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Red flags: a case series of clinician–family communication challenges in the context of CHD

Published online by Cambridge University Press:  16 January 2017

Priya Sekar ,
Katie L. Marcus ,
Erin P. Williams  and
Renee D. Boss
Priya Sekar*
Affiliation:
Division of Pediatric Cardiology, Department of Pediatrics. Charlotte R. Bloomberg Children’s Center, Johns Hopkins Hospital, Baltimore, Maryland, United States of America
Katie L. Marcus
Affiliation:
Johns Hopkins University School of Medicine, Baltimore, Maryland, United States of America
Erin P. Williams
Affiliation:
Johns Hopkins Berman Institute of Bioethics, Baltimore, Maryland, United States of America
Renee D. Boss
Affiliation:
Johns Hopkins University School of Medicine, Baltimore, Maryland, United States of America Johns Hopkins Berman Institute of Bioethics, Baltimore, Maryland, United States of America
*
Correspondence to: P. Sekar, Division of Pediatric Cardiology, Department of Pediatrics, Charlotte R Bloomberg Children’s Center, Johns Hopkins Hospital, 1800 Orleans Street, Baltimore, MD 21287, United States of America. Tel: 410 955 5987; Fax: 410 955 0897; E-mail: [email protected]
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Abstract

We describe three cases of newborns with complex CHD characterised by communication challenges. These communication challenges were categorised as patient, family, or system-related red flags. Strategies for addressing these red flags were proposed, for the goal of optimising care and improving quality of life in this vulnerable population.

Keywords

Communicationred flagsCHD
Type
Brief Report
Information
Cardiology in the Young , Volume 27 , Issue 5 , July 2017 , pp. 1000 - 1003
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Copyright
© Cambridge University Press 2017 

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References

1. Kahn, JM, Le, T, Angus, DC, et al. The epidemiology of chronic critical illness in the United States. Crit Care Med 2015; 43: 282–287.Google Scholar
2. Namachivayam, SP, Alexander, J, Slater, A, et al. Five-year survival of children with chronic critical illness in Australia and New Zealand. Crit Care Med 2015; 43: 1978–1985.Google Scholar
3. Boss, R, Nelson, J, Weissman, D, et al. Integrating palliative care into the PICU: a report from the Improving Palliative Care in the ICU Advisory Board. Pediatr Crit Care Med 2014; 15: 762–767.Google Scholar
4. Marcus, KL, Henderson, CM, Boss, RD. Chronic critical illness in infants and children: a speculative synthesis on adapting ICU care to meet the needs of long-stay patients. Pediatr Crit Care Med 2016; 17: 743–752.Google Scholar
5. Svensson, B, Idvall, E, Nilsson, F, Liuba, P. Health-related quality of life in children with surgery for CHD: a study from the Swedish National Registry for Congenital Heart Disease. Cardiol Young 2016; 1–11; https://doi.org/ doi: 10.1017/S1047951116000585.Google Scholar
6. Hehir, DA, Easley, RB, Byrnes, J. Noncardiac challenges in the cardiac ICU: feeding, growth and gastrointestinal complications, anticoagulation, and analgesia. World J Pediatr Congenit Heart Surg 2016; 7: 199–209.Google Scholar
7. Blume, ED, Balkin, EM, Aiyagari, R, et al. Parental perspectives on suffering and quality of life at end-of-life in children with advanced heart disease: an exploratory study. Pediatr Crit Care Med 2014; 15: 336–342.Google Scholar
8. Keele, L, Keenan, HT, Sheetz, J, Bratton, SL. Differences in characteristics of dying children who receive and do not receive palliative care. Pediatrics 2013; 132: 72–78.Google Scholar