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1 results

  • 12 - Family issues

  • Edited by Kieran C. Murphy, Education and Research Centre, Royal College of Surgeons of Ireland, Peter J. Scambler, Institute of Child Health, University College London
  • Book:
    Velo-Cardio-Facial Syndrome
    Published online:
    11 August 2009
    Print publication:
    30 June 2005, pp 219-229

  • Summary

    The impact on the family on finding that their newborn is going to need a lot more care and attention than other children puts a huge strain on everyone involved. The social implications for the velo-cardio-facial syndrome (VCFS) child or adult are enormous. As babies they are often small and developmentally delayed but do not look out of place in a pram/pushchair even at the toddler stage. As the children mature, they usually appear "normal" at first sight to those who do not know them although some displays of immature social behavior are often noted. A clear and sympathetic understanding on the part of the physician and a full explanation of the risks and benefits of the various treatment options available is very important to ease the pain and frustration that many parents and other family members experience.