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This chapter uses Don Delillo’s novel Zero K to consider the historical and structural relationship between bioethics and biocapitalism, particularly in the development of consent forms and contract labour. In this way, the essay examines the role human capital theory and transhumanism have played in influencing definitions of human nature and the bioethical frameworks predicated on these definitions. Using the techniques of literary narrative bioethics and feminist relational bioethics, the essay carefully interprets Zero K’s treatment of cryonics as a bioethical dilemma too often contained and constrained by historical and ideological conceptions of consent, which the novel seeks to critique. Ultimately, the chapter offers a form of posthuman literary narrative bioethics as an alternative methodology.
Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.
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