Skip to main content Accessibility help

We use cookies to distinguish you from other users and to provide you with a better experience on our websites. Close this message to accept cookies or find out how to manage your cookie settings.

Close cookie message
×
Hostname: page-component-78c5997874-xbtfd Total loading time: 0 Render date: 2024-11-09T05:58:39.718Z Has data issue: false hasContentIssue false

Chapter 10 - Diverse Sex Development

Critical Biopsychosocial Perspectives

from Section 2 - Gynaecology

Published online by Cambridge University Press:  30 August 2017

By
Lih-Mei Liao
Edited by
Leroy C. Edozien  and
P. M. Shaughn O'Brien
Leroy C. Edozien
Affiliation:
Manchester Academic Health Science Centre
P. M. Shaughn O'Brien
Affiliation:
Keele University School of Medicine
Get access

Summary

A summary is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Chapter
Information
Biopsychosocial Factors in Obstetrics and Gynaecology , pp. 73 - 81
Publisher: Cambridge University Press
Print publication year: 2017

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Dreger, A.D., Chase, C., Sousa, A., Gruppusso, P.A., & Frader, J. (2005). Changing the nomenclature/taxonomy of intersex: A scientific and clinical rationale. Journal of Pediatric Endocrinology & Metabolism, 18, 735–738.CrossRefGoogle ScholarPubMed
Blackless, M., Charuvastra, A., Derryck, A., & Fausto-Sterling, A. (2000). How sexually dimorphic are we? Review and synthesis. American Journal of Human Biology, 12, 151–166.3.0.CO;2-F>CrossRefGoogle ScholarPubMed
Lee, P.A., Houk, C.P., Ahmed, S.F., & Hughes, I.A. (2006). Consensus statement on management of intersex disorders. International Consensus Conference on Intersex. Pediatrics, 118(2), e488–500.CrossRefGoogle ScholarPubMed
Davis, G. (2013). The power in a name: Diagnostic terminology and diverse experiences. Psychology & Sexuality, doi:10.1080/19419899.2013.831212.CrossRefGoogle Scholar
Balen, A., Breech, L., Creighton, S., & Liao, L. An Introduction to Pediatric & Adolescent Gynaecology. In Creighton, S., Balen, A., Breech, L. & Liao, L. (eds.) Pediatric & Adolescent Gynecology: A Problem-Based Approach. Cambridge University Press, in press.Google Scholar
Jordan-Young, R.M. (2011). Hormones, context and ‘Brain Gender’: A review of evidence from congenital adrenal hyperplasia. Social Science & Medicine, doi:10.1016/jsocscimed.2011.08.026.CrossRefGoogle Scholar
Stout, S.A., Litvak, M., Robbins, N.M., & Sandberg, D.E. (2010). Congenital adrenal hyperplasia: Classification of studies employing psychological endpoints. International Journal of Pediatric Endocrinology, doi:10.1155/2010/191520.CrossRefGoogle Scholar
Liao, L.M. & Simmonds, M. (2013). A values-driven and evidence-based health care psychology for diverse sex development. Psychology & Sexuality, doi:10.1080/19419899.2013.831217.CrossRefGoogle Scholar
Newman, K., Randolph, J., & Anderson, K. (1992). The surgical management of infants and children with ambiguous genitalia: Lessons learned from 25 years. Annals of Surgery, 215, 644–653.CrossRefGoogle Scholar
Donaghoe, P.K. (1991). Clinical management of intersex abnormalities. Current Problems in Surgery, 28, 519–579.CrossRefGoogle Scholar
American Academy of Pediatrics (2000). Evaluation of the newborn with developmental anomalies of the external genitalia. Pediatrics, 106, 138–142.CrossRefGoogle Scholar
Han, T.S., Walker, B.R., Arlt, W., & Ross, R.J. (2015). Treatment and health outcome in adults with congenital adrenal hyperplasia. Nature Reviews Endocrinology, 10 (2), 115–124.CrossRefGoogle Scholar
Creighton, S., Chernausek, S., Romao, R., Ransley, P., & Pippi Salle, J. (2012). Timing and nature of reconstructive surgery for disorders of sex development – Introduction. Journal of Pediatric Urology, 8, 602–610.CrossRefGoogle Scholar
Lee, P.A., Nordenström, A., & Houk, C.P. (2016). Global Disorders of Sex Development Update since 2006: Perceptions, Approach and Care. Hormone Research in Paediatrics, doi: 10.1159/000442975.CrossRefGoogle Scholar
Michala, L., Liao, L.M., Wood, D., Conway, G.S., & Creighton, S.M. (2014). Practice changes in childhood surgery on ambiguous genitalia? Journal of Pediatric Urology, 10(5), 934–939.CrossRefGoogle ScholarPubMed
Creighton, S., Minto, C., & Steele, S.J. (2001). Feminising childhood surgery in ambiguous genitalia: Objective cosmetic and anatomical outcomes in adolescence. Lancet, 358, 124–125.CrossRefGoogle Scholar
Minto, C.L., Liao, L.M., Woodhouse, C.R.J., Ransley, P.G., & Creighton, S.M. (2003). Adult outcomes of childhood clitoral surgery for ambiguous genitalia. Lancet, 361, 1252–1257.CrossRefGoogle ScholarPubMed
Crouch, N.S., Liao, L.M., Woodhouse, C.R., Conway, G.S., & Creighton, S.M. (2008) Sexual function and genital sensation following feminising genitoplasty for congenital adrenal hyperplasia. J Urol, 179(2), 634–638.CrossRefGoogle ScholarPubMed
Wisniewski, A.B., Migeon, C.J., Meyer-Bahlburg, H.F.L., Gearhart, J.P., Berkovitz, G.D., Brown, T.R., & Money, J. (2000). Complete androgen insensitivity syndrome: Long-term medical, surgical, and psychosexual outcome. Journal of Clinical Endocrinology and Metabolism, doi: 10.1210/jcem.85.8.6742.CrossRefGoogle Scholar
Anonymous, 1994. Once a dark secret. BMJ, 308, 542.CrossRefGoogle Scholar
Davis, G. & Feder, E.K. (eds.) (2015) Narrative Symposium: Intersex. Narrative Inquiry in Bioethics, 5(2), 87–125.CrossRefGoogle ScholarPubMed
Simmonds, M. Patients and parents in decision making and management. In Balen, AH (ed.) Paediatric and adolescent gynaecology – A multidisciplinary approach. Cambridge, UK: Cambridge University Press, 2004, 205–228.CrossRefGoogle Scholar
Alderson, J., Madill, A., & Balen, A. (2004). Fear of devaluation: Understanding the experience of intersexed women with androgen insensitivity syndrome. British Journal of Health Psychology, 9(1), 81–100.CrossRefGoogle ScholarPubMed
Boyle, M., Smith, S., & Liao, L.M. (2005). Adult genital surgery for intersex: A solution to what problem? Journal of Health Psychology, 10, 573–584.CrossRefGoogle ScholarPubMed
Liao, L.M. (2003). Learning to assist women born with atypical genitalia: Journey through ignorance, taboo and dilemmas. Journal of Reproductive & Infant Psychology, 2, 229–238.CrossRefGoogle Scholar
Rokhal, R.S. & Creighton, S.M. (2012). Management of Vaginal Agenesis. Journal of Pediatric & Adolescent Gynecology, doi: 10.1016/j.jpag.2011.06.003.CrossRefGoogle Scholar
Baratz, A.B., Sharp, M.K., & Sandberg, D.E. Disorders of sex development peer support. In Hiort, O. & Ahmed, S. (eds.) Understanding differences and disorders of sex development (dsd). Basel: Karger, 2014, pp 99–112.CrossRefGoogle Scholar
Liao, L.M. Towards a clinical-psychological approach for addressing the hetero sexual concerns of intersexed women. In Clarke, V. & Peel, E. (eds.) Out in psychology: lesbian gay bisexual transgender and queer perspectives. Wiley 2007, pp 391–408.CrossRefGoogle Scholar
Liao, L.M. & Simmonds, M. Communicating about diverse sex development. In Wiggens, J. & Middleton, A. (eds.) Getting the message across: practical advice for genetics health care professionals. Oxford University Press, 2013, pp 42–60.Google Scholar
Alderson, J., Roen, K., & Muscarella, M. Psychological Care: Addressing the Effects of Sexual and Gender Norms. In Creighton, S., Balen, A., Breech, L. & Liao, L. (eds.) Pediatric & Adolescent Gynecology: A Problem-Based Approach. Cambridge University Press, in press.Google Scholar
Magritte, E. (2012). Working together in placing the long term interests of the child at the heart of the DSD evaluation. Journal of Pediatric Urology, doi:10.1016/j.jpurol.2012.07.011.CrossRefGoogle Scholar
Liao, L.M. Stonewalling emotion. In Davis, G. & Feder, E. (eds.) Narrative Symposium: Intersex. Narrative Inquiry in Bioethics, 2015, 5(2), 143–150.Google Scholar
Tamar-Mattis, A., Baratz, A., Baratz Dalke, K., & Karkazis, K. (2013). Emotionally and cognitively informed consent for clinical care for differences of sex development. Psychology & Sexuality, doi: 10.1080/19419899.2013.831215CrossRefGoogle Scholar
Reiner, W.G. & Gearhart, J.P. (2004). Discordant sexual identity in some genetic males with cloacal exstrophy assigned to female sex at birth. N Engl J Med, 350, 333–341, doi: 10.1056/NEJMoa022236.CrossRefGoogle ScholarPubMed
Palermo, G., Joris, H., Devroey, P., & Van Sterteghem, A.C. (1992). Pregnancies after intracytoplasmic injection of a single spermatozoon into an oocyte. Lancet, 340, 12–18.CrossRefGoogle ScholarPubMed
Katz, M.D., Kligman, I., Li-Qun, C., Yuan-Shan, Z., Fratianni, C. et al. (1997). Paternity by intrauterine insemination with sperm from a man with 5-alpha reductase 2 deficiency. NEJM, 336, 994–998.CrossRefGoogle Scholar
Houk, C.P. & Lee, P.A. (2013). Approach to assigning gender in 46,XX congenital adrenal hyperplasia with male external Genitalia: Replacing Dogmatism with Pragmatism. JCEM, doi: 10.1210/jc.2010-0714.CrossRefGoogle Scholar
Liao, L.M., Wood, D., & Creighton, S.M. (2015). Between a rock and a hard place: Parents choosing normalising cosmetic genital surgery for their children. BMJ, 351:h5124.CrossRefGoogle Scholar
Susman, J. (1994). Disability, stigma and deviance. Social Science & Medicine, 38(1), 15–22.CrossRefGoogle ScholarPubMed
Goffman, E. Stigma: Notes on the Management of Spoiled Identity. New York: Prentice-Hall, 1963.Google Scholar
Tiefer, L. Sex is not a Natural Act and Other Essays. Oxford: Westview Press, 1995.Google ScholarPubMed
May, B., Boyle, M., & Grant, D. (1996). A comparative study of sexual experiences: Women with diabetes and women with congenital adrenal hyperplasia due to 21-hydroxylase deficiency. Journal of Health Psychology, 1, 479–492.CrossRefGoogle ScholarPubMed
Minto, C.L., Liao, K.L.M., Conway, G.S., & Creighton, S.M. (2003). Sexual function and complete androgen insensitivity syndrome. Fertility and Sterility, 80, 157–164.CrossRefGoogle ScholarPubMed
Liao, L.M., Doyle, J., Crouch, N.S., & Creighton, S.M. (2006). Dilation as treatment for vaginal agenesis and hypoplasia: A pilot exploration of benefits and barriers as perceived by patients. Journal of Obstetrics & Gynecology, 26, 144–148.CrossRefGoogle ScholarPubMed
Ismail-Pratt, I.S., Bikoo, M., Liao, L.M., Conway, G.S., & Creighton, S.M. A prospective outcome study of vaginal dilation therapy as first line treatment for vaginal agenesis. Manuscript submitted for publication.Google Scholar
Berra, M., Liao, L-M., Creighton, S.M., & Conway, G.S. (2010). Long-term health issues of women with XY karyotype. Maturitas, 65, 172–178.CrossRefGoogle ScholarPubMed
Deans, R., Creighton, S.M., Liao, L-M., & Conway, G.S. (2012). Timing of gonadectomy in adult women with complete androgen insensitivity syndrome: Patient preferences and clinical evidence. Clinical Endocrinology, doi: 10.1111/j.1365-2265.2012.04330.x.CrossRefGoogle Scholar
Shaw, A., & Hurst, J.A. (2009). ‘I don’t see any point in telling them’: Attitudes to sharing genetic information in the family and carrier testing of relatives among British Pakistani adults referred to a genetics clinic. Ethnicity and Health, 14(2), 205–224.CrossRefGoogle ScholarPubMed
Slade, P., O’Neil, C., Simpson, A.J., & Lashen, H. (2007). The relationship between perceived stigma, disclosure patterns, support and distress in new attendees at an infertility clinic. Human Reproduction, 22, 2309–2317.CrossRefGoogle ScholarPubMed

Save book to Kindle

To save this book to your Kindle, first ensure [email protected] is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×