Skip to main content Accessibility help
×
Hostname: page-component-848d4c4894-xm8r8 Total loading time: 0 Render date: 2024-07-01T00:35:54.917Z Has data issue: false hasContentIssue false

Chapter 7 - Complex Physical Health Issues in People with Intellectual Disability

from Section 2 - Co-morbidity

Published online by Cambridge University Press:  14 January 2019

Mark Scheepers
Affiliation:
2gether NHS Trust
Mike Kerr
Affiliation:
Cardiff University
Get access
Type
Chapter
Information
Publisher: Cambridge University Press
Print publication year: 2019

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Abbey, J. De Bellis, A., Piller, N. et al. (1998–2002) Abbey pain scale. JH & JD Gunn Medical Research Foundation.Google Scholar
Angulo, M. A., Butler, M. G. & Cataletto, M. E. (2015) Prader-Willi syndrome: A review of clinical, genetic, and endocrine findings. Journal of Endocrinological Investigation, 38(12), 1249–63. doi: 10.1007/s40618-015-0312-9Google Scholar
Australian Commission on Safety and Quality in Healthcare (2012) www.safetyandquality.gov.au/wp-content/uploads/2012/01/PCCC-DiscussPaper.pdf [accessed 11 August 2018]Google Scholar
Australian Commission on Safety and Quality in Healthcare (2014) Health literacy statement.Google Scholar
Baladerian, N., Coleman, T. & Stream, J. (2012) Report on the 2012 national survey on abuse of people with disabilities. Spectrum Institute Disability and Abuse Project. Available at: www.disabilityandabuse.org [accessed 11 August 2018]Google Scholar
Balogh, R., Hunter, D. & Ouellette-Kuntz, H. (2005) Hospital utilization among persons with an intellectual disability, Ontario, Canada, 1995–2001. Journal of Applied Research in Intellectual Disability, 18, 181–90.Google Scholar
Baxter, H., Lowe, K., Houston, H. et al. (2006) Previously unidentified morbidity in patients with intellectual disability. British Journal of General Practice, 56, 93–8.Google Scholar
Beange, H., McElduff, A. & Baker, W. (1995) Medical disorders of adults with mental retardation: A population study. American Journal of Mental Retardation, 99, 595604.Google Scholar
Bittles, A. H., Petterson, B. A., Sullivan, S. G. et al. (2002) The influence of intellectual disability on life expectancy. Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 57(7), M470–2.CrossRefGoogle ScholarPubMed
Böhmer, C. J., Klinkenberg-Knol, E. C., Niezen-de Boer, M. C. et al. (2000) Gastroesophageal reflux disease in intellectually disabled individuals: How often, how serious, how manageable? American Journal of Gastroenterology, 95(8), 1868–72.Google Scholar
Bosch, J., Van Dyke, C., Smith, S. M. et al. (1997) Role of medical conditions in the exacerbation of self-injurious behavior: An exploratory study. Mental Retardation, 35(2), 124–30.Google Scholar
Center, J., Beange, H. & McElduff, A. (1998) People with mental retardation have an increased prevalence of osteoporosis: A population study. American Journal of Mental Retardation, 103, 1928.2.0.CO;2>CrossRefGoogle ScholarPubMed
de Knegt, N. C., Lobbezoo, F., Schuengel, C. et al. (2016) Self-Reporting Tool on Pain in People with Intellectual Disabilities (STOP-ID!): A Usability study. Augmentative and Alternative Communication, 32(1), 111.Google Scholar
de Kuijper, G., Mulder, H., Evenhuis, H. et al. (2013) Determinants of physical health parameters in individuals with intellectual disability who use long-term antipsychotics. Research in Developmental Disabilities, 34(9), 2799–809. doi: 10.1016/j.ridd.2013.05.016Google Scholar
Duff, M., Hoghton, M. & Scheepers, M. (2000) More training is needed in health care of people with learning disabilities. BMJ Clinical Research, 321(7257), 385–6.Google Scholar
Durvasula, S., Beange, H. & Baker, W. (2002) Mortality of people with intellectual disabilities in northern Sydney. Journal of Intellectual and Developmental Disability, 27, 255–64.Google Scholar
Edwards, S. D. (1997) The moral status of intellectually disabled individuals. Journal of Medical Philosophy, 22, 2942.Google Scholar
Emerson, E., Hatton, C., Baines, S. et al. (2016) The physical health of British adults with intellectual disability: Cross sectional study. International Journal of Equity Health, 15, 11.Google Scholar
Engel, G. L. (1978) The biopsychosocial model and the education of health professionals. Annals of the New York Academy of Sciences, 310, 169–81.CrossRefGoogle ScholarPubMed
Erzurumlu, K., Malazgirt, Z., Bektas, A. et al. (2005) Gastrointestinal bezoars: A retrospective analysis of 34 cases. World Journal of Gastroenterology, 11(12), 1813–7.Google Scholar
Esbensen, A. J. (2016) Sleep problems and associated comorbidities among adults with Down syndrome. Journal of Intellectual Disability Research, 60(1), 6879. doi: 10.1111/jir.12236Google Scholar
Giacometti, A., Cirioni, O., Balducci, M. et al. (1997) Epidemiologic features of intestinal parasitic infections in Italian mental institutions. European Journal of Epidemiology, 13, 815–30.Google Scholar
Grizenko, N., Cvejic, H., Vida, S. et al. (1991) behaviour problems of the mentally retarded. Canadian Journal of Psychiatry, 36, 712–17.CrossRefGoogle ScholarPubMed
Gunsett, R. P., Mulick, J. A., Fernald, W. B. et al. (1989) Indications for medical screening prior to behavioural programming for severely and profoundly mentally retarded clients. Journal of Autism and Developmental Disorders, 19, 167–72.CrossRefGoogle ScholarPubMed
Hatton, C., Emerson, E., Robertson, J. et al. (2017) The mental health of British adults with intellectual impairments. Journal of Applied Research in Intellectual Disability, 30(1), 188–97.Google Scholar
Hermans, H. & Evenhuis, H. M. (2014) Multimorbidity in older adults with intellectual disabilities. Research in Development Disabilities, 35(4), 776–83. doi: 10.1016/j.ridd.2014.01.022Google Scholar
Heslop, P., Blair, P., Fleming, P. et al. (2014) Rates of in hospital mortality and morbidity: The confidential inquiry into premature deaths of people with intellectual disabilities in the UK: A population-based study. The Lancet, 383, 889–95.CrossRefGoogle Scholar
Hithersay, R. Hamburg, S. Knight, B. et al. (2017) Cognitive decline and dementia in Down syndrome. Current Opinion in Psychiatry, 30, 102–7.Google Scholar
Hoyos, L. R. & Thakur, M. (2017) Fragile X premutation in women: recognizing the health challenges beyond primary ovarian insufficiency. Journal of Assisted Reproduction and Genetics, 34(3), 315–23. Available at: www.ncbi.nlm.nih.gov/pmc/articles/PMC5360682 [accessed 11 August 2018]Google Scholar
Hsieh, K. (2005) Analysis of hospital utilisation among adults with intellectual disability in one American state. Journal of Policy and Practice in Intellectual Disabilities, 2, 199.Google Scholar
Janicki, M., Davidson, P., Henderson, C. et al. (2002) Health characteristics and health services utilisation in older adults with intellectual disability living in community residences. Journal of Intellectual Disability Research, 46, 287–98.CrossRefGoogle Scholar
Jones, K. L. (2006) Smith’s Recognizable Patterns of Human Malformation (6th edn). Elsevier.Google Scholar
Kastner, T., Nathanson, R. & Friedman, D. L. (1993) Mortality among individuals with mental retardation living in the community. American Journal of Mental Retardation, 98, 285–92.Google Scholar
Kerr, M., Scheepers, M., Besag, F. et al. [working group of the International Association of the Scientific Study of Intellectual Disability] (2001) Clinical guidelines for the management of epilepsy in adults with an intellectual disability. Seizure, 10(6), 401–9.Google Scholar
Khalid, K. & Al-Salamah, S. M. (2006) Surgery for acute abdominal conditions in intellectually-disabled adults. ANZ Journal of Surgery, 76(3), 145–8.CrossRefGoogle ScholarPubMed
Lagu, M. P. H., Iezzoni, L. I. & Lindenauer, P. K. (2014) The axes of access – Improving care for patients with disabilities, New England Journal of Medicine, 370(19), 1847–51.CrossRefGoogle ScholarPubMed
McDermott, S., Breen, R., Platt, T. et al. (1997) Do behaviour changes herald physical illness in adults with mental retardation? Community Mental Health Journal, 33, 8597.Google Scholar
McGrath, P. J., Rosmus, C., Canfield, C. et al. (1998) Behaviours caregivers use to determine pain in non-verbal, cognitively impaired individuals. Developmental Medicine Child Neurology, 40, 340–3.Google Scholar
Meijer, M., Carpenter, S. & Scholte, F. A. (2004) European manifesto on basic standards of health care for people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 1, 1015.CrossRefGoogle Scholar
Mencap (2002) Death by Indifference.Google Scholar
Mental Health Commission (2006) Multidisciplinary Team Working: From Theory to Practice. Available at: www.mhcirl.ie/file/discusspapmultiteam.pdf [accessed 11 August 2018]Google Scholar
Meuwese-Jongejeugd, A., Vink, M., van Zanten, B. et al. (2006) Prevalence of hearing loss in 1598 adults with an intellectual disability: cross-sectional population based study. International Journal of Audiology, 45(11), 660–9.Google ScholarPubMed
Miller, D. T., Adam, M. P., Aradhya, S. et al. (2010) Consensus statement: Chromosomal microarray is a first-tier clinical diagnosis test for individuals with developmental disabilities or congenital anomalies. American Journal of Human Genetics, 86, 749–64.Google Scholar
Miller, J. & Wagner, M. (2013) Prader–Willi syndrome and sleep-disordered breathing. Pediatric Annals, 42(10), 200–4.CrossRefGoogle ScholarPubMed
Morad, M., Nelson, N. P., Merrick, J. et al. (2007) Prevalence and risk factors of constipation in adults with intellectual disability in residential care centers in Israel. Research in Development Disabilities, 28(6), 580–6.Google Scholar
Mullane, C. (2002) Young Deaths – Children with Disabilities in Care. Community Services Commission New South Wales.Google Scholar
New South Wales Ombudsman (2015) Report of Reviewable Deaths in 2012 and 2013 (vol. II, Deaths of People with Disability in Residential Care).Google Scholar
Nihira, K, Leland, H, & Lambert, N. (1993a) Adaptive Behaviour Scale. American Association on Mental Retardation, Washington, DC.Google Scholar
Nihira, K, Leland, H, & Lambert, N. (1993b) Adaptive Behaviour Scale-Residential and Community Examiner’s Manual. ProEd, Austin, Texas.Google Scholar
Nijrie, B. (1970) The normalization principle: Implications and comments. Journal of Mental Subnormality, 16, 6270.Google Scholar
Oulton, K., Wray, J., Carr, L. et al. (2016) Pay more attention: A national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families. BMJ Open, 6(12), e012333. doi: 10.1136/bmjopen-2016-012333Google Scholar
Prasher, V. (2004) Adaptive Behaviour Dementia Questionnaire (ABDQ). Research in Development Disabilities, 25(4), 385–97.Google ScholarPubMed
Robertson, J., Emerson, E., Gregory, N. et al. (2000) Lifestyle related risk factors for poor health in residential settings for people with intellectual disabilities. Research in Developmental Disabilities, 21, 469–86.Google Scholar
Royal Australian and New Zealand College of Psychiatrists (2015) Keeping Body and Mind Together: Improving the Physical Health and Life Expectancy of People with Serious Mental Illness. RANZCP.Google Scholar
Scheepers, M., Kerr, M., O’Hara, D. et al. (2005) Reducing health disparity in people with intellectual disabilities: A report from health issues special interest group of the international association for the scientific study of intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 2, 249255.Google Scholar
Schoenecker, J. G. (2013) Pathologic hip morphology in cerebral palsy and Down syndrome. Journal of Pediatric Orthopedics, 33 (suppl. 1), S2932.Google Scholar
Schoufour, J. D., Echteld, M. A., Bastiaanse, L. P. et al. (2015) The use of a frailty index to predict adverse health outcomes (falls, fractures, hospitalization, medication use, comorbid conditions) in people with intellectual disabilities. Research in Development Disabilities, 38, 3947. doi: 10.1016/j.ridd.2014.12.001CrossRefGoogle ScholarPubMed
Smiley, E. (2005) Epidemiology of mental health problems in adults with learning disability. Advances in Psychiatric Treatment, 11, 214–22.Google Scholar
Troller, J., Eagleson, C., Turner, B. et al. (2016) Intellectual disability health content within nursing curriculum: An audit of what our future nurses are taught. Nurse Education Today, 45, 72–9.Google Scholar
Trollor, J., Salomon, C., Curtis, J. et al. (2016) Positive cardiometabolic health for adults with intellectual disability: An early intervention framework. Austin Journal of Primary Health, 22. doi: 10.1071/PY15130Google Scholar
Trollor, J. N., Salomon, C. & Franklin, C. (2016) Prescribing psychotropic drugs to adults with an intellectual disability. Australian Prescriber, 39(4), 126–30.Google Scholar
Tuffrey-Wijne, I., Giatras, N., Goulding, L., et al. (2013) Identifying the factors affecting the implementation of strategies to promote a safer environment for patients with learning disabilities in NHS hospitals: A mixed-methods study. Health Services and Delivery Research, 1.13.Google Scholar
Tuffrey-Wijne, I., Goulding, L., Gordon, V. et al. (2014) The challenges in monitoring and preventing patient safety incidents for people with intellectual disabilities in NHS acute hospitals: Evidence from a mixed-methods study. BMC Health Services Research, 14, 432.Google Scholar
Turnbull, H. (1981) The Least Restrictive Alternative: Principles and Practices. American Association of Mental Retardation.Google Scholar
Uppal, H., Chandran, S., & Potluri, R. (2015) Risk factors for mortality in Down syndrome. Journal of Intellectual Disability Research, 59(9), 873–81.Google Scholar
van Blankenstein, M., Böhmer, C. J. & Hop, W. C. (2004) The incidence of adenocarcinoma in Barrett’s esophagus in an institutionalized population. European Journal of Gastroenterology & Hepatology, 16(9), 903–9.Google Scholar
van Splunder, J., Stilma, J. S., Bernsen, R. M. & Evenhuis, H. M. (2006) Prevalence of visual impairment in adults with intellectual disabilities in the Netherlands: cross-sectional study. Eye (London), 20(9), 1004–10.Google Scholar
Wallace, R. A. (2001) Biopsychosocial profile of adults with intellectual disability. Medical Journal of Australia, 174, 200–1.Google Scholar
Wallace, R. A. (2007) Clinical audit of gastrointestinal conditions occurring among adults with Down syndrome attending a specialist clinic. Journal of Intellectual and Developmental Disability, 32(1), 4550.Google Scholar
Wallace, R. A. (2015) Genetic testing of aetiology of intellectual disability in a dedicated physical healthcare outpatient clinic for adults with intellectual disability. Internal Medicine Journal. doi.org/10.1111/imj.12946Google Scholar
Wallace, R. A. & Beange, H. (2000) On the need for a specialist service within the generic hospital setting for the adult patient with intellectual disability and physical health problems. Journal of Intellectual and Developmental Disability, 33, 354–61.Google Scholar
Wallace, R. A. & Dalton, A. (2006) Clinician’s guide to physical health problems of older adults with down syndrome (supplement 1). Journal on Developmental Disabilities, 12(1), 192.Google Scholar
Wallace, R. A. & Schluter, P. (2008) Audit of cardiovascular disease risk factors among supported adults with intellectual disability attending an ageing clinic. Journal of Intellectual and Developmental Disability, 33(1), 4858.Google Scholar
Wallace, R. A., Schluter, P. J. & Webb, P. M. (2004) Effects of helicobacter pylori eradication among adults with intellectual disability. Journal of Intellectual Disability Research, 48(7), 646–54.Google Scholar
Wallace, R. A., Webb, P. M., & Schluter, P. J. (2002) Environmental, medical, behavioural and disability factors associated with Helicobacter pylori infection in adults with intellectual disability. Journal of Intellectual Disability Research, 46(1), 5160.Google Scholar
Western Australia Department of Health (2016) Hospital Stay Guideline for Hospitals and Disability Service Organisations. Perth Health Networks Directorate.Google Scholar
Wolfensberger, W. (1972) The principle of normalisation in human services. Toronto: National Institute of Mental Retardation.Google Scholar

Save book to Kindle

To save this book to your Kindle, first ensure [email protected] is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×