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22 - Physician-assisted dying in children

from Section 3 - When a child dies: ethical issues at the end of life

Published online by Cambridge University Press:  07 October 2011

Douglas S. Diekema
Affiliation:
Seattle Children's Research Institute
Mark R. Mercurio
Affiliation:
Yale University School of Medicine
Mary B. Adam
Affiliation:
Department of Pediatrics, University of Arizona School of Medicine, Tucson
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Summary

Case narrative

Zak was a happy, healthy 3-year-old boy. One morning, Zak’s parents had difficulty waking him. They noted some spots on Zak’s chest and face, and thought that he had a mild viral infection. As the day progressed, Zak became increasingly lethargic and the spots increased, so his mother brought him to the doctor. The pediatrician was very concerned and activated the emergency medical services. Zak was taken to a local emergency department where he was quickly diagnosed with meningococcal septic shock. Appropriate therapies were initiated and Zak was transported to the regional pediatric intensive care unit (PICU).

In the PICU, Zak continued to receive appropriate treatment. His parents remained at his bedside and were clearly loving and very concerned for their child’s welfare. After several days, it was apparent that the septic emboli (which are the hallmark of meningococcal sepsis) had blocked blood flow in many of Zak’s capillary beds. In addition to renal and hepatic impairment, Zak’s hands and feet had obvious signs of necrosis, and it was assumed that there were infarcted areas in his brain (although this could not be confirmed because he was not stable enough to move to the scanner).

Type
Chapter
Information
Clinical Ethics in Pediatrics
A Case-Based Textbook
, pp. 123 - 130
Publisher: Cambridge University Press
Print publication year: 2011

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References

Applebaum, P.S.Grisso, T. 1988 Assessing patients’ capacities to consent to treatmentNew England Journal of Medicine 319 1635Google Scholar
Brahams, D. 1992 Euthanasia: doctor convicted of attempted murderLancet 340 782Google Scholar
Brock, D.W. 1992 Voluntary active euthanasiaHastings Center Report 22 10Google Scholar
Catlin, A.Carter, B. 2002 Creation of a neonatal end-of-life palliative care protocolJournal of Perinatology 22 184Google Scholar
Chervenak, F.A.McCullough, L.B.Arabin, B. 2006 Why the Groningen Protocol should be rejectedHastings Center Report 36 30Google Scholar
Davis, M.P. 2009 Does palliative sedation always relieve symptoms?Journal of Palliative Medicine 12 875Google Scholar
Dees, M.Vernooij-Dassen, M.Dekkers, W.van Weel, C. 2010 Unbearable suffering of patients with a request for euthanasia or physician-assisted suicide: an integrative reviewPsychooncology 19 339Google Scholar
Diekema, D.S.Botkin, J.R.the Committee on Bioethics, American Academy of Pediatrics 2009 Clinical report – forgoing medically provided nutrition and hydration in childrenPediatrics 124 813Google Scholar
Dussel, V.Joffe, S.Hilden, J.M. 2010 Considerations about hastening death among parents of children who die of cancerArchives of Pediatrics and Adolescent Medicine 164 231Google Scholar
Emanuel, E.J. 1994 Euthanasia. Historical, ethical, and empiric perspectivesArchives of Internal Medicine 154 1890Google Scholar
Grisso, T.Appelbaum, P.S.Hill-Fotouhi, C. 1997 The MacCAT-T: a clinical tool to assess patients’ capacities to make treatment decisionsPsychiatric Services 48 1415Google Scholar
Heath, J.A.Clarke, N.E.Donath, S.M. 2010 Symptoms and suffering at the end of life in children with cancer: an Australian perspectiveMedical Journal of Australia 192 71Google Scholar
Janse, A.J.Gemke, R.J.Uiterwaal, C.S. 2004 Quality of life: patients and doctors don’t always agree: a meta-analysisJournal of Clinical Epidemiology 57 653Google Scholar
Kodish, E. 2008 Paediatric ethics: a repudiation of the Groningen protocolLancet 371 892Google Scholar
Kon, A.A. 2007 Neonatal euthanasia is unsupportable: the Groningen protocol should be abandonedTheoretical Medicine and Bioethics 28 453Google Scholar
Kon, A.A. 2008 We cannot accurately predict the extent of an infant’s future suffering: the Groningen Protocol is too dangerous to supportAmerican Journal of Bioethics 8 27Google Scholar
Kon, A.A. 2009 Neonatal euthanasiaSeminars in Perinatology 33 377Google Scholar
Kon, A.A.Ablin, A.R. 2009 It’s not palliative care, it’s palliative treatmentLancet Oncology 10 106Google Scholar
Kon, A.A.Ablin, A.R. 2010 Palliative treatment: redefining interventions to treat suffering near the end of lifeJournal of Palliative Medicine 13 643Google Scholar
Kuhse, H.Singer, P. 1988 Doctors’ practices and attitudes regarding voluntary euthanasiaMedical Journal of Australia 148 623Google Scholar
Lindemann, H.Verkerk, M. 2008 Ending the life of a newborn: the Groningen ProtocolHastings Center Report 38 42Google Scholar
Maitra, R.Harfst, A.Bjerre, L.Kochen, M.Becker, A. 2005 Do German general practitioners support euthanasia? Results of a nation-wide questionnaire surveyEuropean Journal of General Practice 11 94Google Scholar
Maltoni, M.Pittureri, C.Scarpi, E. 2009 Palliative sedation therapy does not hasten death: results from a prospective multicenter studyAnnals of Oncology 20 1163Google Scholar
Meier, D.E.Emmons, C.A.Wallenstein, S. 1998 A national survey of physician-assisted suicide and euthanasia in the United StatesNew England Journal of Medicine 338 1193Google Scholar
Mercurio, M.R.Maxwell, M.A.Mears, B.J.Ross, L.F.Silber, T.J. 2008 American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 2Pediatrics in Review/American Academy of Pediatrics 29 e15Google Scholar
Ross, L.F. 2009 Against the tide: arguments against respecting a minor’s refusal of efficacious life-saving treatmentCambridge Quarterly of Healthcare Ethics 18 302Google Scholar
Saigal, S.Feeny, D.Rosenbaum, P. 1996 Self-perceived health status and health-related quality of life of extremely low-birth-weight infants at adolescenceJournal of the American Medical Association 276 453Google Scholar
Saigal, S.Stoskopf, B.L.Feeny, D. 1999 Differences in preferences for neonatal outcomes among health care professionals, parents, and adolescentsJournal of the American Medical Association 281 1991Google Scholar
Saigal, S.Stoskopf, B.Pinelli, J. 2006 Self-perceived health-related quality of life of former extremely low birth weight infants at young adulthoodPediatrics 118 1140Google Scholar
Sprangers, M.Aaronson, N. 1992 The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a reviewJournal of Clinical Epidemiology 45 743Google Scholar
van der Maas, P.J.van der Wal, G.Haverkate, I. 1996 Euthanasia, physician-assisted suicide, and other medical practices involving the end of life in the Netherlands, 1990–1995New England Journal of Medicine 335 1699Google Scholar
Verhagen, E.Sauer, P.J. 2005 The Groningen protocol – euthanasia in severely ill newbornsNew England Journal of Medicine 352 959Google Scholar
Wolfe, J.Hammel, J.F.Edwards, K.E. 2008 Easing of suffering in children with cancer at the end of life: is care changing?Journal of Clinical Oncology 26 1717Google Scholar

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