacher: Affiliation:
University of Newcastle upon Tyne

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Summary

Overview

If someone has been diagnosed with multiple sclerosis, sustained a stroke or is living with cerebral palsy, medical and therapeutic intervention is likely to form a substantial part of his or her life. The extent to which it does is dependent on the individual. At the acute end of the spectrum, health-related intervention is likely to be a priority as individuals may be in critical conditions. In the community, individuals may still have impairment-related needs, but they are likely to extend beyond the medical domain.

Neurological impairments not only affect an individual's physical and emotional health, but they can impact on many other areas of life. This includes employment, housing, education, transport and sport and leisure activities. Informal support networks, such as family and friends, may also play a significant part in the lives of disabled people. While rehabilitative practice focuses on health-related needs, many governmental agencies in the North are obliged to meet these additional social needs, including the needs of carers. In the past these needs have often been met in isolation in a number of different ways owing to the organizational structure of the different agencies involved and the source of funding. This has resulted in long delays, bad coordination, lack of communication, gaps and overlap in services, inefficient use of limited resources, inappropriate services, lack of flexibility and ultimately confusion for the client (Beardshaw, 1988).

Type: Chapter
Information: Community Rehabilitation in Neurology , pp. 170 - 195

DOI: https://doi.org/10.1017/CBO9780511544859.009 [Opens in a new window]

Publisher: Cambridge University Press

Print publication year: 2003

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References

Allen, L. R. and Beattie, R. J. (1984). The role of leisure as an indicator of overall satisfaction with community life. Journal of Leisure Research 2, 99–109CrossRef Google Scholar

Argyle, M. (1967). The Psychology of Interpersonal Behaviour. London: Penguin Books

Barnes, M. P. and Hoyle, E. A. (1995). Driving assessment – a case of need. Clinical Rehabilitation 9, 115–20CrossRef Google Scholar

Bathurst, L. (1999). Re: Brain Injury. Disability research mailbase. http://www.mailbase.ac.uk/lists/disability-research/1999-10/0274.html

Bathurst, L. (2001). Re: The language and baggage of caregiving. Disability research mailbase. http://www.jiscmail.ac.uk/cgi-bin/wa.exe?A2=ind0103andL=disability-researchandP=R5275andm=5471

Beardshaw, V. (1988). Last on the List: Community Services for People with Physical Disabilities. London: King's Fund Institute

Beatty, P. W., Richmond, G. W., Tepper, S. and DeJong, G. (1998). Personal assistance for people with physical disabilities: consumer-direction and satisfaction with services. Archives of Physical Medicine and Rehabilitation 79, 674–7CrossRef Google Scholar PubMed

Berner, L. M. (1998). The role of a sole caretaker. Topics in Stroke Rehabilitation 5, 71–2Google Scholar

Betz, N. and Hackett, G. (1981). The relationship of career related self efficacy expectations to perceived career options in college women and men. Journal of Counselling Psychology 28, 399–410CrossRef Google Scholar

Bowling, A. C. (2001). Alternative Medicine and Multiple Sclerosis. New York: Demos

Brandriet, L. M., Lyons, M. and Bentley, J. (1994). Perceived needs of poststroke elders following termination of home health services. Nursing and Health Care 15, 514–20Google Scholar PubMed

Branfield, F. and Maynard Campbell, S. (2000). Common Barriers and their Removal – Report of Research into Barriers to Employment and Training Faced by Disabled People and their Employers and Training Providers. Manchester: Breakthrough UK Ltd

Caradoc-Davies, T. H. and Harvey, J. M. (1995). Do ‘social relief’ admissions have any effect on patients or their care-givers?Disability and Rehabilitation 17, 247–51CrossRef Google Scholar PubMed

Castree, B. J. and Barnes, M. P. (1992). Informal care networks – One of the keys to community care. Clinical Rehabilitation 6 (Suppl.), 40–1Google Scholar

Chawla, J. C. (1994). Sport for people with disability. British Medical Journal 308, 1500–4CrossRef Google Scholar PubMed

Christensen, A. (1992). Outpatient management and outcome in relation to work in traumatic brain injury patients. Scandinavian Journal of Rehabilitation Medicine Suppl. 26, 34–42Google Scholar PubMed

Cochran, J. (1994). Family caregivers of the frail elderly: burdens and health. Nurse Practitioner 91, 5–6Google Scholar

Department of Health (1999). Caring About Carers: A National Strategy for Carers. http://www.doh.gov.uk/carers.htm

Devlieger, P. J. (1999). From handicap to disability: language use and cultural meaning in the United States. Disability and Rehabilitation 21, 346–54CrossRef Google Scholar PubMed

Drummond, A. E. R. and Walker, M. F. (1994). The Nottingham Leisure Questionnaire for stroke patients. British Journal of Occupational Therapy 57, 414–18CrossRef Google Scholar

Drummond, A. E. R. and Walker, M. F. (1996). Generalisation of the effects of leisure rehabilitation for stroke patients. British Journal of Occupational Therapy 59, 330–4CrossRef Google Scholar

Duckett, P. S. (2000). Disabling employment interviews: warfare to work. Disability and Society 15, 1019–39CrossRef Google Scholar

Dunn, P. A. (1990). The impact of the housing environment upon the ability of disabled people to live independently. Disability, Handicap and Society 5, 37CrossRef Google Scholar

Evans, R. L., Hendricks, R. D., Haselkorn, J. K. et al. (1992). The family's role in stroke rehabilitation: a review of the literature. American Journal of Physical Medicine and Rehabilitation 71, 135–9CrossRef Google Scholar PubMed

Fange, A. and Iwarsson, S. (1999). Physical housing environment: development of a self-assessment instrument. Canadian Journal of Occupational Therapy 66, 250–60CrossRef Google Scholar PubMed

Floyd, M. (1991). Overcoming barriers to employment. In Disability and Social Policy, ed. G. Dalley. London: PSI Publication

Fox, G. K., Bowden, S. C. and Smith, D. S. (1998). On-road assessment of driving competence after brain impairment: review of current practice and recommendations for a standardised examination. Archives of Physical Medicine and Rehabilitation 79, 1288–96CrossRef Google Scholar

Frank, R. G. (1994). Families and rehabilitation. Brain Injury 8, 193–5CrossRef Google Scholar PubMed

Frosch, S., Gruber, A., Jones, C. et al. (1997). The long term effects of traumatic brain injury on the roles of caregivers. Brain Injury 11, 891–906Google Scholar

Fuentes, M. G., Baker, J. G., Markello, S. J. and Wood, K. D. (1999). Discharge to home among Hispanic and non-Hispanic stroke survivors: does family make a difference?International Journal of Rehabilitation Research 22, 317–20CrossRef Google Scholar

Glass, T. A., Matchar, D. B., Belyea, M. and Feussner, J. R. (1992). Impact of social support on outcome in first stroke. Stroke 24, 64–70CrossRef Google Scholar

Gouvier, W. D. and Steiner, D. D. (1991). Employment discrimination against handicapped job candidates: an analog study of the effects of neurological causation, visibility of handicap, and public contact. Rehabilitation Psychology 36, 121–9CrossRef Google Scholar

Heller, T., Factor, A. R. and Hahn, J. E. (1999). Residential transitions from nursing homes for adults with cerebral palsy. Disability and Rehabilitation 21, 277–83CrossRef Google Scholar PubMed

Holicky, R. (1996). Caring for the caregivers: the hidden victims of illness and disability. Rehabilitation Nursing 21, 247–52CrossRef Google Scholar PubMed

Iwarsson, S. (1999). The housing enabler: an objective tool for accessing accessibility. British Journal of Occupational Therapy 62, 491–7CrossRef Google Scholar

Iwarsson, S. and Isacsson, A. (1996). Development of a novel instrument for occupational therapy assessment of the physical environment in the home – a methodological study on ‘The Enabler’. Occupational Therapy Journal of Research 16, 227–44CrossRef Google Scholar

Iwarsson, S. and Isacsson, A. (1997). Quality of life in the elderly population: an example exploring interrelationships among subjective well-being, ADL dependence, and housing accessibility. Archives of Gerontology and Geriatrics 26, 71–83CrossRef Google Scholar

Jackson, J. D. (1994). After rehabilitation: meeting the long-term needs of persons with traumatic brain injury. American Journal of Occupational Therapy 48, 251–5CrossRef Google Scholar PubMed

Johnson, P. D. (1998). Rural stroke caregivers: a qualitative study of the positive and negative response to the caregiver role. Topics in Stroke Rehabilitation 5, 51–68CrossRef Google Scholar PubMed

Johnson, R. (1987). Return to work after severe head injury. Disability Studies 9, 49–54CrossRef Google Scholar PubMed

Knobbe, C. A., Carey, S. P., Rhodes, L. and Horner, R. H. (1995). Benefit-cost analysis of community residential versus institutional services for adults with severe mental retardation and challenging behaviors. American Journal of Mental Retardation 99, 533–41Google Scholar PubMed

Kwok, J. (1995). The role of the family in disability concerned policies and services: challenges for community based rehabilitation in the Asian and Pacific decade of disabled persons, 1993–2002. International Journal of Rehabilitation Research 18, 351–6CrossRef Google Scholar PubMed

Leach, B. (1996). Disabled people and the equal opportunities movement. In Beyond Disability: Towards an Enabling Society, ed. G. Hales, pp. 88–95. Bristol, PA: The Open University

Litvak, S. (1998). Personal assistance services policy: where we have been and where are we going. American Rehabilitation 24, 9–14Google Scholar

Lougheed, V. (1998). Employer-based rehabilitation. Canadian Journal of Rehabilitation 12, 33–7Google Scholar

Maddison, F. (2001). Re: The language and baggage of caregiving. Disability research mailbase. http://www.jiscmail.ac.uk/cgi-bin/wa.exe?A2=ind0103andL=disability-researchandP=R7321andm=5471

Man, D. (1999). Community-based empowerment programme for families with a brain injured survivor: an outcome study. Brain Injury 13, 433–45CrossRef Google Scholar PubMed

Mank, D., Cioffi, A. and Yovanoff, P. (1997). Patterns of support for employees with severe disabilities. Mental Retardation. 35, 433–472.0.CO;2>CrossRef Google Scholar PubMed

McColl, M. A., Davies, D., Carlson, P. et al. (1999). Transitions to independent living after ABI. Brain Injury 13, 311–30CrossRef Google Scholar PubMed

Morton, M. V. and Wehman, P. (1995). Psychosocial and emotional sequelae of individuals with traumatic brain injury: a literature review and recommendations. Brain Injury 9, 81–92CrossRef Google Scholar PubMed

Moules, S. and Chandler, B. J. (1999). A study of the health and social needs of carers of traumatically brain injured individuals served by one community rehabilitation team. Brain Injury 13, 983–93CrossRef Google Scholar PubMed

Ngan, R. and Kwok, J. (1992). Informal caring networks among Chinese elderly with disabilities in Hong Kong. International Journal of Rehabilitation Research 15, 199–207CrossRef Google Scholar PubMed

Nosek, M. and Fuhrer, M. (1995). Life satisfaction of people with physical disabilities: relationship to personal assistance, disability status, and handicap. Rehabilitation Psychology 40, 191–202CrossRef Google Scholar

Parker, C. J., Gladman, J. R. F. and Drummond, A. E. R. (1997). The role of leisure in stroke rehabilitation. Disability and Rehabilitation 19, 1–5CrossRef Google Scholar PubMed

Parker, C. J., Gladman, J. R. F., Drummond, A. E. R. et al. (2001). A multicentre randomized controlled trial of leisure therapy and conventional occupational therapy after stroke. Clinical Rehabilitation 15, 42–52CrossRef Google Scholar PubMed

Partners in Policy making (1993). Curriculum highlights – Topic 4: Supported, competitive employment. http://www.partnersinpolicymaking.com/curriculum/Topic4.htm

Perino, C., Zappala, G., Verne, D. and Rago, R. (2000). Neuropsychological rehabilitation and return to work after TBI: an Italian experience. Brain Injury Source 4, http://www.biausa.org/bis_vol4issue2.htm

Pitkeathley, J. (1991). The carers' viewpoint. In Disability and Social Policy, ed. G. Dalley, pp. 203–9. London: PSI Publication

Ponsford, J., Sloan, S. and Snow, P. (1996). Traumatic Brain Injury – Rehabilitation for Everyday Adaptive Living. Hove: Psychology Press

Sabari, J. S., Meisler, J. and Silver, E. (2000). Reflections upon rehabilitation by members of a community based stroke club. Disability and Rehabilitation 22, 330–6CrossRef Google Scholar PubMed

Soderback, I., Ekholm, J. and Caneman, G. (1991). Impairment/function and disability/activity 3 years after cerebrovascular incident or brain trauma: a rehabilitation and occupational therapy view. International Disability Studies 13, 67–73CrossRef Google Scholar PubMed

Soderback, I., Pekkanen, K., Ekholm, J. and Schuldt, K. (1993). Occupational therapy work training programs for brain-damaged individuals – A Swedish program. Work 3, 37–47Google Scholar

Stephens, J. (1998). The needs of severely disabled people living at home: how do severely disabled people living at home manage their health care needs?Action Aid Disability News 9, 51–5Google Scholar

Teasell, R. W., McRae, M. P. and Finestone, H. M. (2000). Social issues in the rehabilitation of younger stroke patients. Archives of Physical Medicine and Rehabilitation 81, 205–9CrossRef Google Scholar PubMed

Trach, J. S. and Shelden, D. L. (1999). Natural supports as a foundation for support-based employment development and facilitation. American Rehabilitation 25, 2–7Google Scholar

Lierop, B. and Nijhuis, F. (2000). Assessment, education and placement: an integrated approach to vocational rehabilitation. International Journal of Rehabilitation Research 23, 261–9CrossRef Google Scholar PubMed

Zomeren, A. H., Brouwer, W. H. and Minderhoud, J. M. (1987). Acquired brain damage and driving: a review. Archives of Physical Medicine and Rehabilitation 68, 697–705Google Scholar PubMed

Wehman, P. and Revell, G. (1998). Supported employment: a decade of rapid growth and impact. American Rehabilitation 24, 31–43Google Scholar

White, M. A. and Johnstone, A. S. (2000). Recovery from stroke: does rehabilitation counselling have a role to play?Disability and Rehabilitation 22, 140–3CrossRef Google Scholar