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17 - Parenting Children with Disabilities

from Part IV - Child Factors that Impact Parenting

Published online by Cambridge University Press:  01 December 2022

By
Keith Crnic  and
Laura Winstone
Edited by
Amanda Sheffield Morris  and
Julia Mendez Smith
Amanda Sheffield Morris
Affiliation:
Oklahoma State University
Julia Mendez Smith
Affiliation:
University of North Carolina, Greensboro
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Summary

Even under the best of circumstances, parenting can be a challenging proposition. Caregiving presents a myriad of demands requiring sets of skills with which few of us come fully equipped but must nonetheless deliver from birth, or even prenatally. These demands are neither uniform, nor static. They vary as a function of a seemingly endless array of issues that families face, and they change as families develop and progress through the developmental periods that their children must negotiate to emerge as competent adults.

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Information
The Cambridge Handbook of Parenting , pp. 377 - 402
Publisher: Cambridge University Press
Print publication year: 2022

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References

American Psychiatric Association. (APA) (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). American Psychiatric Pub.Google Scholar
Arbona-Pedersen, A. L., Crnic, K. A., Baker, B. L., & Blacher, J. (2015). Reconceptualizing family adaptation to developmental delay. American Journal on Intellectual and Developmental Disabilities, 120, 346–370.CrossRefGoogle Scholar
Ashori, M., Norouzi, G., & Jalil-Abkenar, S. (2019). The effect of positive parenting program on mental health in mothers of children with intellectual disability. Journal of Intellectual Disabilities, 23, 385–396. https://doi.org/10.1177/1744629518824899Google Scholar
Bagner, D. M. & Eyberg, S. M. (2007). Parent-child interaction therapy for disruptive behavior in children with mental retardation: A randomized controlled trial. Journal of Clinical Child and Adolescent Psychology, 36, 418–429. https://doi.org/10.1080/15374410701448448Google Scholar
Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal of Mental Retardation: AJMR, 107, 433–444.2.0.CO;2>CrossRefGoogle ScholarPubMed
Baker, B. L., Blacher, J., Kopp, C. B., & Kraemer, B. (1997). Parenting children with mental retardation.Google Scholar
Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research: JIDR, 47, 217–230.Google Scholar
Baker, B. L., Neece, C. L., Fenning, R. M., Crnic, K. A., & Blacher, J. (2010). Mental disorders in five-year-old children with or without developmental delay: Focus on ADHD. Journal of Clinical Child and Adolescent Psychology: The Official Journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53, 39, 492–505. https://doi.org//10.1080/15374416.2010.486321Google Scholar
Barak-Levy, Y. & Atzaba-Poria, N. (2015). The effects of familial risk and parental resolution on parenting a child with mild intellectual disability. Research in Developmental Disabilities, 47, 106–116. https://doi.org/10.1016/j.ridd.2015.09.008Google Scholar
Barber, J. G., Delfabbro, P. H., & Cooper, L. L. (2001). The predictors of unsuccessful transition to foster care. Journal of Child Psychology and Psychiatry, 42, 785–790. https://doi.org/10.1111/1469-7610.00775Google Scholar
Bates, J. E., McQuillan, M. E., & Hoyniak, C. P. (2019). Parenting and temperament. Handbook of Parenting, 3rd ed. Routledge.Google Scholar
Belsky, J. & Jaffee, S. R. (2006). The multiple determinants of parenting. In Cicchetti, D, & Cohen, D. J (Eds.) Developmental psychopathology: Risk, disorder, and adaptation (vol. 3, 2nd ed.) (pp. 38–85) John Wiley & Sons Inc.Google Scholar
Blacher, J. & Baker, B. L. (2002). The best of AAMR. Families and mental retardation: A collection of notable AAMR journal articles across the 20th century. American Association on Mental Retardation.Google Scholar
Blacher, J., Glidden, L. M., & Hastings, R. (2010). Families research – No longer monochromatic. Journal of Applied Research in Intellectual Disabilities, 23, 1–2. https://doi.org/10.1111/j.1468-3148.2009.00552.xCrossRefGoogle Scholar
Boström, P. K. & Broberg, M. (2014). Openness and avoidance – A longitudinal study of fathers of children with intellectual disability. Journal of Intellectual Disability Research, 58, 810–821. https://doi.org/10.1111/jir.12093Google Scholar
Boström, P. K., Broberg, M., & Bodin, L. (2011). Child’s positive and negative impacts on parents A – person-oriented approach to understanding temperament in preschool children with intellectual disabilities. Research in Developmental Disabilities, 32, 1860–1871. https://doi.org/10.1016/j.ridd.2011.03.017Google Scholar
Boström, P. K., Broberg, M., & Hwang, P. (2010). Parents’ descriptions and experiences of young children recently diagnosed with intellectual disability. Child: Care, Health and Development, 36, 93–100. https://doi.org/10.1111/j.1365-2214.2009.01036.xGoogle Scholar
Bourke-Taylor, H., Howie, L., & Law, M. (2010). Impact of caring for a school-aged child with a disability: Understanding mothers’ perspectives. Australian Occupational Therapy Journal, 57, 127–136. https://doi.org/10.1111/j.1440-1630.2009.00817.xGoogle Scholar
Boyd, M. J., Iacono, T., & McDonald, R. (2019). The perceptions of fathers about parenting a child with developmental disability: A scoping review. Journal of Policy and Practice in Intellectual Disabilities, 16, 312–324. https://doi.org/10.1111/jppi.12287Google Scholar
Bryant, D. M. & Ramey, C. T. (1984). Prevention-oriented infant education programs. Journal of Children in Contemporary Society, 17, 17–35.Google Scholar
Burack, J. A., Russo, N., Green, C. G., Landry, O., & Iarocci, G. (2016). Developments in the developmental approach to intellectual disability. In Cicchetti, D (Ed.) Developmental psychopathology: Maladaptation and psychopathology (vol. 3, 3rd ed.) (pp. 1–67) John Wiley & Sons, Inc.Google Scholar
Burke, M. M. & Hodapp, R. M. (2014). Relating stress of mothers of children with developmental disabilities to family- school partnerships. Intellectual and Developmental Disabilities, 52, 13–23. https://doi.org/10.1352/1934-9556-52.1.13Google Scholar
Burge, P., Burke, N., Meiklejohn, E., & Groll, D. (2016). Making choices: Adoption seekers’ preferences and available children with special needs. Journal of Public Child Welfare, 10, 1–20. https://doi.org/10.1080/15548732.2015.1065781CrossRefGoogle Scholar
Burge, P. & Jamieson, M. (2009). Gaining balance: Toward a grounded theory of the decision-making processes of applicants for adoption of children with and without disabilities. Qualitative Report, 14, 566–603.Google Scholar
Byers, E., Valliere, F. R., Houtrow, A. J., & National Academies of Sciences, Engineering, and Medicine. (2018). Conceptualizing Childhood Disability. In Opportunities for Improving Programs and Services for Children with Disabilities. National Academies Press (US).Google Scholar
Cabrera, N. J. & Volling, B. L. (2019). Advancing research and measurement on fathering and child development. Monographs of the Society for Research in Child Development, 84, 1–117.Google Scholar
Chan, T. O. & Lam, S. (2017). Mediator or moderator? The role of mindfulness in the association between child behavior problems and parental stress. Research in Developmental Disabilities, 70, 1–10. https://doi.org/10.1016/j.ridd.2017.08.007Google Scholar
Conway, P., Boeckel, J., Shuster, L., & Wages, J. (2010). Grandparent caregivers’ use of resources and services, level of burden, and factors that mediate their relationships. Journal of Intergenerational Relationships, 8, 128–144. https://doi.org/10.1080/15350771003741931Google Scholar
Crnic, K., Arbona, A. P. Y., Baker, B., & Blacher, J. (2009). Mothers and fathers together: Contrasts in parenting across preschool to early school age in children with developmental delays. International Review of Research in Mental Retardation, 37, 3–30.Google Scholar
Crnic, K. A. & Coburn, S. S. (2019). Stress and parenting. In Bornstein, M. H., (Ed.), Handbook of Parenting, 3e (pp. 421–448). RoutledgeGoogle Scholar
Crnic, K. A., Friedrich, W. N., & Greenberg, M. T. (1983). Adaptation of families with mentally retarded children: A model of stress, coping, and family ecology. American Journal of Mental Deficiency, 88, 125–138.Google Scholar
Crnic, K. & Neece, C. (2015). Socioemotional consequences of illness and disability. In Lamb, M. E, & Lerner, R. M (Eds.), 7th ed.; handbook of child psychology and developmental science: Socioemotional processes (vol. 3, 7th ed.) (pp. 287–323) John Wiley & Sons Inc. https://doi.org/10.1002/9781118963418.childpsy308Google Scholar
Crnic, K. A., Neece, C. L., McIntyre, L. L., Blacher, J., & Baker, B. L. (2017). Intellectual disability and developmental risk: Promoting intervention to improve child and family well‐being. Child Development, 88, 436–445. https://doi.org/10.1111/cdev.12740CrossRefGoogle ScholarPubMed
Davys, D., Mitchell, D., & Martin, R. (2017). Fathers of people with intellectual disability: A review of the literature. Journal of Intellectual Disabilities, 21, 175–196. https://doi.org/10.1177/1744629516650129Google Scholar
Donenberg, G. & Baker, B. L. (1993). The impact of young children with externalizing behaviors on their families. Journal of Abnormal Child Psychology, 21, 179–198.Google Scholar
Einfeld, S. L., Ellis, L. A., & Emerson, E. (2011). Comorbidity of intellectual disability and mental disorder in children and adolescents: A systematic review. Journal of Intellectual and Developmental Disability, 36, 137–143.Google Scholar
Ellingsen, R., Baker, B. L., Blacher, J., & Crnic, K. (2014a). Resilient parenting of preschool children at developmental risk. Journal of Intellectual Disability Research, 58, 664–678. https://doi.org/10.1111/jir.12063CrossRefGoogle ScholarPubMed
Ellingsen, R., Baker, B. L., Blacher, J., & Crnic, K. (2014b). Resilient parenting of children at developmental risk across middle childhood. Research in Developmental Disabilities, 35, 1364–1374. https://doi.org/10.1016/j.ridd.2014.03.016Google Scholar
Emerson, E. & Einfeld, S. (2010). Emotional and behavioural difficulties in young children with and without developmental delay: A bi-national perspective. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 51, 583–593. https://doi.org/10.1111/j.1469-7610.2009.02179.xGoogle Scholar
Emerson, E., Einfeld, S., & Stancliffe, R. J. (2010). The mental health of young children with intellectual disabilities or borderline intellectual functioning. Social Psychiatry and Psychiatric Epidemiology, 45, 579–587. https://doi.org/10.1007/s00127-009-0100-yGoogle Scholar
Erickson, M. T. (1968). MMPI comparisons between parents of young emotionally disturbed children and mentally retarded children. Journal of Consulting Clinical Psychology, 32, 701–706.Google Scholar
Erickson Warfield, M., Hauser-Cram, P., Wyngaarden Krauss, M., Shonkoff, J. P., & Upshur, C. C. (2000). The effect of early intervention services on maternal well-being. Early Education and Development, 11, 499–517.Google Scholar
Farber, B. (1959). Family adaptations to severely mentally retarded on family integration. Monographs of the Society for Research in Child Development, No. 71.Google Scholar
Feinberg, M. E. (2003). The internal structure and ecological context of coparenting: A framework for research and intervention. Parenting: Science and Practice, 3, 95–131. https://doi.org/10.1207/S15327922PAR0302_01Google Scholar
Feldman, R. & Bakermans-Kranenburg, M. (2017). Oxytocin: A parenting hormone. Current Opinion in Psychology, 15, 13–18. https://doi.org/10.1016/j.copsyc.2017.02.011Google Scholar
Feldman, R., Gordon, I., Influs, M., Gutbir, T., & Ebstein, R. P. (2013). Parental oxytocin and early caregiving jointly shape children’s oxytocin response and social reciprocity. Neuropsychopharmacology: Official Publication of the American College of Neuropsychopharmacology, 3, 1154–1162. https://doi.org/10.1038/npp.2013.22Google Scholar
Feldman, R., Gordon, I., & Zagoory-Sharon, O. (2010). The cross-generation transmission of oxytocin in humans. Hormones and Behavior, 58, 669–676. https://doi.org/10.1016/j.yhbeh.2010.06.005Google Scholar
Feniger-Schaal, R. & Oppenheim, D. (2013). Resolution of the diagnosis and maternal sensitivity among mothers of children with intellectual disability. Research in Developmental Disabilities, 34, 306–313. https://doi.org/10.1016/j.ridd.2012.08.007Google Scholar
Findler, L. (2014). The experience of stress and personal growth among grandparents of children with and without intellectual disability. Intellectual and Developmental Disabilities, 52, 32–48. https://doi.org/10.1352/1934-9556-52.1.32Google Scholar
Flouri, E. & Malmberg, L. (2012). Fathers’ involvement and preschool children’s behavior in stable single-mother families. Children and Youth Services Review, 34, 1237–1242. https://doi.org/10.1016/j.childyouth.2012.02.020Google Scholar
Floyd, F. J., Costigan, C. L., & Phillippe, K. A. (1997). Developmental change and consistency in parental interactions with school-age children who have mental retardation. American Journal of Mental Retardation: AJMR, 101, 579–594.Google ScholarPubMed
Floyd, F. J., Gilliom, L. A., & Costigan, C. L. (1998). Marriage and the parenting alliance: Longitudinal prediction of change in parenting perceptions and behaviors. Child Development, 69, 1461–1479.Google Scholar
Gerstein, E. D., Crnic, K. A., Blacher, J., & Baker, B. L. (2009). Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 981–997. https://doi.org/10.1111/j.1365-2788.2009.01220.xGoogle Scholar
Glidden, L. M. (1991). Adopted children with developmental disabilities: Post-placement family functioning. Children and Youth Services Review, 13, 363–377.Google Scholar
Goff B. S. N., Springer N., Foote, L. C, et al. (2013) Receiving the initial Down syndrome diagnosis: a comparison of prenatal and postnatal parent group experiences. Intellectual and Developmental Disabilities 51, 446–457.Google Scholar
Graungaard, A. H. & Skov, L. (2007). Why do we need a diagnosis? A qualitative study of parents’ experiences, coping and needs, when the newborn child is severely disabled. Child: Care, Health and Development, 33, 296–307. https://doi.org/10.1111/j.1365-2214.2006.00666.xGoogle Scholar
Gray, K. M., Piccinin, A., Keating, C. M. et al. (2014). Outcomes in young adulthood: Are we achieving community participation and inclusion? Journal of Intellectual Disability Research, 58, 734–745. http://dx.doi.org.ezproxy1.lib.asu.edu/10.1111/jir.12069Google Scholar
Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants & Young Children, 24, 6–28. https://doi.org/10.1097/IYC.0b013e3182002cfeGoogle Scholar
Guralnick, M. J. (2017). Early intervention for children with intellectual disabilities: An update. Journal of Applied Research in Intellectual Disabilities, 30, 211–229. https://doi.org/10.1111/jar.12233Google Scholar
Guralnick, M. J. & Albertini, G. (2006). Early intervention in an international perspective. Journal of Policy and Practice in Intellectual Disabilities, 3, 1–2. https://doi.org/10.1111/j.1741-1130.2006.00046.xGoogle Scholar
Halfon, N., Houtrow, A., Larson, K., & Newacheck, P. W. (2012). The changing landscape of disability in childhood. The Future of Children, 22, 13–42.Google Scholar
Harnett, P. H., Dawe, S., & Russell, M. (2014). An investigation of the needs of grandparents who are raising grandchildren. Child & Family Social Work, 19, 411–420. https://doi.org/10.1111/cfs.12036Google Scholar
Hastings, R. P., Beck, A., & Hill, C. (2005). Positive contributions made by children with an intellectual disability in the family: Mothers’ and fathers’ perceptions. Journal of Intellectual Disabilities, 9, 155–165. https://doi.org/10.1177/1744629505053930Google Scholar
Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., & Krauss, M. W. (2001). Children with disabilities: A longitudinal study of child development and parent well-being. Monographs of the Society for Research in Child Development, 66, 1–131. https://doi.org/10.1111/1540-5834.00151Google Scholar
Hill, K. M. (2012). The prevalence of youth with disabilities among older youth in out-of-home placement: An analysis of state administrative data. Child Welfare, 91, 61–84.Google Scholar
Holroyd, J. (1974). The questionnaire on resources and stress: An instrument to measure family response to a handicapped family member. Journal of Community Psychology, 2, 92–94.Google Scholar
Houser, A. N. & Ujvari, K. (2012). The State of Measurement of Respite Care. AARP Public Policy Institute.Google Scholar
Houwen, S., Visser, L., van der Putten, A., & Vlaskamp, C. (2016). The interrelationships between motor, cognitive, and language development in children with and without intellectual and developmental disabilities. Research in Developmental Disabilities, 53–54, 19–31. https://doi.org/10.1016/j.ridd.2016.01.012Google Scholar
Hudson, A. M., Matthews, J. M., Gavidia-Payne, S. et al. (2003). Evaluation of an intervention system for parents of children with intellectual disability and challenging behaviour. Journal of Intellectual Disability Research, 47, 238–249. https://doi.org/10.1046/j.1365-2788.2003.00486.xGoogle Scholar
Jess, M., Totsika, V., & Hastings, R. P. (2018). Maternal stress and the functions of positivity in mothers of children with intellectual disability. Journal of Child and Family Studies, 27, 3753–3763. https://doi.org/10.1007/s10826-018-1186-1Google Scholar
John, A. & Roblyer, M. I. Z. (2017). Mothers parenting a child with intellectual disability in urban India: An application of the stress and resilience framework. Intellectual and Developmental Disabilities, 55, 325–337. https://doi.org/10.1352/1934-9556-55.5.325Google Scholar
Jones, J. & Passey, J. (2004). Family adaptation, coping and resources: Parents of children with developmental disabilities and behaviour problems. Journal on Developmental Disabilities, 11, 31–46.Google Scholar
Kazak, A. E., & Marvin, R. S. (1984). Differences, difficulties and adaptation: Stress and social networks in families with a handicapped child. Family Relations: An Interdisciplinary Journal of Applied Family Studies, 33, 67–77. https://doi.org/10.2307/584591Google Scholar
Kelley, S. J., Whitley, D. M., & Campos, P. E. (2011). Behavior problems in children raised by grandmothers: The role of caregiver distress, family resources, and the home environment. Children and Youth Services Review, 33, 2138–2145. https://doi.org/10.1016/j.childyouth.2011.06.021Google Scholar
Kersh, J., Hedvat, T. T., Hauser-Cram, P., & Warfield, M. E. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50, 883–893. https://doi.org/10.1111/j.1365-2788.2006.00906.xGoogle Scholar
Kiff, C. J., Lengua, L. J., & Zalewski, M. (2011). Nature and nurturing: Parenting in the context of child temperament. Clinical Child and Family Psychology Review, 14, 251–301. https://doi.org/10.1007/s10567-011-0093-4Google Scholar
Langley, E., Totsika, V., & Hastings, R. P. (2019). Psychological well‐being of fathers with and without a child with intellectual disability: A population‐based study. Journal of Intellectual Disability Research. https://doi.org/10.1111/jir.12692CrossRefGoogle Scholar
Lee, M. & Gardner, J. E. (2010). Grandparents’ involvement and support in families with children with disabilities. Educational Gerontology, 36, 467–499. https://doi.org/10.1080/03601270903212419Google Scholar
Lerer, E., Levi, S., Salomon, S., Darvasi, A., Yirmiya, N., & Ebstein, R. P. (2008). Association between the oxytocin receptor gene and autism: Relationship to vineland adaptive behavior scales and cognition. Molecular Psychiatry, 13, 980–988. https://doi.org/10.1038/sj.mp.4002087Google Scholar
Lindo, E. J., Kliemann, K. R., Combes, B. H., & Frank, J. (2016). Managing stress levels of parents of children with developmental disabilities: A meta-analytic review of interventions. Family Relations, 65, 207–224. https://doi.org/10.1111/fare.12185Google Scholar
Lloyd, T. J. & Hastings, R. (2009). Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 957–968. https://doi.org/10.1111/j.1365-2788.2009.01206.xGoogle Scholar
Mas, J. M., Dunst, C. J., Balcells-Balcells, A., Garcia-Ventura, S., Giné, C., & Cañadas, M. (2019). Family-centered practices and the parental well-being of young children with disabilities and developmental delay. Research in Developmental Disabilities, 94. https://doi.org/10.1016/j.ridd.2019.103495Google Scholar
Masulani-Mwale, C., Mathanga, D., Kauye, F., & Gladstone, M. (2018). Psychosocial interventions for parents of children with intellectual disabilities–A narrative review and implications for low income settings. Mental Health and Prevention, 11, 24–32. https://doi.org/10.1016/j.mhp.2018.05.003Google Scholar
McConkey, R., Truesdale-Kennedy, M., Chang, M., Jarrah, S., & Shukri, R. (2008). The impact on mothers of bringing up a child with intellectual disabilities: A cross-cultural study. International Journal of Nursing Studies, 45, 65–74. http://dx.doi.org.ezproxy1.lib.asu.edu/10.1016/j.ijnurstu.2006.08.007Google Scholar
McIntyre, L. L. (2013). Parent training to reduce challenging behavior in children and adults with developmental disabilities. In Hastings, R. P. & Rojahn, J. (Eds.), International review of research in developmental disabilities: Challenging behavior (pp. 245–280). Academic Press/Elsevier.Google Scholar
Miodrag, N. & Hodapp, R. M. (2010). Chronic stress and health among parents of children with intellectual and developmental disabilities. Current Opinion in Psychiatry, 23, 407–411.Google Scholar
Most, D. E., Fidler, D. J., Laforce-Booth, C., & Kelly, J. (2006). Stress trajectories in mothers of young children with down syndrome. Journal of Intellectual Disability Research, 50, 501–514. https://doi.org/10.1111/j.1365-2788.2006.00796.xGoogle Scholar
Munir, K. M. (2016). The co-occurrence of mental disorders in children and adolescents with intellectual disability/intellectual developmental disorder. Current Opinion in Psychiatry, 29, 95–102. https://doi.org/10.1097/YCO.0000000000000236Google Scholar
Namkung, E. H., Greenberg, J. S., Mailick, M. R., & Floyd, F. J. (2018). Lifelong parenting of adults with developmental disabilities: Growth trends over 20 years in midlife and later life. American Journal on Intellectual and Developmental Disabilities, 123, 228–240. http://dx.doi.org.ezproxy1.lib.asu.edu/10.1352/1944-7558-123.3.228CrossRefGoogle ScholarPubMed
Nankervis, K., Rosewarne, A., & Vassos, M. (2011). Why do families relinquish care? an investigation of the factors that lead to relinquishment into out-of-home respite care. Journal of Intellectual Disability Research: JIDR, 55, 422–433. https://doi.org/10.1111/j.1365-2788.2011.01389.xGoogle Scholar
Neece, C. L. (2014). Mindfulness‐based stress reduction for parents of young children with developmental delays: Implications for parental mental health and child behavior problems. Journal of Applied Research in Intellectual Disabilities, 27, 174–186. https://doi.org/10.1111/jar.12064Google Scholar
Neece, C. & Baker, B. (2008). Predicting maternal parenting stress in middle childhood: The roles of child intellectual status, behaviour problems and social skills. Journal of Intellectual Disability Research, 52, 1114–1128. https://doi.org/10.1111/j.1365-2788.2008.01071.xGoogle Scholar
Neece, C. L. & Chan, N. (2017). The stress of parenting children with developmental disabilities. In Deater-Deckard, K, & Panneton, R (Eds.), Parental stress and early child development: Adaptive and maladaptive outcomes; parental stress and early child development: Adaptive and maladaptive outcomes (pp. 107–124) Springer International Publishing. https://doi.org/10.1007/978-3-319-55376-4_5Google Scholar
Neece, C. L., Chan, N., Klein, K., Roberts, L., & Fenning, R. M. (2019). Mindfulness-based stress reduction for parents of children with developmental delays: Understanding the experiences of latino families. Mindfulness, 10, 1017–1030. https://doi.org/10.1007/s12671-018-1011-3Google Scholar
Newton, R. R., Litrownik, A. J., & Landsverk, J. A. (2000). Children and youth in foster care: Disentangling the relationship between problem behaviors and number of placements. Child Abuse & Neglect, 24, 1363–1374. https://doi.org/10.1016/S0145-2134(00)00189-7Google Scholar
Norlin, D. & Broberg, M. (2013). Parents of children with and without intellectual disability: Couple relationship and individual well‐being. Journal of Intellectual Disability Research, 57, 552–566. https://doi.org/10.1111/j.1365-2788.2012.01564.xGoogle Scholar
Noy, A. & Findler, L. (2016). Twice Special—Grandparents Who Raise Grandchildren with Disabilities. In Grandparents of Children with Disabilities (pp. 87–95). Springer.Google Scholar
Oppenheim, D., Dolev, S., Koren-Karie, N., Sher-Censor, E., Yirmiya, N., & Salomon, S. (2007). Parental resolution of the child’s diagnosis and the parent-child relationship. Attachment theory in clinical work with children: bridging the gap between research and practice. Guilford,Google Scholar
Patton, K. A., Ware, R., McPherson, L., Emerson, E., & Lennox, N. (2018). Parent‐related stress of male and female carers of adolescents with intellectual disabilities and carers of children within the general population: A cross‐sectional comparison. Journal of Applied Research in Intellectual Disabilities, 31, 51–61. https://doi.org/10.1111/jar.12292Google Scholar
Peer, J. W. & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11, 92–98. https://doi.org/10.1111/jppi.12072Google Scholar
Platje, E., Sterkenburg, P., Overbeek, M., Kef, S., & Schuengel, C. (2018). The efficacy of VIPP-V parenting training for parents of young children with a visual or visual-and-intellectual disability: A randomized controlled trial. Attachment & Human Development, 20, 455–472. https://doi.org/10.1080/14616734.2018.1428997Google Scholar
Ponnet, K., Mortelmans, D., Wouters, E., Van Leeuwen, K., Bastaits, K., & Pasteels, I. (2013). Parenting stress and marital relationship as determinants of mothers’ and fathers’ parenting. Personal Relationships, 20, 259–276. https://doi.org/10.1111/j.1475-6811.2012.01404.xGoogle Scholar
Raghavan, R., Pawson, N., & Small, N. (2013). Family carers’ perspectives on post‐school transition of young people with intellectual disabilities with special reference to ethnicity. Journal of Intellectual Disability Research, 57, 936–946. https://doi.org/10.1111/j.1365-2788.2012.01588.xGoogle Scholar
Reid, C., Gill, F., Gore, N., & Brady, S. (2016). New ways of seeing and being: Evaluating an acceptance and mindfulness group for parents of young people with intellectual disabilities who display challenging behaviour. Journal of Intellectual Disabilities, 20, 5–17. https://doi.org/10.1177/1744629515584868Google Scholar
Reilly, T. & Platz, L. (2004). Post-adoption service needs of families with special needs children: Use, helpfulness, and unmet needs. Journal of Social Service Research, 30, 51–67. https://doi.org/10.1300/J079v30n04_03Google Scholar
Reynolds, A. J., Ou, S., Mondi, C. F., & Hayakawa, M. (2017). Processes of early childhood interventions to adult well‐being. Child Development, 88, 378–387. https://doi.org/10.1111/cdev.12733Google Scholar
Roberts, C., Mazzucchelli, T., Studman, L., & Sanders, M. R. (2006). Behavioral family intervention for children with developmental disabilities and behavioral problems. Journal of Clinical Child and Adolescent Psychology, 35, 180–193. https://doi.org/10.1207/s15374424jccp3502_2Google Scholar
Rodas, N. V., Chavira, D. A., & Baker, B. L. (2017). Emotion socialization and internalizing behavior problems in diverse youth: A bidirectional relationship across childhood. Research in Developmental Disabilities, 62, 15–25. https://doi.org/10.1016/j.ridd.2017.01.010Google Scholar
Rosencrans, M. & McIntyre, L. L. (2020). Coparenting and child outcomes in families of children previously identified with developmental delay. American Journal on Intellectual and Developmental Disabilities, 125, 109–124. https://doi.org/10.1352/1944-7558-125.2.109Google Scholar
Sarimski, K., Hintermair, M., & Lang, M. (2013). Parent stress and satisfaction with early intervention services for children with disabilities – A longitudinal study from germany. European Journal of Special Needs Education, 28, 362–373. https://doi.org/10.1080/08856257.2013.797706Google Scholar
Schippers, A., Berkelaar, M., Bakker, M., & Van Hove, G. (2020). The experiences of Dutch fathers on fathering children with disabilities: ‘hey, that is a father and his daughter, that is it’. Journal of Intellectual Disability Research, 64, 442–454. https://doi.org/10.1111/jir.12711Google Scholar
Schofield, G., Beek, M., & Ward, E. (2012). Part of the family: Planning for permanence in long-term family foster care. Children and Youth Services Review, 34, 244–253. https://doi.org/10.1016/j.childyouth.2011.10.020Google Scholar
Schoppe, S. J., Mangelsdorf, S. C., & Frosch, C. A. (2001) Coparenting, family process, and family structure: implications for preschoolers’ externalizing behavior problems. Journal of Family Psychology 15, 526–545.Google Scholar
Seligman, M. (1991). Grandparents of disabled children: Hopes, fears, and adaptation. Families in Society, 72, 147–152.Google Scholar
Seltzer, M. M., Floyd, F., Song, J., Greenberg, J., & Hong, J. (2011). Midlife and aging parents of adults with intellectual and developmental disabilities: Impacts of lifelong parenting. American Journal on Intellectual and Developmental Disabilities, 116, 479–499.Google Scholar
Serbin, L. A., Kingdon, D., Ruttle, P. L., & Stack, D. M. (2015). The impact of children’s internalizing and externalizing problems on parenting: Transactional processes and reciprocal change over time. Development and Psychopathology, 27, 969–986. https://doi.org/10.1017/S0954579415000632Google Scholar
Shahrier, M. A., Islam, M. N., & Debroy, M. (2016). Perceived stress and social adaptation of the primary caregivers of children with intellectual disabilities. The Spanish Journal of Psychology, 19, 1–12.Google Scholar
Sheehan, P. & Guerin, S. (2018). Exploring the range of emotional response experienced when parenting a child with an intellectual disability: The role of dual process. British Journal of Learning Disabilities, 46, 109–117. https://doi.org/10.1111/bld.12221Google Scholar
Singh, N. N., Lancioni, G. E., Winton, A. S. W. et al. (2007). Mindful parenting decreases aggression and increases social behavior in children with profound developmental disabilities. Behavior Modification, 31, 749–771. https://doi.org/10.1177/0145445507300924Google Scholar
Slayter, E. M. (2016). Foster care outcomes for children with intellectual disability. Intellectual and Developmental Disabilities, 54, 299–315. https://doi.org/10.1352/1934-9556-54.5.299Google Scholar
Slayter, E. & Springer, C. (2011). Child welfare-involved youth with intellectual disabilities: Pathways into and placements in foster care. Intellectual and Developmental Disabilities, 49, 1–13. https://doi.org/10.1352/1934-9556-49.1.1Google Scholar
Stevenson, M. & Crnic, K. (2013). Intrusive fathering, children’s self‐regulation and social skills: A mediation analysis. Journal of Intellectual Disability Research, 57, 500–512. https://doi.org/10.1111/j.1365-2788.2012.01549.xGoogle Scholar
Stoneman, Z. & Gavidia-Payne, S. (2006). Marital adjustment in families of young children with disabilities: Associations with daily hassles and problem-focused coping. American Journal on Mental Retardation, 111, 1–14. https://doi.org/10.1352/0895-8017(2006)111[1:MAIFOY]2.0.CO;2Google Scholar
Stroebe, M. S. & Schut, H. A. W. (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23, 197–224. https://doi.org/10.1080/074811899201046Google Scholar
Summers, J. A., Behr, S. K., & Turnbull, A. P. (1988). Positive adaptation and coping strengths of families who have children with disabilities. In Singer, G. H. S. & Irvin, L. K. (Eds.), Support for caregiving families: enabling positive adaptation to disability (pp. 27–40). Brooks.Google Scholar
Totsika, V., Hastings, R. P., Emerson, E., & Hatton, C. (2020). Early years parenting mediates early adversity effects on problem behaviors in intellectual disability. Child Development, 91, e649–e664. https://doi.org/10.1111/cdev.13273Google Scholar
Wang, P., Michaels, C. A., & Day, M. S. (2011). Stresses and coping strategies of Chinese families with children with autism and other developmental disabilities. Journal of Autism and Developmental Disorders, 41, 783–795. https://doi.org/10.1007/s10803-010-1099-3Google Scholar
Weisz, J. R. & Yeates, K. O. (1981). Cognitive development in retarded and nonretarded persons: Piagetian tests of the similar structure hypothesis. Psychological Bulletin, 90, 153.Google Scholar
Weisz, J. R. & Zigler, E. (1979). Cognitive development in retarded and nonretarded persons: Piagetian tests of the similar sequence hypothesis. Psychological Bulletin, 86, 831–851.Google Scholar
Willingham-Storr, G. (2014). Parental experiences of caring for a child with intellectual disabilities: A UK perspective. Journal of Intellectual Disabilities: JOID, 18, 146–158.Google Scholar
Winokur, M. A., Holtan, A., & Batchelder, K. E. (2018). Systematic review of kinship care effects on safety, permanency, and well-being outcomes. Research on Social Work Practice, 28, 19–32. https://doi.org/10.1177/1049731515620843Google Scholar
World Health Organisation (WHO) (2001) International Classification of Functioning, Disability and Health. WHO.Google Scholar
World Health Organisation (WHO) (2007). International Classification of Functioning, Disability and Health – Child Youth Version. WHO. http://apps.who.int/iris/bitstream/10665/43737/1/9789241547321_eng.pdfGoogle Scholar
World Health Organisation (WHO). (2013). How to Use the ICF. www.who.int/classifications/drafticfpracticalmanual2.pdfGoogle Scholar
Woodman, A. C. (2014). Trajectories of stress among parents of children with disabilities: A dyadic analysis. Family Relations: An Interdisciplinary Journal of Applied Family Studies, 63, 39–54. https://doi.org/10.1111/fare.12049Google Scholar
Woodman, A. C., Mawdsley, H. P., & Hauser-Cram, P. (2015). Parenting stress and child behavior problems within families of children with developmental disabilities: Transactional relations across 15 years. Research in Developmental Disabilities, 36, 264–276. https://doi.org/10.1016/j.ridd.2014.10.011Google Scholar
Zagona, A. L., Miller, A. L., Kurth, J. A., & Love, H. R. (2020). Parent perspectives on special education services: How do schools implement team decisions? The School Community Journal, 29, 105–128.Google Scholar
Zechella, A. N. & Raval, V. V. (2016). Parenting children with intellectual and developmental disabilities in Asian Indian families in the united states. Journal of Child and Family Studies, 25, 1295–1309. https://doi.org/10.1007/s10826-015-0285-5Google Scholar
Zhai, F., Waldfogel, J., & Brooks-Gunn, J. (2013). Estimating the effects of Head Start on parenting and child maltreatment. Child and Youth Services Review, 35, 1119–1129. https://doi.org/10.1016/j.childyouth.2011.03.008Google Scholar
Zigler, E. (1969). Developmental versus difference theories of mental retardation and the problem of motivation. American Journal of Mental Deficiency, 73, 536–556.Google Scholar
Zigler, E. & Hodapp, R. M. (1986). Understanding mental retardation. Cambridge University Press.Google Scholar

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