Book contents
- Frontmatter
- Contents
- Preface
- Acknowledgements
- 1 Consent: Nuremberg, Helsinki and beyond
- 2 Information and communication: the drift from agency
- 3 Informing and communicating: back to agency
- 4 How to rethink informed consent
- 5 Informational privacy and data protection
- 6 Genetic information and genetic exceptionalism
- 7 Trust, accountability and transparency
- Some conclusions and proposals
- Bibliography
- Institutional sources and documents
- Index
4 - How to rethink informed consent
Published online by Cambridge University Press: 05 June 2012
- Frontmatter
- Contents
- Preface
- Acknowledgements
- 1 Consent: Nuremberg, Helsinki and beyond
- 2 Information and communication: the drift from agency
- 3 Informing and communicating: back to agency
- 4 How to rethink informed consent
- 5 Informational privacy and data protection
- 6 Genetic information and genetic exceptionalism
- 7 Trust, accountability and transparency
- Some conclusions and proposals
- Bibliography
- Institutional sources and documents
- Index
Summary
INTRODUCTION: TWO MODELS OF INFORMED CONSENT
In Chapter 1 we argued that current thinking about informed consent, its justification, scope and standards, is problematic in a number of ways. We suggested that it would be profitable to ‘rethink’ informed consent. In Chapters 2 and 3 we explored two distinct models of information and communication. These models, in turn, support distinct approaches to informed consent. We shall argue in this chapter that although each model supports an account of the justification, the scope and the standards for informed consent, the conceptions of informed consent that emerge from these models differ in important ways. These differences have powerful implications for biomedical practice. By making explicit two different conceptions of informed consent, we pave the way for ‘rethinking’ informed consent in this chapter. In the chapters to follow we then shift from general and abstract theorising about communication and consent to a number of specific and concrete issues where informed consent is of key ethical importance.
The ‘standard’ way of thinking and talking about information and communication is, we suggested, the conduit/container model. When information is discussed in terms of the conduit/container model, it is thought of in abstraction from agents and from the speech acts by which they communicate. When we rely on this model, we think of information as ‘flowing’ or being ‘transferred’ between agents, who are thought of quite abstractly as ‘originating’ or ‘receiving’ messages. The message or content is highlighted, but the act of communicating is hidden.
- Type
- Chapter
- Information
- Rethinking Informed Consent in Bioethics , pp. 68 - 96Publisher: Cambridge University PressPrint publication year: 2007
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