The contribution made by informal carers to the provision of care in the
community in the UK is formally acknowledged in the 1995 Carers
(Recognition and Services) Act. This legislation has focused attention, once
again, on the relationship between formal services and those providing
informal care. The Act has re-created a lack of clarity about the position carers
hold in the carer dyad. Findings are presented here from an exploratory study
about the experience of dementia. This seeks to examine the realities of caring
for a relative with dementia in the context of three particular aspects of the
caring activities which relate to role ambiguity: the needs of carers, their
relationship with formal services and their position as being experienced and
skilled in the care of their relatives.