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11th Annual William J. Rashkind Memorial Lecture in paediatric cardiology – a short history of progress: Where we've been, where we are, where we're going*

Published online by Cambridge University Press:  18 January 2013

Gil Wernovsky*
Affiliation:
Department of Pediatrics, University of Pennsylvania School of Medicine, Pennsylvania, United States of America Division of Cardiology, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America
*
Correspondence to: Gil Wernovsky, M.D., F.A.C.C., F.A.A.P., Associate Chief, Division of Cardiology, Staff Intensivist, Cardiac Intensive Care Unit, Medical Director, NeuroCardiac Care Program, The Children's Hospital of Philadelphia; Professor of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America; E-mail: [email protected]

Abstract

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Type
Original Article
Copyright
Copyright © Cambridge University Press 2012

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Footnotes

*

Presented at: The Children's Hospital of Philadelphia Cardiology 2012, 16th Annual Update on Pediatric and Congenital Cardiovascular Disease, Orlando, Florida, February 22–26, 2012.

References

1. Wright, R. A Short History of Progress. House of Anansi Press, Toronto, Ontario, Canada, 2004.Google Scholar
3. Noonan, JA. A history of pediatric subspecialties: the development of pediatric cardiology. Pediatr Res 2004; 56: 298306.CrossRefGoogle ScholarPubMed
4. Savona, VC, Grech, V. Concepts in cardiology – a historical perspective. Images Paediatr Cardiol 1999; 1: 2231.Google ScholarPubMed
5. Castaneda, AR. Congenital heart disease: a surgical–historical perspective. Ann Thorac Surg 2005; 79: S2217S2220.CrossRefGoogle ScholarPubMed
6. Rashkind, WJ. Pediatric cardiology: a brief historical perspective. Pediatr Cardiol 1979; 1: 6371.CrossRefGoogle Scholar
7. Pollard, S. The Idea of Progress: History and Society. Pelican Press, Harmondsworth, England, 1972.Google Scholar
8. Tabbutt, S, Dominguez, TE, Ravishankar, C, et al. Outcomes after the Stage I reconstruction comparing the right ventricular to pulmonary artery conduit with the modified Blalock–Taussig shunt. Ann Thorac Surg 2005; 80: 15821591.CrossRefGoogle Scholar
9. Ohye, RG, Sleeper, LA, Mahony, L, et al. Comparison of shunt types in the Norwood procedure for single-ventricle lesions. NEJM 2010; 362: 19801992.CrossRefGoogle ScholarPubMed
10. Hsu, DT, Zak, V, Mahony, L, et al. Enalapril in infants with single ventricle: results of a multicenter randomized trial. Circulation 2010; 122: 333340.CrossRefGoogle ScholarPubMed
11. Lemler, MS, Scott, WA, Leonard, SR, Stromberg, D, Ramaciotti, C. Fenestration improves clinical outcome of the Fontan procedure: a prospective, randomized study. Circulation 2002; 105: 207212.CrossRefGoogle ScholarPubMed
12. Newburger, JW, Jonas, RA, Wernovsky, G, et al. A comparison of the perioperative neurologic effects of hypothermic circulatory arrest versus low-flow cardiopulmonary bypass in infant heart surgery. NEJM 1993; 329: 10571064.CrossRefGoogle ScholarPubMed
13. Festinger, L. A Theory of Cognitive Dissonance. Stanford University Press, Palo Alto, California, 1957.CrossRefGoogle Scholar
14. Festinger, L. Cognitive dissonance. Sci Am 1962; 207: 93102.CrossRefGoogle ScholarPubMed
16. Williams, L. Disrupt: Think the Unthinkable to Spark Transformation in your Business. FT Press, Indianapolis, IN, 2010.Google Scholar
17. Marino, BS, Lipkin, PH, Newburger, JW, et al. Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association. Circulation 2012; 126: 11431172.CrossRefGoogle ScholarPubMed
18. Goldberg, CS, Mussatto, K, Licht, D, Wernovsky, G. Neurodevelopment and quality of life for children with hypoplastic left heart syndrome: current knowns and unknowns. Cardiol Young 2011; 21 (Suppl 2): 8892.CrossRefGoogle Scholar
19. Dunbar-Masterson, C, Wypij, D, Bellinger, DC, et al. General health status of children with d-transposition of the great arteries after the arterial switch operation. Circulation 2001; 104 (Suppl 1): I138I142.CrossRefGoogle ScholarPubMed
20. Kirshbom, PM, Flynn, TB, Clancy, RR, et al. Late neurodevelopmental outcome after repair of total anomalous pulmonary venous connection. J Thorac Cardiovasc Surg 2005; 129: 10911097.CrossRefGoogle ScholarPubMed
21. Andropoulos, DB, Easley, RB, Brady, K, et al. Changing expectations for neurological outcomes after the neonatal arterial switch operation. Ann Thorac Surg 2012; 94: 12501256.CrossRefGoogle ScholarPubMed
22. Luyckx, K, Missotten, L, Goossens, E, Moons, P and the i-DETACH Investigators. Individual and contextual determinants of quality of life in adolescents with congenital heart disease. J Adolesc Health 2012; 51: 122128.CrossRefGoogle ScholarPubMed
23. Marino, BS, Tomlinson, RS, Drotar, D, et al. Quality-of-life concerns differ among patients, parents and medical providers in children and adolescents with congenital and acquired heart disease. Pediatrics 2009; 123: e708e715.CrossRefGoogle ScholarPubMed
24. Uzark, K, King, E, Spicer, R, Beekman, R, Kimball, T, Varni, JW. The clinical utility of health-related quality of life assessment in pediatric cardiology outpatient practice. Congenit Heart Dis. 2012 Sep 12. doi:10.1111/chd.12002. [Epub ahead of print].CrossRefGoogle Scholar
25. Mussatto, K. Adaptation of the child and family to life with a chronic illness. Cardiol Young 2006; 16 (Suppl 3): 110116.CrossRefGoogle ScholarPubMed
26. Rychik, J, Veldtman, G, Rand, E, et al. The precarious state of the liver after a Fontan operation: summary of a multidisciplinary symposium. Pediatr Cardiol 2012; 33: 10011012.CrossRefGoogle ScholarPubMed
27. Suvarna, RM, Rai, K, Hegde, AM. Oral health of children with congenital heart disease following preventive treatment. J Clin Pediatr Dent 2011; 36: 9398.CrossRefGoogle ScholarPubMed
28. Kinoshita, K, Tosaka, Y, Sakamoto, K, et al. Breast deformities caused by the operation for congenital heart disease. Kyobu Geka 2012; 65: 446453.Google ScholarPubMed
29. Woodward, CS. Keeping children with congenital heart disease healthy. J Pediatr Health Care 2011; 25: 373378.CrossRefGoogle ScholarPubMed
30. Surmeli-Onay, O, Cindik, N, Kinik, ST, Ozkan, S, Bayraktar, N, Tokel, K. The effect of corrective surgery on serum IGF-1, IGFBP-3 levels and growth in children with congenital heart disease. J Pediatr Endocrinol Metab 2011; 24: 483487.CrossRefGoogle ScholarPubMed
32. Hilton-Kamm, D, Chang, RK, Sklansky, M. Prenatal diagnosis of hypoplastic left heart syndrome: impact of counseling patterns on parental perceptions and decisions regarding termination of pregnancy. Pediatr Cardiol 2012; doi:10.1007/s00246-012-0366-9 [epub ahead of print].CrossRefGoogle ScholarPubMed
33. Swanson, TM, Selamet Tierney, ES, Tworetzky, W, Pigula, F, McElhinney, DB. Truncus arteriosus: diagnostic accuracy, outcomes and impact of prenatal diagnosis. Pediatr Cardiol 2009; 30: 256261.CrossRefGoogle ScholarPubMed
34. Chenni, N, Lacroze, V, Pouet, C, et al. Fetal heart disease and interruption of pregnancy: factors influencing the parental decision-making process. Prenat Diagn 2012; 32: 168172.CrossRefGoogle ScholarPubMed
35. Yu, Z, Xi, Y, Ding, W, et al. Congenital heart disease in a Chinese hospital: pre- and postnatal detection, incidence, clinical characteristics and outcomes. Pediatr Int 2011; 53: 10591065.CrossRefGoogle Scholar
40. Karamlou, T, McCrindle, BW, Blackstone, EH, et al. Lesion-specific outcomes in neonates undergoing congenital heart surgery are related predominantly to patient and management factors rather than institution or surgeon experience: a Congenital Heart Surgeons Society Study. J Thorac Cardiovasc Surg 2010; 139: 569577.CrossRefGoogle ScholarPubMed
41. Jacobs, JP, O'Brien, SM, Pasquali, SK, et al. Variation in outcomes for risk-stratified pediatric cardiac surgical operations: an analysis of the STS congenital heart surgery database. Ann Thorac Surg 2012; 94: 564571.CrossRefGoogle ScholarPubMed
42. Jacobs, JP, Jacobs, ML, Maruszewski, B, et al. Initial application in the EACTS and STS congenital heart surgery databases of an empirically derived methodology of complexity adjustment to evaluate surgical case mix and results. Eur J Cardiothorac Surg 2012; 42: 775780.CrossRefGoogle ScholarPubMed
43. Hornik, CP, He, X, Jacobs, JP, et al. Complications after the Norwood operation: an analysis of the society of thoracic surgeons congenital heart surgery database. Ann Thorac Surg 2011; 92: 17341740.CrossRefGoogle Scholar
44. Jacobs, JP, Edwards, FH, Shahian, DM, et al. Successful linking of the Society of Thoracic Surgeons Adult Cardiac Surgery Database to Centers for Medicare and Medicaid Services Medicare Data. Ann Thorac Surg 2010; 90: 11501156.CrossRefGoogle Scholar
45. Webb, G. The future of adult congenital heart disease care in the United States. Prog Cardiovasc Dis 2011; 53: 324326.CrossRefGoogle ScholarPubMed
46. Yeung, E, Kay, J, Roosevelt, GE, Brandon, M, Yetman, AT. Lapse of care as a predictor for morbidity in adults with congenital heart disease. Int J Cardiol 2008; 125: 6265.CrossRefGoogle Scholar
47. Ellison, S, Lamb, J, Haines, A, et al. A guide for identification and continuing care of adult congenital heart disease patients in primary care. Int J Cardiol 2011; doi:10.1016/j.ijcard.2011.06.020 [epub ahead of print[.Google ScholarPubMed
48. Meijboom, F, Mulder, B. Problems in the organization of care of patients with adult congenital heart disease. Arch Cardiovasc Dis 2010; 103: 411415.CrossRefGoogle ScholarPubMed
49. Koh, A, Yap, BT, Le Tan, J. Emergency admissions in Asians with adult congenital heart disease. Int J Cardiol 2011; 151: 5457.CrossRefGoogle ScholarPubMed
50. Patel, MS, Kogon, BE. Care of the adult congenital heart disease patient in the United States: a summary of the current system. Pediatr Cardiol 2010; 31: 281285.CrossRefGoogle ScholarPubMed
51. Moons, P, Meijboom, FJ, Baumgartner, H, et al. Structure and activities of adult congenital heart disease programmes in Europe. Eur Heart J 2010; 31: 13051310.CrossRefGoogle ScholarPubMed
52. Stuart, AG. Changing lesion demographics of the adult with congenital heart disease: an emerging population with complex needs. Future Cardiol 2012; 8: 329342.CrossRefGoogle ScholarPubMed
53. Tobler, D, Williams, WG, Jegatheeswaran, A, et al. Cardiac outcomes in young adult survivors of the arterial switch operation for transposition of the great arteries. J Am Coll Cardiol 2010; 56: 5864.CrossRefGoogle ScholarPubMed
54. Erez, E, Tam, VK, Galliani, C, Lashus, A, Doubin, NA, Peretti, J. Valve-sparing aortic root replacement for patients with a Fontan circulation. J Heart Valve Dis 2012; 21: 175180.Google ScholarPubMed
55. Said, SM, Dearani, JA, Silversides, CK, Martinez, RM, Drajpuch, DB. Longer-term issues for young adults with hypoplastic left heart syndrome: contraception, pregnancy, transition, transfer, counseling, and re-operation. Cardiol Young 2011; 21 (Suppl 2): 93100.CrossRefGoogle ScholarPubMed
57. Ikemba, CM, Kozinetz, CA, Feltes, TF, et al. Internet use in families with children requiring cardiac surgery for congenital heart disease. Pediatrics 2002; 109: 419422.CrossRefGoogle ScholarPubMed
61. McCrossan, BA, Grant, B, Morgan, GJ, Sands, AJ, Craig, B, Casey, FA. Home support for children with complex congenital heart disease using videoconferencing via broadband: initial results. J Telemed Telecare 2008; 14: 140142.CrossRefGoogle ScholarPubMed
62. Liddy, C, Dusseault, JJ, Dahrouge, S, Hogg, W, Lemelin, J, Humbert, J. Telehomecare for patients with multiple chronic illnesses: pilot study. Can Fam Physician 2008; 54: 5865.Google ScholarPubMed