Skip to main content Accessibility help
×
Hostname: page-component-78c5997874-dh8gc Total loading time: 0 Render date: 2024-11-07T06:26:12.169Z Has data issue: false hasContentIssue false

5 - Relations between formal and family care: divergent practices in care at home for people living with dementia

Published online by Cambridge University Press:  13 May 2022

Christine Ceci
Affiliation:
University of Alberta
Mary Ellen Purkis
Affiliation:
University of Victoria
Get access

Summary

In this chapter we analyse a theoretical and practical problem of longstanding: what are good ways to think about how family care practices and those of the formal system relate? Few would disagree that the ways that families and formal care systems handle daily life are different, with, as noted in Chapter 1, extensive research efforts undertaken over many decades addressing issues that arise from these differences (see, for example, Twigg, 1989; Bond, 1992; Lyons and Zarit, 1999; Zarit et al, 1999; Ward-Griffin and McKeever, 2000; Wiles, 2003; Büscher et al, 2011; Stephan et al, 2018; O’Shea et al, 2019). Yet, despite a long interest in, and study of, relations between family care practices and those of the formal system, difficulties persist, with families reluctant at times to use services that are meant to be helpful or using these supports without experiencing them as helpful.

In this chapter we don't try to ‘solve’ this problem but rather, we try to understand it differently by following the experiences of the Cruz family, introduced in Chapter 4, and specifically focus on those events in our Field notes that show differences between the family's care practices and those of formal systems. The aim is to consider what, in these specific situations, may be at stake, what types of relations are being enacted and what types of relations might be helpful. This leads us not to ‘general rules’ stipulating what should be done, or broad claims about how these differing practices should relate, but rather, to a different, more complicated and more located sense of the problem.

As noted previously, the question we are exploring is not a new one, but in this chapter we try to work through it in a new way. To do this we draw on Isabelle Stengers’ (2005a, 2005b, 2015 [2009], 2018, 2019) writing about an ‘ecology of practices’ to theorize the idea of a divergence in family and formal care practices that has implications for care. In Stengers’ view, what makes a practice diverge is also what makes it a particular practice; overriding these differences and imposing similarity, such as efforts to ‘professionalize’ family caregiving, can damage the practice so aligned.

Type
Chapter
Information
Care at Home for People Living with Dementia
Delaying Institutionalization, Sustaining Families
, pp. 89 - 107
Publisher: Bristol University Press
Print publication year: 2021

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Save book to Kindle

To save this book to your Kindle, first ensure [email protected] is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×