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A commentary on “‘What it is like to be human’: The existential dimension of care as perceived by professionals caring for people approaching death” (Bäckersten et al., 2023)

Published online by Cambridge University Press:  14 March 2024

Ana Carolina da Rocha Monteiro*
Affiliation:
Faculty of Health Sciences and Nursing, Universidade Católica Portuguesa, Porto, Portugal‡
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Abstract

Type
Letter to the Editor
Copyright
© The Author(s), 2024. Published by Cambridge University Press.

Dear Editor,

I carefully read the recently published article entitled “‘What it is like to be human’: The existential dimension of care as perceived by professionals caring for people approaching death” (Bäckersten et al. Reference Bäckersten, Molander and Benkel2023). The authors state that the objective of this study was to investigate how professionals caring for people with life-threatening diseases perceive the existential dimension of care. The title immediately caught my attention, as it addresses the topic of my research.

In fact, this is a particularly relevant topic, which reminds me of the question posed by Viktor Frankl: “how is it possible to say yes to life despite everything?” (Frankl Reference Frankl2012), and how health professionals can help patients recognize their spiritual needs, even more so in an end-of-life situation.

The spiritual dimension is included in the definition of palliative care, which has as its main objective the improvement of the quality of life of patients and their families, in situations of potentially fatal illness, with physical, psychological, social, or spiritual needs (World Health Organization 2020).

The International Council of Nursing also mentions that nurses must promote an environment in which the human rights, values, customs, and religious and spiritual beliefs of the individual, family, or community are recognized and respected (International Council of Nurses 2021).

However, although the importance of spirituality is unquestionable in person-centered care, and it is historically very rooted in nursing, spiritual needs are often difficult to assess using scientific assessment instruments (Lalani Reference Lalani2020). Furthermore, some studies suggest that this difficulty may be related to a lack of clear understanding of what spirituality means, what spiritual care entails and due to poor educational preparation (Cooper et al. Reference Cooper, Chang and Sheehan2013). Therefore, the present investigation is particularly relevant, as professionals are consulted regarding their perceptions of the existential dimension.

Although, in some studies, professionals reported difficulty in defining the concept (Ross Reference Ross1994; Strang et al. Reference Strang, Strang and Ternestedt2002), in this investigation, the majority of participants were familiar with it (Bäckersten et al. Reference Bäckersten, Molander and Benkel2023). This may be related to the fact that these professionals have already been practicing their profession for more than 10 years and have knowledge on the subject.

Some professionals reported that communicating about existential needs implies courage on their part and the boldness to ask questions, as well as physical presence (Bäckersten et al. Reference Bäckersten, Molander and Benkel2023). Resistance to this boldness may be due to professionals’ lack of understanding of their own spirituality (Govier Reference Govier2000) or lack of training, which leads nurses to refer situations to other professionals (Caldeira et al. Reference Caldeira, Simões Figueiredo and Da Conceição2016).

Among the main conclusions of the study, the connection between the physical and spiritual dimensions also appears. It ends up being in the moments when we care for the patient’s body that questions about the soul often arise. And it is often in these moments that we realize how it is possible to say yes to life, despite everything, and that we realize what it is like to be human.

Funding

This research received no specific grant from any funding agency, commercial or not-for-profit sectors.

Competing interests

The authors declare no conflict of interest.

Footnotes

The original version of this article was published with an incorrect affiliation. A notice detailing this has been published and the error rectified in the online and print PDF and HTML copies.

References

Bäckersten, C, Molander, U, Benkel, I, et al. (2023) “What it is like to be human”: The existential dimension of care as perceived by professionals caring for people approaching death. Palliative and Supportive Care, 16. doi:10.1017/S1478951523001554Google Scholar
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